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Literature DB >> 30765486

The European Alpha-1 Research Collaboration (EARCO): a new ERS Clinical Research Collaboration to promote research in alpha-1 antitrypsin deficiency.

Marc Miravitlles¹, Joanna Chorostowska-Wynimko², Ilaria Ferrarotti³, Noel G McElvaney⁴, Karen O'Hara^5,6, Jan Stolk⁷, Robert A Stockley⁸, Alice Turner⁹, Marion Wilkens^6,10, Timm Greulich¹¹.

Abstract

Entities: Gene

Year: 2019 PMID： 30765486 DOI： 10.1183/13993003.00138-2019

Source DB: PubMed Journal: Eur Respir J ISSN： 0903-1936 Impact factor: 16.671

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7 in total

1. IMpact of COVID-19 in Patients With Severe Alpha-1 Antitrypsin Deficiency: The IMCA1 Study of the EARCO Clinical Research Collaboration.

Authors: David G Parr; Joanna Chorostowska-Wynimko; Angelo Corsico; Cristina Esquinas; Gerard N McElvaney; Annelot D Sark; Maria Sucena; Hanan Tanash; Alice M Turner; Marc Miravitlles
Journal: Arch Bronconeumol Date: 2022-07-11 Impact factor: 6.333

Review 2. Clinical considerations in individuals with α₁-antitrypsin PI*SZ genotype.

Authors: Gerard N McElvaney; Robert A Sandhaus; Marc Miravitlles; Gerard M Turino; Niels Seersholm; Marion Wencker; Robert A Stockley
Journal: Eur Respir J Date: 2020-06-18 Impact factor: 16.671

3. Relationship of CT densitometry to lung physiological parameters and health status in alpha-1 antitrypsin deficiency: initial report of a centralised database of the NIHR rare diseases translational research collaborative.

Authors: Diana Crossley; James Stockley; Charlotte E Bolton; Nicholas S Hopkinson; Ravi Mahadeva; Michael Steiner; Tom Wilkinson; John R Hurst; Bibek Gooptu; Robert A Stockley
Journal: BMJ Open Date: 2020-06-30 Impact factor: 2.692

Review 4. New Patient-Centric Approaches to the Management of Alpha-1 Antitrypsin Deficiency.

Authors: Joanna Chorostowska-Wynimko; Miriam Barrecheguren; Ilaria Ferrarotti; Timm Greulich; Robert A Sandhaus; Michael Campos
Journal: Int J Chron Obstruct Pulmon Dis Date: 2020-02-12

5. Opinions and Attitudes of Pulmonologists About Augmentation Therapy in Patients with Alpha-1 Antitrypsin Deficiency. A Survey of the EARCO Group.

Authors: Timm Greulich; Anna Albert; Werner Cassel; Tobias Boeselt; Erika Peychev; Andreas Klemmer; Francini Ferreira; Christian Clarenbach; Maria L Torres-Duran; Alice M Turner; Marc Miravitlles
Journal: Int J Chron Obstruct Pulmon Dis Date: 2022-01-05

6. Demographic and clinical characteristics of patients with α₁-antitrypsin deficiency genotypes PIZZ and PISZ in the Spanish registry of EARCO.

Authors: María Torres-Durán; José Luis López-Campos; Juan Luis Rodríguez-Hermosa; Cristina Esquinas; Cristina Martínez-González; José María Hernández-Pérez; Carlota Rodríguez; Ana Bustamante; Francisco Casas-Maldonado; Miriam Barrecheguren; Cruz González; Marc Miravitlles
Journal: ERJ Open Res Date: 2022-09-26

7. Protocol for the EARCO Registry: a pan-European observational study in patients with α₁-antitrypsin deficiency.

Authors: Timm Greulich; Alan Altraja; Miriam Barrecheguren; Robert Bals; Jan Chlumsky; Joanna Chorostowska-Wynimko; Christian Clarenbach; Luciano Corda; Angelo Guido Corsico; Ilaria Ferrarotti; Cristina Esquinas; Caroline Gouder; Ana Hećimović; Aleksandra Ilic; Yavor Ivanov; Sabina Janciauskiene; Wim Janssens; Malcolm Kohler; Alvils Krams; Beatriz Lara; Ravi Mahadeva; Gerry McElvaney; Jean-François Mornex; Karen O'Hara; David Parr; Eava Piitulainen; Karin Schmid-Scherzer; Niels Seersholm; Robert A Stockley; Jan Stolk; Maria Sucena; Hanan Tanash; Alice Turner; Ruxandra Ulmeanu; Marion Wilkens; Arzu Yorgancioğlu; Ana Zaharie; Marc Miravitlles
Journal: ERJ Open Res Date: 2020-03-02