Literature DB >> 31000534

How to involve children and young people in what is, after all, their research.

Jenny Preston1, Simon R Stones2, Hugh Davies3, Jennifer Preston, Bob Phillips4,5.   

Abstract

Third in a series of four articles addressing ethical approaches and issues in undertaking clinical research with children and young people. © Author(s) (or their employer(s)) 2019. No commercial re-use. See rights and permissions. Published by BMJ.

Entities:  

Keywords:  children’s rights; ethics; health services research

Mesh：

Year:  2019        PMID： 31000534     DOI： 10.1136/archdischild-2018-315118

Source DB:  PubMed          Journal:  Arch Dis Child        ISSN： 0003-9888            Impact factor:   3.791


  7 in total

1.  The Your Rheum story: involvement of young people in rheumatology research.

Authors:  Ecem Esen; Suruthi Gnanenthiran; Laura Lunt; Janet E McDonagh
Journal:  BMC Rheumatol       Date:  2022-07-05

2.  Children and young people's contributions to public involvement and engagement activities in health-related research: A scoping review.

Authors:  Alison Rouncefield-Swales; Jane Harris; Bernie Carter; Lucy Bray; Toni Bewley; Rachael Martin
Journal:  PLoS One       Date:  2021-06-09       Impact factor: 3.240

3.  The importance of children and young person involvement in scoping the need for a paediatric glucocorticoid-associated patient reported outcome measure.

Authors:  S Singhal; E M D Smith; L Roper; C E Pain
Journal:  BMC Rheumatol       Date:  2022-10-15

4.  Improving communication of the concept of 'treat-to target' in childhood lupus: a public and patient (PPI) engagement project involving children and young people.

Authors:  R S Elliott; E Taylor; J Ainsworth; J Preston; E M D S Smith
Journal:  BMC Rheumatol       Date:  2022-10-15

5.  'I actually felt like I was a researcher myself.' On involving children in the analysis of qualitative paediatric research in the Netherlands.

Authors:  Malou L Luchtenberg; Els L M Maeckelberghe; Aa Eduard Verhagen
Journal:  BMJ Open       Date:  2020-08-30       Impact factor: 2.692

Review 6.  Recommendations by the European Network of Paediatric Research at the European Medicines Agency (Enpr-EMA) Working Group on preparedness of clinical trials about paediatric medicines process.

Authors:  Angeliki Siapkara; Claudio Fracasso; Gunter F Egger; Carmelo Rizzari; Cristina Serén Trasorras; Dimitrios Athanasiou; Mark A Turner
Journal:  Arch Dis Child       Date:  2021-04-15       Impact factor: 3.791

Review 7.  European research networks to facilitate drug research in children.

Authors:  Mark A Turner; Katharine Cheng; Saskia de Wildt; Heidrun Hildebrand; Sabah Attar; Paolo Rossi; Donato Bonifazi; Adriana Ceci; Joana Claverol; Begonya Nafria; Carlo Giaquinto
Journal:  Br J Clin Pharmacol       Date:  2020-09-20       Impact factor: 3.716
  7 in total

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