Barbara Birriel1, Windy Alonso2, Lisa A Kitko3, Judith E Hupcey4. 1. The Pennsylvania State University, College of Nursing, 90 Hope Drive, 1300 Academic Support Building / A110, Hershey, PA 17033, United States. Electronic address: bbirriel@psu.edu. 2. The Pennsylvania State University, College of Nursing, 90 Hope Drive, 1300 Academic Support Building / A110, Hershey, PA 17033, United States; University of Nebraska Medical Center, College of Nursing, 985330 Nebraska Medical Center, Omaha, NE 68198-5330, United States. 3. The Pennsylvania State University, College of Nursing, 90 Hope Drive, 1300 Academic Support Building / A110, Hershey, PA 17033, United States; The Pennsylvania State University, College of Nursing, 307H Nursing Sciences Building, University Park, PA 16802, United States. 4. The Pennsylvania State University, College of Nursing, 90 Hope Drive, 1300 Academic Support Building / A110, Hershey, PA 17033, United States.
Abstract
BACKGROUND: Family caregivers (FCGs) often participate in the decision for their loved one to receive a left ventricular assist device (LVAD). Little is known about the contribution of FCGs to this complex decision. OBJECTIVES: To investigate family caregiver-reported outcomes related to decision-making for LVAD implantation and their experiences post-implantation. METHODS: Descriptive thematic analysis was used to analyze longitudinal data. Thematic saturation was achieved. RESULTS: Three key themes emerged from the data. The main theme in the pre-implantation period was: Not a decision. The two themes in the post-implantation period were: More satisfaction than regret and Unanticipated situational change. CONCLUSIONS: Family caregiver-reported outcomes inform clinical practice and future research. FCGs of LVAD recipients did not see viable alternatives to LVAD implantation, were generally satisfied with post-implantation outcomes, and experienced unexpected life changes in the post-implantation period despite feeling prepared preoperatively. Education of both LVAD recipients and their FCGs must be optimized.
BACKGROUND: Family caregivers (FCGs) often participate in the decision for their loved one to receive a left ventricular assist device (LVAD). Little is known about the contribution of FCGs to this complex decision. OBJECTIVES: To investigate family caregiver-reported outcomes related to decision-making for LVAD implantation and their experiences post-implantation. METHODS: Descriptive thematic analysis was used to analyze longitudinal data. Thematic saturation was achieved. RESULTS: Three key themes emerged from the data. The main theme in the pre-implantation period was: Not a decision. The two themes in the post-implantation period were: More satisfaction than regret and Unanticipated situational change. CONCLUSIONS: Family caregiver-reported outcomes inform clinical practice and future research. FCGs of LVAD recipients did not see viable alternatives to LVAD implantation, were generally satisfied with post-implantation outcomes, and experienced unexpected life changes in the post-implantation period despite feeling prepared preoperatively. Education of both LVAD recipients and their FCGs must be optimized.
Authors: Clyde W Yancy; Mariell Jessup; Biykem Bozkurt; Javed Butler; Donald E Casey; Mark H Drazner; Gregg C Fonarow; Stephen A Geraci; Tamara Horwich; James L Januzzi; Maryl R Johnson; Edward K Kasper; Wayne C Levy; Frederick A Masoudi; Patrick E McBride; John J V McMurray; Judith E Mitchell; Pamela N Peterson; Barbara Riegel; Flora Sam; Lynne W Stevenson; W H Wilson Tang; Emily J Tsai; Bruce L Wilkoff Journal: Circulation Date: 2013-06-05 Impact factor: 29.690
Authors: James N Kirkpatrick; Katherine Kellom; Sarah C Hull; Rebecca Henderson; Jasmeet Singh; Laura A Coyle; Maria Mountis; Elizabeth D Shore; Ralph Petrucci; Peter F Cronholm; Frances K Barg Journal: J Card Fail Date: 2015-06-09 Impact factor: 5.712
Authors: Jennifer L Peura; Monica Colvin-Adams; Gary S Francis; Kathleen L Grady; Timothy M Hoffman; Mariell Jessup; Ranjit John; Michael S Kiernan; Judith E Mitchell; John B O'Connell; Francis D Pagani; Michael Petty; Pasala Ravichandran; Joseph G Rogers; Marc J Semigran; J Matthew Toole Journal: Circulation Date: 2012-10-29 Impact factor: 29.690
Authors: Kristin M Kostick; Charles G Minard; L A Wilhelms; Estevan Delgado; Mackenzie Abraham; Courtenay R Bruce; Jerry D Estep; Matthias Loebe; Robert J Volk; J S Blumenthal-Barby Journal: J Heart Lung Transplant Date: 2016-01-21 Impact factor: 10.247
Authors: Qian Yang; John Zimmerman; Aaron Steinfeld; Lisa Carey; James F Antaki Journal: ACM Trans Comput Hum Interact Date: 2016-05 Impact factor: 2.351
Authors: Melanie Calvert; Derek Kyte; Rebecca Mercieca-Bebber; Anita Slade; An-Wen Chan; Madeleine T King; Amanda Hunn; Andrew Bottomley; Antoine Regnault; An-Wen Chan; Carolyn Ells; Daniel O'Connor; Dennis Revicki; Donald Patrick; Doug Altman; Ethan Basch; Galina Velikova; Gary Price; Heather Draper; Jane Blazeby; Jane Scott; Joanna Coast; Josephine Norquist; Julia Brown; Kirstie Haywood; Laura Lee Johnson; Lisa Campbell; Lori Frank; Maria von Hildebrand; Michael Brundage; Michael Palmer; Paul Kluetz; Richard Stephens; Robert M Golub; Sandra Mitchell; Trish Groves Journal: JAMA Date: 2018-02-06 Impact factor: 56.272