Literature DB >> 30803153

Autism prevalence and outcomes in older adults.

John Elder Robison1.   

Abstract

Recent studies of mortality, illness, and suicide among autistic adults paint an alarming picture. Autistic people appear to die much earlier than the general population, and they seem to be far more vulnerable to a surprising range of medical problems. Suicide and depression seem far more common than in the general population. If correct, that suggests an older autistic population in silent crisis, with few if any supports. If so, older autistic people should be a focus for public health and human service agencies. But is the picture complete? Autism researchers ask for answers, identifying problems and their scope. This article discusses the limitations of our adult autism knowledge, and the challenges we will face studying adults. Researching and ultimately serving older autistic adults presents a unique set of problems that have not yet been addressed by scientists or clinicians. Autism Res 2019, 12: 370-374
© 2019 International Society for Autism Research, Wiley Periodicals, Inc. LAY SUMMARY: Public policy toward autistic people is driven by data. Most autism data to date have been derived from and about children, because autism tends to be identified and supported in the public school system. This has created a public perception of autism as a childhood problem. In fact, autism is a lifelong difference or disability, and recent studies suggest serious overlooked concerns for autistic adults. This commentary discusses how we have evaluated adult autism so far, limitations of our knowledge, and how we might evaluate adult needs going forward. The commentary makes a case for specific new adult prevalence and outcome studies to inform public policy. © 2019 International Society for Autism Research, Wiley Periodicals, Inc.

Entities:  

Keywords:  diagnosis; outcomes; prevalence; treatment

Mesh:

Year:  2019        PMID: 30803153     DOI: 10.1002/aur.2080

Source DB:  PubMed          Journal:  Autism Res        ISSN: 1939-3806            Impact factor:   5.216


  4 in total

1.  Lifespan service receipt and unmet needs among individuals on the autism spectrum.

Authors:  Wei Song; Mark S Salzer; Stacy L Nonnemacher; Lindsay Shea
Journal:  Adm Policy Ment Health       Date:  2022-03-23

2.  The Efficacy of Early Start Denver Model Intervention in Young Children with Autism Spectrum Disorder Within Japan: A Preliminary Study.

Authors:  Yukie Tateno; Kahoru Kumagai; Ryunosuke Monden; Kotaro Nanba; Ayumi Yano; Eri Shiraishi; Alan R Teo; Masaru Tateno
Journal:  Soa Chongsonyon Chongsin Uihak       Date:  2021-01-01

3.  Ageing and autism: A longitudinal follow-up study of mental health and quality of life in autistic adults.

Authors:  Amanda Roestorf; Patricia Howlin; Dermot M Bowler
Journal:  Front Psychol       Date:  2022-08-23

4.  #Bias: The Opportunities and Challenges of Surveys That Recruit and Collect Data of Autistic Adults Online.

Authors:  Eric Rubenstein; Sarah Furnier
Journal:  Autism Adulthood       Date:  2021-06-07
  4 in total

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