| Literature DB >> 30920951 |
Hila Avieli1, Tova Band-Winterstein2, Tal Araten Bergman3.
Abstract
The research explores sibling relationships, and the ways in which they are shaped over the life course by family members, in families with a lifelong disability. In-depth, semistructured interviews were conducted with 15 family units including a parent, a sibling, and an adult sibling with a disability. The content analysis revealed five sibling relationship patterns: (a) "Not a child, but a parent caretaker"-the parent-surrogate sibling; (b) "We somehow grew apart"-the estranged sibling; (c) "It is important for me to maintain some kind of distance"-the bystander sibling; (d) "When there's something they want to tell him, they always send me"-the mediator sibling; and (e) "I love him to death"-the friend sibling. These patterns of adult sibling relationships are discussed in relation to family dynamics, values, and legacies; recommendations for practice and research are made.Entities:
Keywords: Israel; developmental disability; families; health; interpretive phenomenological analysis; lived experience; qualitative
Year: 2019 PMID: 30920951 DOI: 10.1177/1049732319837228
Source DB: PubMed Journal: Qual Health Res ISSN: 1049-7323