Literature DB >> 30878608

Screening for Family Psychosocial Risk in Pediatric Hematopoietic Stem Cell Transplantation with the Psychosocial Assessment Tool.

Ahna L H Pai1, Avi Madan Swain2, Fang Fang Chen3, Wei-Ting Hwang4, Gabriela Vega5, Olivia Carlson5, Francisco Argueta Ortiz5, Kimberly Canter3, Naomi Joffe1, E Anders Kolb6, Stella M Davies7, Joseph H Chewning2, Janet Deatrick8, Anne E Kazak9.   

Abstract

Family psychosocial risk screening is an important initial step in delivering evidence-based care in hematopoietic stem cell transplantation (HCT). Establishing an evidence-based screening approach that is acceptable, reliable, and valid is an essential step in psychosocial care delivery. This is a 3-institution multimethod study. In part 1, caregivers of children about to undergo HCT (n = 140) completed the Psychosocial Assessment Tool-Hematopoietic Cell Transplantation (PAT-HCT), a brief parent report screener adapted for HCT, and validating questionnaires. Families received feedback on their risks identified on the PAT-HCT. In part 2, 12 caregivers completed a semistructured interview about their perceptions of the PAT and the feedback process. The reliability and validity of the PAT-HCT total and subscale scores were tested using Kuder-Richardson-20 (KR-20) and Pearson correlations. Thematic content analysis was used to analyze the qualitative interview data. Internal consistency for the total score (KR-20 = .88) and the Child Problems, Sibling Problems, Family Problems, and Stress Reactions subscales were strong (KR-20 >.70). Family Structure, Social Support, and Family Beliefs subscales were adequate (KR-20 = .55 to .63). Moderate to strong correlations with the criteria measures provided validation for the total and subscale scores. Feedback was provided to 97.14% of the families who completed the PAT-HCT, and the mean rating of acceptability was >4.00 (on a 5-point scale). The qualitative data indicate that families appreciate the effort to provide screening and feedback. The PAT-HCT is a psychometrically sound screener for use in HCT. Feedback can be given to families. Both the screener and the feedback process are acceptable to caregivers.
Copyright © 2019 American Society for Blood and Marrow Transplantation. Published by Elsevier Inc. All rights reserved.

Entities:  

Keywords:  Families; HCT; Healthcare delivery; Pediatrics; Psychosocial; Psychosocial Assessment Tool (PAT); Risk screening

Mesh:

Year:  2019        PMID: 30878608     DOI: 10.1016/j.bbmt.2019.03.012

Source DB:  PubMed          Journal:  Biol Blood Marrow Transplant        ISSN: 1083-8791            Impact factor:   5.742


  8 in total

1.  Psychosocial and financial issues after hematopoietic cell transplantation.

Authors:  David Buchbinder; Nandita Khera
Journal:  Hematology Am Soc Hematol Educ Program       Date:  2021-12-10

2.  Family Adjustment to Pediatric Hematopoietic Stem Cell Transplant During COVID-19.

Authors:  Marie L Chardon; Kimberly L Klages; Naomi E Joffe; Ahna L H Pai
Journal:  J Pediatr Psychol       Date:  2021-10-18

3.  Screening for caregiver psychosocial risk in children with medical complexity: a cross-sectional study.

Authors:  Rahul Verma; Yasna Mehdian; Neel Sheth; Kathy Netten; Jean Vinette; Ashley Edwards; Joanna Polyviou; Julia Orkin; Reshma Amin
Journal:  BMJ Paediatr Open       Date:  2020-07-27

4.  Audit of Psychosocial and Palliative Care Support for Children Having Allogeneic Stem Cell Transplants at the New Zealand National Allogeneic Transplant Centre.

Authors:  Amanda M Evans; Hiran Thabrew; Bruce Arroll; Nyree Cole; Ross Drake
Journal:  Children (Basel)       Date:  2021-04-29

5.  Caregivers' Experience of Medication Adherence Barriers during Pediatric Hematopoietic Stem Cell Transplant: A Qualitative Study.

Authors:  Marie L Chardon; Kimberly L Klages; Naomi E Joffe; Ahna L H Pai
Journal:  J Pediatr Psychol       Date:  2022-06-07

6.  Implementation of family psychosocial risk assessment in pediatric cancer with the Psychosocial Assessment Tool (PAT): study protocol for a cluster-randomized comparative effectiveness trial.

Authors:  Anne E Kazak; Janet A Deatrick; Michele A Scialla; Eric Sandler; Rebecca E Madden; Lamia P Barakat
Journal:  Implement Sci       Date:  2020-07-29       Impact factor: 7.327

Review 7.  Health-Related and Economic Burden Among Family Caregivers of Patients with Acute Myeloid Leukemia or Hematological Malignancies.

Authors:  Emre Yucel; Shiyu Zhang; Sumeet Panjabi
Journal:  Adv Ther       Date:  2021-09-09       Impact factor: 3.845

Review 8.  Understanding and Supporting Informal Cancer Caregivers.

Authors:  Alex Molassiotis; Mian Wang
Journal:  Curr Treat Options Oncol       Date:  2022-03-14
  8 in total

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