Literature DB >> 30927426

Genetic databases and the future of donor anonymity.

Guido Pennings1.   

Abstract

Anonymity is a multifaceted term. Anonymity is rarely eternal or absolute. The use of genetic databases increases the risk of identification of previously anonymous donors. Searches through genetic databases jeopardize the privacy of people who did and did not register on them. Three types of searches can be distinguished in the context of gamete donation: offspring looking for their donor, offspring looking for donor siblings and donors looking for their donor offspring. All three types of searches violate the rights of recipients and donors. It is argued that despite the existence of genetic databases, anonymity maintains the same function as it had before: it expresses a wish for distance and privacy by both donors and recipients and, even if not enforceable, should be respected by all parties in good faith.
© The Author(s) 2019. Published by Oxford University Press on behalf of the European Society of Human Reproduction and Embryology. All rights reserved. For Permissions, please e-mail: journals.permissions@oup.com.

Entities:  

Keywords:  anonymity; disclosure; donor offspring; genealogy; genetic search; identification; privacy

Mesh:

Year:  2019        PMID: 30927426     DOI: 10.1093/humrep/dez029

Source DB:  PubMed          Journal:  Hum Reprod        ISSN: 0268-1161            Impact factor:   6.918


  2 in total

1.  Motivations and Attitudes of Men Towards Sperm Donation: Whom to Donate and Why?

Authors:  João Areias; Jorge Gato; Mariana Moura-Ramos
Journal:  Sex Res Social Policy       Date:  2021-01-27

2.  Good practice recommendations for information provision for those involved in reproductive donation.

Authors:  Jackson Kirkman-Brown; Carlos Calhaz-Jorge; Eline A F Dancet; Kersti Lundin; Mariana Martins; Kelly Tilleman; Petra Thorn; Nathalie Vermeulen; Lucy Frith
Journal:  Hum Reprod Open       Date:  2022-02-16
  2 in total

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