Literature DB >> 30846558

Expanding the Patient's Voice in Nephrology with Patient-Reported Outcomes.

John D Peipert1,2, Ron D Hays3.   

Abstract

Entities:  

Keywords:  dialysis; outcomes; patient-centered care; quality of life

Mesh:

Year:  2019        PMID: 30846558      PMCID: PMC6442351          DOI: 10.1681/ASN.2019010019

Source DB:  PubMed          Journal:  J Am Soc Nephrol        ISSN: 1046-6673            Impact factor:   10.121


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  17 in total

1.  Improving CKD-Specific Patient-Reported Measures of Health-Related Quality of Life.

Authors:  John E Ware; Michelle M Richardson; Klemens B Meyer; Barbara Gandek
Journal:  J Am Soc Nephrol       Date:  2019-03-21       Impact factor: 10.121

2.  Psychometric Properties of the Kidney Disease Quality of Life 36-Item Short-Form Survey (KDQOL-36) in the United States.

Authors:  John D Peipert; Peter M Bentler; Kristi Klicko; Ron D Hays
Journal:  Am J Kidney Dis       Date:  2017-11-08       Impact factor: 8.860

3.  Physical function metric over measure: An illustration with the Patient-Reported Outcomes Measurement Information System (PROMIS) and the Functional Assessment of Cancer Therapy (FACT).

Authors:  Aaron J Kaat; Benjamin D Schalet; Joshua Rutsohn; Roxanne E Jensen; David Cella
Journal:  Cancer       Date:  2017-09-08       Impact factor: 6.860

4.  Validation of the Patient-Reported Outcomes Measurement Information System (PROMIS)-57 and -29 item short forms among kidney transplant recipients.

Authors:  Evan Tang; Oladapo Ekundayo; John Devin Peipert; Nathaniel Edwards; Aarushi Bansal; Candice Richardson; Susan J Bartlett; Doris Howell; Madeline Li; David Cella; Marta Novak; Istvan Mucsi
Journal:  Qual Life Res       Date:  2018-11-22       Impact factor: 4.147

5.  Health-related quality of life in patients with human immunodeficiency virus infection in the United States: results from the HIV Cost and Services Utilization Study.

Authors:  R D Hays; W E Cunningham; C D Sherbourne; I B Wilson; A W Wu; P D Cleary; D F McCaffrey; J A Fleishman; S Crystal; R Collins; F Eggan; M F Shapiro; S A Bozzette
Journal:  Am J Med       Date:  2000-06-15       Impact factor: 4.965

6.  The Orthopaedic Foot and Ankle Outcomes Research (OFAR) network: feasibility of a multicenter network for patient outcomes assessment in foot and ankle.

Authors:  Kenneth J Hunt; Ian Alexander; Judith Baumhauer; James Brodsky; Christopher Chiodo; Timothy Daniels; W Hodges Davis; Jon Deland; Scott Ellis; Man Hung; Susan N Ishikawa; L Daniel Latt; Phinit Phisitkul; Nelson Fong SooHoo; Arthur Yang; Charles L Saltzman
Journal:  Foot Ankle Int       Date:  2014-09       Impact factor: 2.827

7.  Development of the kidney disease quality of life (KDQOL) instrument.

Authors:  R D Hays; J D Kallich; D L Mapes; S J Coons; W B Carter
Journal:  Qual Life Res       Date:  1994-10       Impact factor: 4.147

8.  Validation of GAITRite and PROMIS as high-throughput physical function outcome measures following ACL reconstruction.

Authors:  M Owen Papuga; Christopher A Beck; Stephen L Kates; Edward M Schwarz; Michael D Maloney
Journal:  J Orthop Res       Date:  2014-02-14       Impact factor: 3.494

9.  Guidance for industry: patient-reported outcome measures: use in medical product development to support labeling claims: draft guidance.

Authors: 
Journal:  Health Qual Life Outcomes       Date:  2006-10-11       Impact factor: 3.186

10.  Gaining the PROMIS perspective from children with nephrotic syndrome: a Midwest pediatric nephrology consortium study.

