Ethan T Craig1,2, Ana-Maria Orbai3,4, Sarah Mackie3,4, Susan J Bartlett3,4, Clifton O Bingham3,4, Susan Goodman3,4, Catherine Hill3,4, Robert Holt3,4, Amye Leong3,4, Chetan Karyekar3,4, Ying Ying Leung3,4, Pamela Richards3,4, Serena Halls3,4. 1. From the Johns Hopkins University School of Medicine, Baltimore, Maryland; Department of Rheumatology, Hospital for Special Surgery, Weill Cornell Medical College, New York, New York; Horizon Pharma Inc., Lake Forest; College of Pharmacy, University of Illinois, Chicago, Illinois; Healthy Motivation, Bone and Joint Decade Global Alliance for Musculoskeletal Health, Santa Barbara, California; Janssen Scientific Affairs LLC, Horsham, Pennsylvania, USA; Leeds Institute of Rheumatic and Musculoskeletal Medicine, University of Leeds; and Leeds Biomedical Research Centre, Leeds Teaching Hospitals NHS Trust, Leeds; University of Bristol; University of the West of England, Bristol, Bristol, UK; McGill University, Montreal, Quebec, Canada; Division of Medicine, The University of Adelaide, Adelaide; Rheumatology Unit, The Queen Elizabeth Hospital, Woodville, Australia; Singapore General Hospital, Duke-National University of Singapore (NUS) Medical School, Singapore. ethan.craig@uphs.upenn.edu. 2. E.T. Craig, MD, MHS, Johns Hopkins University School of Medicine; A.M. Orbai, MD, MHS, Johns Hopkins University School of Medicine; S. Mackie, PhD, Leeds Institute of Rheumatic and Musculoskeletal Medicine, University of Leeds, and Leeds Biomedical Research Centre, Leeds Teaching Hospitals NHS Trust; S.J. Bartlett, PhD, McGill University, and Johns Hopkins University School of Medicine; C.O. Bingham III, MD, Johns Hopkins University School of Medicine; S. Goodman, MD, Department of Rheumatology, Hospital for Special Surgery, Weill Cornell Medical College; C. Hill, MBBS, MD, MSc, FRACP, Division of Medicine, The University of Adelaide, and Rheumatology Unit, The Queen Elizabeth Hospital; R. Holt, PharmD, MBA, Horizon Pharma Inc., and Adjunct Professor, College of Pharmacy, University of Illinois; A. Leong, MBA, Healthy Motivation, Bone and Joint Decade Global Alliance for Musculoskeletal Health; C. Karyekar, MD, PhD, Janssen Scientific Affairs LLC; Y.Y. Leung, MD, MB ChB, MRCP, FHKAM, FAMS, Singapore General Hospital, Duke-NUS Medical School; P. Richards, Patient Research Partner, University of Bristol; S. Halls, PhD, University of the West of England. Dr. Craig and Dr. Orbai are co-first authors. ethan.craig@uphs.upenn.edu. 3. From the Johns Hopkins University School of Medicine, Baltimore, Maryland; Department of Rheumatology, Hospital for Special Surgery, Weill Cornell Medical College, New York, New York; Horizon Pharma Inc., Lake Forest; College of Pharmacy, University of Illinois, Chicago, Illinois; Healthy Motivation, Bone and Joint Decade Global Alliance for Musculoskeletal Health, Santa Barbara, California; Janssen Scientific Affairs LLC, Horsham, Pennsylvania, USA; Leeds Institute of Rheumatic and Musculoskeletal Medicine, University of Leeds; and Leeds Biomedical Research Centre, Leeds Teaching Hospitals NHS Trust, Leeds; University of Bristol; University of the West of England, Bristol, Bristol, UK; McGill University, Montreal, Quebec, Canada; Division of Medicine, The University of Adelaide, Adelaide; Rheumatology Unit, The Queen Elizabeth Hospital, Woodville, Australia; Singapore General Hospital, Duke-National University of Singapore (NUS) Medical School, Singapore. 