Literature DB >> 30957375

Health data linkage research in Australia remains challenging.

Dharmenaan Palamuthusingam1,2, David W Johnson2,3,4, Carmel Hawley2,3, Elaine Pascoe5, Magid Fahim2,3.   

Abstract

Data linkage is a valuable technique for uniting information from multiple sources that relates to the same person, place, family or event. Despite its value, establishing such linkages in Australia remains challenging. Existing policies are a missed opportunity for research and innovation and engender a negative attitude among researchers when considering data linkage as a research means. Greater leadership from the Population Health Research Network and cooperation from data custodians and Human Research Ethics Committees are necessary to access optimally Australia's enormous data potential.
© 2019 Royal Australasian College of Physicians.

Entities:  

Keywords:  data linkage; healthcare; research

Year:  2019        PMID: 30957375     DOI: 10.1111/imj.14244

Source DB:  PubMed          Journal:  Intern Med J        ISSN: 1444-0903            Impact factor:   2.048


  5 in total

1.  The SPOR-Canadian Data Platform: a national initiative to facilitate data rich multi-jurisdictional research.

Authors:  Lindsey Todd Dahl; Alan Katz; Kimberlyn McGrail; Brent Diverty; Jean-Francois Ethier; Frank Gavin; James Ted McDonald; P Alison Paprica; Michael Schull; Jennifer D Walker; Juliana Wu
Journal:  Int J Popul Data Sci       Date:  2020-11-09

2.  [Administrative data linkage and its usefulness in public health: the case of EcuadorVinculação de dados administrativos e sua utilização em saúde pública: o caso do Equador].

Authors:  Fadya Orozco; Santiago Guaygua; Danilo Hernán López Villacis; Fabián Muñoz; Marcelo L Urquía
Journal:  Rev Panam Salud Publica       Date:  2021-02-26

3.  Development and implementation of a national online application system for cross-jurisdictional linked data.

Authors:  Natalie Wray; Kate Miller; Katie Irvine; Elizabeth Moore; Alice Crisp; Kathleen Bapaume; Catherine Taylor; Rob Smetak; Nadine Wiggins; Mikhalina Dombrovskaya; Felicity Flack
Journal:  Int J Popul Data Sci       Date:  2022-04-27

4.  The need for improved Australian data on social determinants of health inequities.

Authors:  Joanne Flavel; Martin McKee; Toby Freeman; Connie Musolino; Helen van Eyk; Fisaha H Tesfay; Fran Baum
Journal:  Med J Aust       Date:  2022-04-08       Impact factor: 12.776

5.  Challenges and opportunities for using population health data to investigate cancer survivors' quality of life in Australia.

Authors:  Imogen Ramsey; Nadia Corsini; Amanda Hutchinson; Julie Marker; Marion Eckert
Journal:  Qual Life Res       Date:  2022-03-04       Impact factor: 3.440

  5 in total

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