Literature DB >> 30782082

"I don't want them to know": how stigma creates dilemmas for engagement with Treat-all HIV care for people living with HIV in Eswatini.

Shona Horter1,2, Sarah Bernays3, Zanele Thabede2, Velibanti Dlamini2, Bernhard Kerschberger2, Munyaradzi Pasipamire4, Barbara Rusch5, Alison Wringe1.   

Abstract

"Treat-all" programmes aim to improve clinical outcomes and to reduce HIV transmission through regular HIV testing and immediate offer of antiretroviral therapy (ART) for those diagnosed HIV-positive, irrespective of immunological status and symptoms of disease. Global narratives on the benefits of Treat-all anticipate reduced HIV-related stigma and increased "normalisation" of HIV with Treat-all implementation, whereby HIV is remoulded as a manageable, chronic condition where stigmatising symptoms can be concealed. Drawing on Goffman's stigma work, we aimed to investigate how stigma may influence the engagement of clinically asymptomatic people living with HIV (PLHIV) with Treat-all HIV care in Shiselweni, Eswatini (formerly Swaziland). This longitudinal research comprised 106 interviews conducted from August 2016 to September 2017, including repeated interviews with 30 PLHIV, and one-off interviews with 20 healthcare workers. Data were analysed thematically using NVivo 11, drawing upon principles of grounded theory to generate findings inductively from participants' accounts. Stigma was pervasive within the narratives of PLHIV, framing their engagement with treatment and care. Many asymptomatic PLHIV were motivated to initiate ART in order to maintain a "discreditable" status, by preventing the development of visible and exposing symptoms. However, engagement with treatment and care services could itself be exposing. PLHIV described the ways in which these "invisibilising" benefits and exposing risks of ART were continually assessed and navigated over time. Where the risk of exposure was deemed too great, this could lead to intermittent treatment-taking, and disengagement from care. Addressing HIV related stigma is crucial to the success of Treat-all, and should thus be a core component of HIV responses.

Entities:  

Keywords:  Swaziland; adherence; asymptomatic; qualitative; retention; “Test and Start”

Mesh:

Substances:

Year:  2019        PMID: 30782082     DOI: 10.2989/16085906.2018.1552163

Source DB:  PubMed          Journal:  Afr J AIDS Res        ISSN: 1608-5906            Impact factor:   1.300


  13 in total

1.  The association between HIV stigma and HIV incidence in the context of universal testing and treatment: analysis of data from the HPTN 071 (PopART) trial in Zambia and South Africa.

Authors:  James R Hargreaves; Triantafyllos Pliakas; Graeme Hoddinott; Tila Mainga; Constance Mubekapi-Musadaidzwa; Deborah Donnell; Ethan Wilson; Estelle Piwowar-Manning; Yaw Agyei; Nomtha F Bell-Mandla; Rory Dunbar; Ab Schaap; David Macleod; Sian Floyd; Peter Bock; Sarah Fidler; Janet Seeley; Anne Stangl; Virginia Bond; Helen Ayles; Richard J Hayes
Journal:  J Int AIDS Soc       Date:  2022-07       Impact factor: 6.707

2.  Tracing People Living With Human Immunodeficiency Virus Who Are Lost to Follow-up at Antiretroviral Therapy Programs in Southern Africa: A Sampling-Based Cohort Study in 6 Countries.

Authors:  Marie Ballif; Benedikt Christ; Nanina Anderegg; Frédérique Chammartin; Josephine Muhairwe; Laura Jefferys; Jonas Hector; Janneke van Dijk; Michael J Vinikoor; Monique van Lettow; Cleophas Chimbetete; Sam J Phiri; Dorina Onoya; Matthew P Fox; Matthias Egger
Journal:  Clin Infect Dis       Date:  2022-01-29       Impact factor: 9.079

3.  Individual, household, and community level barriers to ART adherence among women in rural Eswatini.

Authors:  Nozipho Becker; Lorraine S Cordeiro; Krishna C Poudel; Thokozile E Sibiya; Aline G Sayer; Lindiwe N Sibeko
Journal:  PLoS One       Date:  2020-04-28       Impact factor: 3.240

4.  The Prevalence and Correlates of Suicidal Ideation, Plans and Suicide Attempts among 15- to 69-Year-Old Persons in Eswatini.

Authors:  Supa Pengpid; Karl Peltzer
Journal:  Behav Sci (Basel)       Date:  2020-11-10

5.  The Impact of Same-Day Antiretroviral Therapy Initiation Under the World Health Organization Treat-All Policy.

Authors:  Bernhard Kerschberger; Andrew Boulle; Rudo Kuwengwa; Iza Ciglenecki; Michael Schomaker
Journal:  Am J Epidemiol       Date:  2021-08-01       Impact factor: 4.897

Review 6.  Elements of Suffering in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: The Experience of Loss, Grief, Stigma, and Trauma in the Severely and Very Severely Affected.

Authors:  Patricia A Fennell; Nancy Dorr; Shane S George
Journal:  Healthcare (Basel)       Date:  2021-05-09

7.  Understanding how community antiretroviral delivery influences engagement in HIV care: a qualitative assessment of the Centralised Chronic Medication Dispensing and Distribution programme in South Africa.

Authors:  Jienchi Dorward; Lindani Msimango; Andrew Gibbs; Hlengiwe Shozi; Sarah Tonkin-Crine; Gail Hayward; Christopher C Butler; Hope Ngobese; Paul K Drain; Nigel Garrett
Journal:  BMJ Open       Date:  2020-05-15       Impact factor: 2.692

Review 8.  Understanding Engagement in HIV Programmes: How Health Services Can Adapt to Ensure No One Is Left Behind.

Authors:  Anna Grimsrud; Lynne Wilkinson; Ingrid Eshun-Wilson; Charles Holmes; Izukanji Sikazwe; Ingrid T Katz
Journal:  Curr HIV/AIDS Rep       Date:  2020-10       Impact factor: 5.071

9.  Optimizing Test and Treat in Malawi: health care worker perspectives on barriers and facilitators to ART initiation among HIV-infected clients who feel healthy.

Authors:  Kathryn Dovel; Khumbo Phiri; Misheck Mphande; Deborah Mindry; Esnart Sanudi; Mcdaphton Bellos; Risa M Hoffman
Journal:  Glob Health Action       Date:  2020       Impact factor: 2.640

10.  The Impact of Immediate Initiation of Antiretroviral Therapy on Patients' Healthcare Expenditures: A Stepped-Wedge Randomized Trial in Eswatini.

Authors:  Janina I Steinert; Shaukat Khan; Emma Mafara; Cebele Wong; Khudzie Mlambo; Anita Hettema; Fiona J Walsh; Charlotte Lejeune; Sikhathele Mazibuko; Velephi Okello; Osondu Ogbuoji; Jan-Walter De Neve; Sebastian Vollmer; Till Bärnighausen; Pascal Geldsetzer
Journal:  AIDS Behav       Date:  2021-04-08
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