Literature DB >> 30957897

Feeling like a burden to others and the wish to hasten death in patients with advanced illness: A systematic review.

Andrea Rodríguez-Prat1, Albert Balaguer2, Iris Crespo2, Cristina Monforte-Royo3.   

Abstract

Studies that have explored the wish to hasten death (WTHD) in patients with advanced illness have found that the feeling of being a burden may trigger WTHD. Research suggests that both the feeling and the wish are indicators of multidimensional suffering whose meaning may depend on the patient's biographical background. Therefore, we carried out a systematic review and meta-ethnography. Fourteen qualitative studies, reported in 16 articles, met the inclusion criteria. The analysis identified two themes: the personal and social dimensions that could help to explain the feeling of being a burden in these patients. These dimensions reveal how this feeling is linked to physical, psychological/emotional, existential and social factors. The feeling of being a burden cannot be understood without considering patients' personal interpretation of their dependency or care needs, and hence it is also necessary to understand their biographical background. Such an understanding is crucial to inform clinical policies based on the moral duty to provide all patients with humane care.
© 2019 John Wiley & Sons Ltd.

Entities:  

Keywords:  burden to others; clinical ethics; end of life; palliative care; qualitative studies; systematic review; wish to hasten death

Mesh:

Year:  2019        PMID: 30957897     DOI: 10.1111/bioe.12562

Source DB:  PubMed          Journal:  Bioethics        ISSN: 0269-9702            Impact factor:   1.898


  6 in total

1.  Control in patients with advanced cancer: an interpretative phenomenological study.

Authors:  Andrea Rodríguez-Prat; Denise Pergolizzi; Iris Crespo; Albert Balaguer; Josep Porta-Sales; Cristina Monforte-Royo
Journal:  BMC Palliat Care       Date:  2022-06-01       Impact factor: 3.113

2.  How to Train Your Health: Sports as a Resource to Improve Cognitive Abilities in Cancer Patients.

Authors:  Valeria Sebri; Lucrezia Savioni; Stefano Triberti; Ketti Mazzocco; Gabriella Pravettoni
Journal:  Front Psychol       Date:  2019-09-13

3.  Perceived Burdensomeness and the Wish for Hastened Death in Persons With Severe and Persistent Mental Illness.

Authors:  Julia Stoll; Christopher James Ryan; Manuel Trachsel
Journal:  Front Psychiatry       Date:  2021-01-12       Impact factor: 4.157

4.  Four Kinds of Hard: An Understanding of Cancer and Death among Latino Community Leaders.

Authors:  Kim L Larson; Holly F Mathews; Janet P Moye; Marianne R Congema; Sarah J Hoffman; Karla M Murrieta; Lee Ann Johnson
Journal:  Glob Qual Nurs Res       Date:  2021-03-23

5.  The tension between carrying a burden and feeling like a burden: a qualitative study of informal caregivers' and care recipients' experiences after patient discharge from hospital.

Authors:  Ingvild Lilleheie; Jonas Debesay; Asta Bye; Astrid Bergland
Journal:  Int J Qual Stud Health Well-being       Date:  2021-12

6.  The desire to die in palliative care: a sequential mixed methods study to develop a semi-structured clinical approach.

Authors:  Kerstin Kremeike; Gerrit Frerich; Vanessa Romotzky; Kathleen Boström; Thomas Dojan; Maren Galushko; Kija Shah-Hosseini; Saskia Jünger; Gary Rodin; Holger Pfaff; Klaus Maria Perrar; Raymond Voltz
Journal:  BMC Palliat Care       Date:  2020-04-16       Impact factor: 3.234

  6 in total

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