Literature DB >> 31018752

'I don't feel like I'm in this on my own': Peer support for mothers of children with intellectual disability and challenging behaviour.

Angela Dew1, Susan Collings1,2, Leanne Dowse1, Ariella Meltzer1, Louisa Smith3.   

Abstract

This article reports on the peer support experiences of mothers with a son or daughter with intellectual disability and challenging behaviour. Engagement in parent peer support programs can improve family quality of life and may have multifaceted benefits at the interpersonal, intra-individual self-change and sociopolitical levels. Thirteen mothers were interviewed about their experiences of participating in a parent peer support program. Thematic analysis focused on the process elements of the program that contributed to its effectiveness in providing support to parents. There were three process-related themes: the role of a paid coordinator, diversity of engagement strategies and matching of peer support partners. Mothers appreciated the opportunities provided to engage in a range of strategies tailored to individual preferences, time and capacity constraints, supported by the paid coordinator. One-to-one peer support proved difficult to sustain given the challenges mothers faced in their day-to-day lives.

Entities:  

Keywords:  challenging behaviour; intellectual disability; parent peer support program; qualitative

Mesh:

Year:  2019        PMID: 31018752     DOI: 10.1177/1744629519843012

Source DB:  PubMed          Journal:  J Intellect Disabil        ISSN: 1744-6295


  3 in total

1.  Quality of Life and Concerns in Parent Caregivers of Adult Children Diagnosed with Intellectual Disability: A Qualitative Study.

Authors:  María Inmaculada Fernández-Ávalos; María Nieves Pérez-Marfil; Rosario Ferrer-Cascales; Francisco Cruz-Quintana; Violeta Clement-Carbonell; Manuel Fernández-Alcántara
Journal:  Int J Environ Res Public Health       Date:  2020-11-23       Impact factor: 3.390

2.  Support programmes for parents of children with intellectual disabilities: a scoping review protocol.

Authors:  Janene Elizabeth Marais; Lisa Wegner; Thuli Mthembu
Journal:  BMJ Open       Date:  2022-05-10       Impact factor: 3.006

3.  Early positive approaches to support (E-PAtS): Qualitative experiences of a new support programme for family caregivers of young children with intellectual and developmental disabilities.

Authors:  Nick Gore; Jill Bradshaw; Richard Hastings; Joanne Sweeney; Debbie Austin
Journal:  J Appl Res Intellect Disabil       Date:  2022-03-14
  3 in total

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