Literature DB >> 30894272

Communication with children and adolescents about the diagnosis of a life-threatening condition in their parent.

Louise Dalton1, Elizabeth Rapa1, Sue Ziebland2, Tamsen Rochat3, Brenda Kelly4, Lucy Hanington1, Ruth Bland5, Aisha Yousafzai6, Alan Stein7.   

Abstract

Many adults diagnosed with a life-threatening condition have children living at home; they and their partners face the dual challenge of coping with the diagnosis while trying to maintain a parenting role. Parents are often uncertain about how, when, and what to tell their children about the condition, and are fearful of the effect on their family. There is evidence that children are often aware that something is seriously wrong and want honest information. Health-care professionals have a key role in supporting and guiding parents and caregivers to communicate with their children about the diagnosis. However, the practical and emotional challenges of communicating with families are compounded by a scarcity of evidence-based guidelines. This Review considers children's awareness and understanding of their parents' condition, the effect of communication around parental life-threatening condition on their wellbeing, factors that influence communication, and the challenges to achieving effective communication. Children's and parents' preferences about communication are outlined. An expert workshop was convened to generate principles for health-care professionals, intended as practical guidance in the current absence of empirically derived guidelines.
Copyright © 2019 Elsevier Ltd. All rights reserved.

Entities:  

Mesh:

Year:  2019        PMID: 30894272     DOI: 10.1016/S0140-6736(18)33202-1

Source DB:  PubMed          Journal:  Lancet        ISSN: 0140-6736            Impact factor:   79.321


  23 in total

1.  Families Addressing Cancer Together (FACT): feasibility and acceptability of a web-based psychosocial intervention for parents with cancer.

Authors:  Eliza M Park; Allison M Deal; Hillary M Heiling; Ahrang Jung; Justin M Yopp; Savannah M Bowers; Laura C Hanson; Mi-Kyung Song; Carmina G Valle; Brian Yi; Anna Cassidy; Hannah Won; Donald L Rosenstein
Journal:  Support Care Cancer       Date:  2022-07-13       Impact factor: 3.359

2.  How I approach the use of bibliotherapy in caring for children with oncologic and hematologic conditions.

Authors:  Meaghann S Weaver; Brian W Pennarola; Abigail Fry; Lori Wiener
Journal:  Pediatr Blood Cancer       Date:  2022-05-26       Impact factor: 3.838

3.  Conversations About Children When an Important Adult Is at End of Life: An Audit.

Authors:  Jeffrey R Hanna; Elizabeth Rapa; Mary Miller; Madeleine Turner; Louise J Dalton
Journal:  Am J Hosp Palliat Care       Date:  2021-09-19       Impact factor: 2.090

4.  Pediatric home confinement due to COVID-19: Somatic and anxiety spectrum consequences.

Authors:  Salvador I Garcia-Adasme; José M Cárdenas-Rebollo; Ana Jimenez-Perianes; Margarita Lalinde; Sara Jimeno; Paula S Ventura; Alvaro Díaz; Alejandro López-Escobar
Journal:  J Clin Nurs       Date:  2021-05-06       Impact factor: 4.423

5.  Exploring the stress sensitization theory with temperamentally inhibited children: a population-based study.

Authors:  Amy Brown; Joanna Bennet; Ronald M Rapee; Dina R Hirshfeld-Becker; Jordana K Bayer
Journal:  BMC Pediatr       Date:  2020-05-29       Impact factor: 2.125

6.  Parents' Perceived Impact of the Societal Lockdown of COVID-19 on Family Well-Being and on the Emotional and Behavioral State of Walloon Belgian Children Aged 4 to 13 Years: An Exploratory Study.

Authors:  C Stassart; A Wagener; A-M Etienne
Journal:  Psychol Belg       Date:  2021-06-29

7.  Mothers' daily perceived stress influences their children's mental health during SARS-CoV-2-pandemic-an online survey.

Authors:  Franziska Köhler-Dauner; Vera Clemens; Stephanie Lange; Ute Ziegenhain; Jörg M Fegert
Journal:  Child Adolesc Psychiatry Ment Health       Date:  2021-06-16       Impact factor: 3.033

8.  The Fellowship Milieu in Adult Cardiothoracic Anesthesiology-Fostering Psychological Well-being During the Coronavirus Crisis.

Authors:  Jared W Feinman; Lourdes Al-Ghofaily; John G Augoustides
Journal:  J Cardiothorac Vasc Anesth       Date:  2020-04-26       Impact factor: 2.628

9.  The family talk intervention for families when a parent is cared for in palliative care - potential effects from minor children's perspectives.

Authors:  Rakel Eklund; Anette Alvariza; Ulrika Kreicbergs; Li Jalmsell; Malin Lövgren
Journal:  BMC Palliat Care       Date:  2020-04-16       Impact factor: 3.234

10.  Protecting the psychological health of children through effective communication about COVID-19.

Authors:  Louise Dalton; Elizabeth Rapa; Alan Stein
Journal:  Lancet Child Adolesc Health       Date:  2020-03-31
View more

北京卡尤迪生物科技股份有限公司 © 2022-2023.