Literature DB >> 30902887

Making research central to good paediatric practice.

Hugh T Davies1, Bob Phillips2,3, Jennifer Preston4, Simon R Stones5.   

Abstract

There is evidence abroad of a cautious if not protective approach to research involving children and young people (CYP). We are sensitive to these views but believe they are based on a misconception that we must address together. In this introductory article we look at the complexities and risks of this research, how we must involving CYP and their families in the all aspects of research, how to seek valid consent and assent and how research findings should be reported. Considering how we should conduct this ongoing debate, we outline seven principles that we believe should underpin the necessary dialogue between all with legitimate interest. Our debate should be: (1) evidence informed: arguments should be supported by appropriate and reasonably accurate factual claims; (2) transparent about the grounds for decisions; (3) balanced: arguments should be met by contrary arguments; (4) conscientious: we must be willing to talk and listen, with civility and respect; (5) substantive: arguments should be considered sincerely on their merits, not on how they are made or by who is making them; (6) comprehensive: all points of view held by significant portions of the population should receive attention; and (7) with procedures for revising decisions in light of challenges, and it should be our responsibility to ensure we have met all of these. © Author(s) (or their employer(s)) 2019. No commercial re-use. See rights and permissions. Published by BMJ.

Entities:  

Keywords:  ethics; health services research

Mesh:

Year:  2019        PMID: 30902887     DOI: 10.1136/archdischild-2018-315117

Source DB:  PubMed          Journal:  Arch Dis Child        ISSN: 0003-9888            Impact factor:   3.791


  5 in total

1.  Children and young people's contributions to public involvement and engagement activities in health-related research: A scoping review.

Authors:  Alison Rouncefield-Swales; Jane Harris; Bernie Carter; Lucy Bray; Toni Bewley; Rachael Martin
Journal:  PLoS One       Date:  2021-06-09       Impact factor: 3.240

2.  Development of a Digital Decision Support Tool to Aid Participation of Children With Disabilities in Pediatric Rehabilitation Services: Explorative Qualitative Study.

Authors:  Elin Vinblad; Ingrid Larsson; Maria Lönn; Emma Olsson; Jens M Nygren; Petra Svedberg
Journal:  JMIR Form Res       Date:  2019-10-02

3.  Clinical utility and acceptability of a whole-hospital, pro-active electronic paediatric early warning system (the DETECT study): A prospective e-survey of parents and health professionals.

Authors:  Bernie Carter; Holly Saron; Lucy Blake; Chin-Kien Eyton-Chong; Sarah Dee; Leah Evans; Jane Harris; Hannah Hughes; Dawn Jones; Caroline Lambert; Steven Lane; Fulya Mehta; Matthew Peak; Jennifer Preston; Sarah Siner; Gerri Sefton; Enitan D Carrol
Journal:  PLoS One       Date:  2022-09-15       Impact factor: 3.752

4.  Parents' experiences and perceptions of the acceptability of a whole-hospital, pro-active electronic pediatric early warning system (the DETECT study): A qualitative interview study.

Authors:  Holly Saron; Bernie Carter; Sarah Siner; Jennifer Preston; Matthew Peak; Fulya Mehta; Steven Lane; Caroline Lambert; Dawn Jones; Hannah Hughes; Jane Harris; Leah Evans; Sarah Dee; Chin-Kien Eyton-Chong; Enitan D Carrol; Gerri Sefton
Journal:  Front Pediatr       Date:  2022-08-30       Impact factor: 3.569

Review 5.  European research networks to facilitate drug research in children.

Authors:  Mark A Turner; Katharine Cheng; Saskia de Wildt; Heidrun Hildebrand; Sabah Attar; Paolo Rossi; Donato Bonifazi; Adriana Ceci; Joana Claverol; Begonya Nafria; Carlo Giaquinto
Journal:  Br J Clin Pharmacol       Date:  2020-09-20       Impact factor: 3.716

  5 in total

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