Literature DB >> 30826737

Impact of medical assistance in dying (MAiD) on family caregivers.

Rachel Goldberg1,2, Rinat Nissim1,2,3, Ekaterina An1, Sarah Hales4,2,3.   

Abstract

Medical assistance in dying (MAiD) is a globally polarising topic which often sparks debate surrounding the ethical and moral dilemmas that arise with a life-ending intervention. To gain a better understanding of this intervention, it is important to explore the experience of those most intimately affected by MAiD. Family caregivers of those with a terminal illness are the backbone of the healthcare and support team, often providing a substantial amount of informal care while at the same time coping with their own distress and anticipatory grief. However, we know the least about how MAiD impacts the psychosocial well-being of these same individuals. The aim of this article is to explore the experience of MAiD from the family caregiver perspective, namely their beliefs and opinions about the intervention, how the process of MAiD impacts them, how the intervention shapes their view of their loved one's quality of death, and the psychosocial outcomes after the passing of their loved one. Beyond the literature, challenges within both the clinical and research realms will be discussed and future directions will be offered. While MAiD is currently legal in only a small number of countries, a better understanding of the impact of MAiD will help inform policy and legislation as they are developed in other jurisdictions. Further, this article aims to inform future research and clinical interventions in order to better understand and support those seeking MAiD and their families. © Author(s) (or their employer(s)) 2021. No commercial re-use. See rights and permissions. Published by BMJ.

Entities:  

Keywords:  Medical Assistance in Dying (MAiD); end-of-life; family caregiver; medically-assisted death; physician-assisted suicide; voluntary euthanasia

Mesh:

Year:  2019        PMID: 30826737     DOI: 10.1136/bmjspcare-2018-001686

Source DB:  PubMed          Journal:  BMJ Support Palliat Care        ISSN: 2045-435X            Impact factor:   3.568


  4 in total

1.  How can we improve the experiences of patients and families who request medical assistance in dying? A multi-centre qualitative study.

Authors:  Simon J W Oczkowski; Diane E Crawshaw; Peggy Austin; Donald Versluis; Gaelen Kalles-Chan; Michael Kekewich; Dorothyann Curran; Paul Miller; Michaela Kelly; Ellen Wiebe; Andrea Frolic
Journal:  BMC Palliat Care       Date:  2021-12-08       Impact factor: 3.234

Review 2.  The impact of coronavirus disease 2019 on medical assistance in dying.

Authors:  Rinat S Nissim; Sarah Hales
Journal:  Curr Opin Support Palliat Care       Date:  2022-07-18       Impact factor: 2.265

3.  A Race to the End: Family Caregivers' Experience of Medical Assistance in Dying (MAiD)-a Qualitative Study.

Authors:  Tharshika Thangarasa; Sarah Hales; Eryn Tong; Ekaterina An; Debbie Selby; Elie Isenberg-Grzeda; Madeline Li; Gary Rodin; Sally Bean; Jennifer A H Bell; Rinat Nissim
Journal:  J Gen Intern Med       Date:  2021-07-21       Impact factor: 5.128

4.  Medical Assistance in Dying in patients with advanced cancer and their caregivers: a mixed methods longitudinal study protocol.

Authors:  Madeline Li; Gilla K Shapiro; Roberta Klein; Anne Barbeau; Anne Rydall; Jennifer A H Bell; Rinat Nissim; Sarah Hales; Camilla Zimmermann; Rebecca K S Wong; Gary Rodin
Journal:  BMC Palliat Care       Date:  2021-07-21       Impact factor: 3.234

  4 in total

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