Literature DB >> 30920951

Sibling Relationships Over the Life Course: Growing Up With a Disability.

Hila Avieli1, Tova Band-Winterstein2, Tal Araten Bergman3.   

Abstract

The research explores sibling relationships, and the ways in which they are shaped over the life course by family members, in families with a lifelong disability. In-depth, semistructured interviews were conducted with 15 family units including a parent, a sibling, and an adult sibling with a disability. The content analysis revealed five sibling relationship patterns: (a) "Not a child, but a parent caretaker"-the parent-surrogate sibling; (b) "We somehow grew apart"-the estranged sibling; (c) "It is important for me to maintain some kind of distance"-the bystander sibling; (d) "When there's something they want to tell him, they always send me"-the mediator sibling; and (e) "I love him to death"-the friend sibling. These patterns of adult sibling relationships are discussed in relation to family dynamics, values, and legacies; recommendations for practice and research are made.

Entities:  

Keywords:  Israel; developmental disability; families; health; interpretive phenomenological analysis; lived experience; qualitative

Year:  2019        PMID: 30920951     DOI: 10.1177/1049732319837228

Source DB:  PubMed          Journal:  Qual Health Res        ISSN: 1049-7323


  2 in total

1.  "Sometimes I Feel Grateful…": Experiences of the Adolescent Siblings of Children with Autism Spectrum Disorder in Malaysia.

Authors:  Shin Ying Chu; Siti Nur Zafirah Binti Kassim; Chun Hong Gan; Veronica Fierro; Caryn Mei Hsien Chan; Deborah Hersh
Journal:  J Autism Dev Disord       Date:  2021-07-10

2.  Experiences of siblings of children with congenital heart disease during Coronavirus disease 2019; A qualitative interview study.

Authors:  Elizabeth Bichard; Stephen McKeever; Suzanne Bench; Jo Wray
Journal:  J Pediatr Nurs       Date:  2022-01-19       Impact factor: 2.145

  2 in total

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