Jinhai Huo1, Young-Rock Hong2, Reetu Grewal3, Sandhya Yadav2, Isaac W Heller2, Jiang Bian4, Diana J Wilkie5. 1. Department of Health Services Research, Management and Policy, College of Public Health and Health Professions, University of Florida, Gainesville, Florida, USA. Electronic address: JHuo@ufl.edu. 2. Department of Health Services Research, Management and Policy, College of Public Health and Health Professions, University of Florida, Gainesville, Florida, USA. 3. Department of Community Health and Family Medicine, College of Medicine, University of Florida, Jacksonville, Florida, USA. 4. Department of Health Outcomes & Biomedical Informatics, College of Medicine, University of Florida, Gainesville, Florida, USA. 5. Department of Biobehavioral Nursing Science, College of Nursing, University of Florida, Gainesville, Florida, USA.
Abstract
CONTEXT: Palliative care will play an important role to alleviate disease suffering and improve quality of life for cancer patients and their family caregivers. OBJECTIVE: We examined the knowledge penetration of palliative care in a nationally representative sample of U.S. adults. METHODS: We used the 2018 National Cancer Institute's Health Information National Trends Survey to determine the proportion of respondents who had knowledge of palliative care as well as the depth and sources of their knowledge. We used the Pearson chi-square test and a multivariable logistic regression model to assess the association of respondents' basic demographic characteristics as well as health status and having knowledge of palliative care. RESULTS: We identified 3194 respondents (weighted sample size: 229,591,005) who met the inclusion criteria. About 71% (2097) of all respondents had no knowledge of palliative care and 84.5% of Hispanic respondents had no knowledge of palliative care. Multivariable analyses indicated the middle-aged (50-64 years old, odds ratio, 1.58; 95% CI, 1.15-2.19, P = 0.006) and elder population (65 years or older, odds ratio, 1.70, 95% CI, 1.30-2.22, P < 0.001) have a significantly better knowledge of palliative care than those under age 50. Common misconceptions existed in respondents, even those who had self-reported adequate knowledge of palliative care. CONCLUSION: The proportion of adults who have knowledge of palliative care is low in the U.S. Greater efforts are needed to promote palliative care and reduce the misconceptions of palliative care in the general population.
CONTEXT: Palliative care will play an important role to alleviate disease suffering and improve quality of life for cancerpatients and their family caregivers. OBJECTIVE: We examined the knowledge penetration of palliative care in a nationally representative sample of U.S. adults. METHODS: We used the 2018 National Cancer Institute's Health Information National Trends Survey to determine the proportion of respondents who had knowledge of palliative care as well as the depth and sources of their knowledge. We used the Pearson chi-square test and a multivariable logistic regression model to assess the association of respondents' basic demographic characteristics as well as health status and having knowledge of palliative care. RESULTS: We identified 3194 respondents (weighted sample size: 229,591,005) who met the inclusion criteria. About 71% (2097) of all respondents had no knowledge of palliative care and 84.5% of Hispanic respondents had no knowledge of palliative care. Multivariable analyses indicated the middle-aged (50-64 years old, odds ratio, 1.58; 95% CI, 1.15-2.19, P = 0.006) and elder population (65 years or older, odds ratio, 1.70, 95% CI, 1.30-2.22, P < 0.001) have a significantly better knowledge of palliative care than those under age 50. Common misconceptions existed in respondents, even those who had self-reported adequate knowledge of palliative care. CONCLUSION: The proportion of adults who have knowledge of palliative care is low in the U.S. Greater efforts are needed to promote palliative care and reduce the misconceptions of palliative care in the general population.
Authors: Motolani E Ogunsanya; Elizabeth A Goetzinger; Oluwatomi F Owopetu; Paulette D Chandler; Lauren E O'Connor Journal: Cancer Epidemiol Biomarkers Prev Date: 2021-06-04 Impact factor: 4.090