4. E.T. Craig, MD, MHS, Johns Hopkins University School of Medicine; A.M. Orbai, MD, MHS, Johns Hopkins University School of Medicine; S. Mackie, PhD, Leeds Institute of Rheumatic and Musculoskeletal Medicine, University of Leeds, and Leeds Biomedical Research Centre, Leeds Teaching Hospitals NHS Trust; S.J. Bartlett, PhD, McGill University, and Johns Hopkins University School of Medicine; C.O. Bingham III, MD, Johns Hopkins University School of Medicine; S. Goodman, MD, Department of Rheumatology, Hospital for Special Surgery, Weill Cornell Medical College; C. Hill, MBBS, MD, MSc, FRACP, Division of Medicine, The University of Adelaide, and Rheumatology Unit, The Queen Elizabeth Hospital; R. Holt, PharmD, MBA, Horizon Pharma Inc., and Adjunct Professor, College of Pharmacy, University of Illinois; A. Leong, MBA, Healthy Motivation, Bone and Joint Decade Global Alliance for Musculoskeletal Health; C. Karyekar, MD, PhD, Janssen Scientific Affairs LLC; Y.Y. Leung, MD, MB ChB, MRCP, FHKAM, FAMS, Singapore General Hospital, Duke-NUS Medical School; P. Richards, Patient Research Partner, University of Bristol; S. Halls, PhD, University of the West of England. Dr. Craig and Dr. Orbai are co-first authors.
Abstract
OBJECTIVE: To improve measurement of stiffness in rheumatic disease. METHODS: Data presented included (1) 2 qualitative projects, (2) the rheumatoid arthritis (RA) stiffness patient-reported outcome measure (RAST), and (3) 3 items assessing stiffness severity, duration, and interference. RESULTS: Stiffness is multidimensional and includes aspects of stiffness experience such as duration, severity, and effect. Stiffness items showed construct validity in RA. Further efforts are required to develop an instrument that will be taken through the Outcome Measures in Rheumatology (OMERACT) Filter 2.1 for instrument selection. CONCLUSION: The research agenda for the group includes domain content voting for individual diseases, and development of stiffness item banks and disease-specific short forms.
OBJECTIVE: To improve measurement of stiffness in rheumatic disease. METHODS: Data presented included (1) 2 qualitative projects, (2) the rheumatoid arthritis (RA) stiffness patient-reported outcome measure (RAST), and (3) 3 items assessing stiffness severity, duration, and interference. RESULTS: Stiffness is multidimensional and includes aspects of stiffness experience such as duration, severity, and effect. Stiffness items showed construct validity in RA. Further efforts are required to develop an instrument that will be taken through the Outcome Measures in Rheumatology (OMERACT) Filter 2.1 for instrument selection. CONCLUSION: The research agenda for the group includes domain content voting for individual diseases, and development of stiffness item banks and disease-specific short forms.
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Authors: F C Arnett; S M Edworthy; D A Bloch; D J McShane; J F Fries; N S Cooper; L A Healey; S R Kaplan; M H Liang; H S Luthra Journal: Arthritis Rheum Date: 1988-03
Authors: Maarten Boers; John R Kirwan; George Wells; Dorcas Beaton; Laure Gossec; Maria-Antonietta d'Agostino; Philip G Conaghan; Clifton O Bingham; Peter Brooks; Robert Landewé; Lyn March; Lee S Simon; Jasvinder A Singh; Vibeke Strand; Peter Tugwell Journal: J Clin Epidemiol Date: 2014-02-28 Impact factor: 6.437
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Authors: Sarah L Mackie; Helen Twohig; Lorna M Neill; Eileen Harrison; Beverley Shea; Rachel J Black; Tanaz A Kermani; Peter A Merkel; Christian D Mallen; Frank Buttgereit; Chetan Mukhtyar; Lee S Simon; Catherine L Hill Journal: J Rheumatol Date: 2017-08-01 Impact factor: 4.666