Literature DB >> 30838985

Who lives in Scotland's care homes? Descriptive analysis using routinely collected social care data 2012-16.

Jennifer K Burton1, Ellen Lynch2, Sharon Love3, Julie Rintoul2, John M Starr4, Susan D Shenkin5.   

Abstract

BACKGROUND: Adults living in long-term care are a significant and complex population who are under-represented in research using traditional methodologies.
METHODS: The aim of this study was to provide the first description of the adult care home population and their homes, using routinely collected data. A retrospective descriptive analysis was performed using the Scottish Care Home Census (SCHC) between 1 April 2012 and 31 March 2016.
RESULTS: Data are from 1,299 care home services (79.3-89.7% completeness), including 34,399-39,311 residents per year across all regions of Scotland. A total of 68% of residents are female, with median age 84 years. 27% fund their own care. Over 85% of self-funded residents receive free personal care allowance. Around 60% require care from a registered nurse and 49% have a formal diagnosis of dementia. The majority of admissions come from hospital (46%). Between 13 and 17% of residents die annually, with a median time to death of 596-653 days.
CONCLUSIONS: This study provides the most comprehensive descriptive data of UK care home residents available. There is scope to enhance the information available through linkage to other routine sources.

Entities:  

Keywords:  care home; long-term care; nursing home; residential home; routinely collected data; social care

Mesh:

Year:  2019        PMID: 30838985     DOI: 10.4997/JRCPE.2019.103

Source DB:  PubMed          Journal:  J R Coll Physicians Edinb        ISSN: 1478-2715


  7 in total

1.  Segmentation and shielding of the most vulnerable members of the population as elements of an exit strategy from COVID-19 lockdown.

Authors:  Bram A D van Bunnik; Alex L K Morgan; Paul R Bessell; Giles Calder-Gerver; Feifei Zhang; Samuel Haynes; Jordan Ashworth; Shengyuan Zhao; Roo Nicola Rose Cave; Meghan R Perry; Hannah C Lepper; Lu Lu; Paul Kellam; Aziz Sheikh; Graham F Medley; Mark E J Woolhouse
Journal:  Philos Trans R Soc Lond B Biol Sci       Date:  2021-05-31       Impact factor: 6.237

2.  Care-home outbreaks of COVID-19 in Scotland March to May 2020: National linked data cohort analysis.

Authors:  Jennifer Kirsty Burton; Megan McMinn; James E Vaughan; Jacques Fleuriot; Bruce Guthrie
Journal:  Age Ageing       Date:  2021-09-11       Impact factor: 10.668

Review 3.  Developing a minimum data set for older adult care homes in the UK: exploring the concept and defining early core principles.

Authors:  Jennifer Kirsty Burton; Arne Timon Wolters; Ann-Marie Towers; Liz Jones; Julienne Meyer; Adam Lee Gordon; Lisa Irvine; Barbara Hanratty; Karen Spilsbury; Guy Peryer; Stacey Rand; Anne Killett; Gizdem Akdur; Stephen Allan; Priti Biswas; Claire Goodman
Journal:  Lancet Healthy Longev       Date:  2022-03-07

4.  Data Resource Profile: the Scottish Social Care Survey (SCS) and the Scottish Care Home Census (SCHC).

Authors:  D Henderson; J K Burton; E Lynch; D Clark; J Rintoul; N Bailey
Journal:  Int J Popul Data Sci       Date:  2019-09-02

5.  Evolution and effects of COVID-19 outbreaks in care homes: a population analysis in 189 care homes in one geographical region of the UK.

Authors:  Jennifer K Burton; Gwen Bayne; Christine Evans; Frederike Garbe; Dermot Gorman; Naomi Honhold; Duncan McCormick; Richard Othieno; Janet E Stevenson; Stefanie Swietlik; Kate E Templeton; Mette Tranter; Lorna Willocks; Bruce Guthrie
Journal:  Lancet Healthy Longev       Date:  2020-10-20

6.  Protocol for the development of a repository of individual participant data from randomised controlled trials conducted in adult care homes (the Virtual International Care Homes Trials Archive (VICHTA)).

Authors:  Lisa Irvine; Jennifer Kirsty Burton; Myzoon Ali; Terence J Quinn; Claire Goodman
Journal:  Trials       Date:  2021-02-23       Impact factor: 2.279

7.  Closing the UK care home data gap - methodological challenges and solutions.

Authors:  J K Burton; C Goodman; B Guthrie; A L Gordon; B Hanratty; T J Quinn
Journal:  Int J Popul Data Sci       Date:  2021-05-12
  7 in total

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