Authors:  Debbie S Gipson; David T Selewski; Susan F Massengill; Larysa Wickman; Kassandra L Messer; Emily Herreshoff; Corinna Bowers; Maria E Ferris; John D Mahan; Larry A Greenbaum; Jackie MacHardy; Gaurav Kapur; Deepa H Chand; Jens Goebel; Gina Marie Barletta; Denis Geary; David B Kershaw; Cynthia G Pan; Rasheed Gbadegesin; Guillermo Hidalgo; Jerome C Lane; Jeffrey D Leiser; Brett W Plattner; Peter X Song; David Thissen; Yang Liu; Heather E Gross; Darren A DeWalt
Journal:  Health Qual Life Outcomes       Date:  2013-03-04       Impact factor: 3.186

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  8 in total

1.  Considering Our Patients and Tempering Terminology.

Authors:  Julie R Ingelfinger
Journal:  Clin J Am Soc Nephrol       Date:  2020-06-25       Impact factor: 8.237

2.  Toward Patient-Centered Innovation: A Conceptual Framework for Patient-Reported Outcome Measures for Transformative Kidney Replacement Devices.

Authors:  Jennifer E Flythe; Tandrea S Hilliard; Kourtney Ikeler; San Keller; Debbie S Gipson; Amanda C Grandinetti; Robert J Nordyke; Ronald D Perrone; Prabir Roy-Chaudhury; Mark Unruh; Melissa West; Fraser Bocell; Frank P Hurst
Journal:  Clin J Am Soc Nephrol       Date:  2020-04-10       Impact factor: 8.237

Review 3.  Patient-Reported Outcome Measures for Adults With Kidney Disease: Current Measures, Ongoing Initiatives, and Future Opportunities for Incorporation Into Patient-Centered Kidney Care.

Authors:  Devika Nair; F Perry Wilson
Journal:  Am J Kidney Dis       Date:  2019-09-03       Impact factor: 8.860

4.  Incorporating patient-reported outcomes (PROs) into dialysis policy: Current initiatives, challenges, and opportunities.

Authors:  Ebele M Umeukeje; Devika Nair; Rachel B Fissell; Kerri L Cavanaugh
Journal:  Semin Dial       Date:  2020-01       Impact factor: 3.455

5.  A narrative review of current evidence supporting the implementation of electronic patient-reported outcome measures in the management of chronic diseases.

Authors:  Olalekan Lee Aiyegbusi; Devika Nair; John Devin Peipert; Kara Schick-Makaroff; Istvan Mucsi
Journal:  Ther Adv Chronic Dis       Date:  2021-05-24       Impact factor: 5.091

6.  Vascular access-specific health-related quality of life impacts among hemodialysis patients: qualitative development of the hemodialysis access-related quality of life (HARQ) instrument.

Authors:  Robert J Nordyke; Gina Nicholson; Shawn M Gage; Ted Lithgow; Jonathan Himmelfarb; Matthew B Rivara; Ron D Hays; Karen Woo; John Devin Peipert
Journal:  BMC Nephrol       Date:  2020-01-14       Impact factor: 2.388

7.  Protocol for the AKT-MP trial: Access to Kidney Transplantation in Minority Populations.

Authors:  Jamie M Loor; Nila S Judd; Claudia M Rice; Diana D Perea; Emilee Croswell; Pooja P Singh; Mark Unruh; Yiliang Zhu; Ashwini R Sehgal; Sarah L Goff; Cindy L Bryce; Larissa Myaskovsky
Journal:  Contemp Clin Trials Commun       Date:  2022-10-04

8.  Problems with analyses and interpretation of data in "use of the KDQOL-36™ for assessment of health-related quality of life among dialysis patients in the United States".

Authors:  Ron D Hays; John D Peipert; Joel D Kallich
Journal:  BMC Nephrol       Date:  2019-12-03       Impact factor: 2.388

  8 in total

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