Literature DB >> 30734330

Informal caregivers' well-being and care recipients' quality of life and community reintegration - findings from a stroke survivor sample.

Emmanuel Chiebuka Okoye1, Sandra Chioma Okoro1, Christopher Olusanjo Akosile1, Ifeoma Uchenna Onwuakagba1, Ebere Yvonne Ihegihu2, Chima Collins Ihegihu3.   

Abstract

BACKGROUND: Stroke is highly debilitating and requires long-term care. Informal caregivers of stroke survivors play important roles in stroke rehabilitation. Caring for stroke survivors can negatively affect the caregivers' well-being and may adversely impact on their caregiving quality and subsequently on stroke survivors' well-being. There seems to be a dearth of research on the relationships between caregivers' and stroke survivors' well-being. AIMS AND
OBJECTIVES: This study was designed to determine the relationships among informal caregivers' burden and quality of life (QOL) and stroke survivors' QOL and community reintegration.
METHODS: This ethically certified cross-sectional survey involved 82 stroke survivors (mean age = 60.48 ± 11.13 years) and their 82 primary caregivers (mean age = 36.13 ± 13.69 years) consecutively recruited from seven conveniently sampled tertiary hospitals in Nigeria. Caregivers Strain Index, Igbo-culture adapted Maleka Stroke Community Reintegration Measure and Short-Form 36-item Health Survey questionnaires were used to assess the caregivers' burden, survivors' community reintegration and QOL (of survivors and caregivers), respectively. Data were analysed using descriptive statistics, Spearman rank, Mann-Whitney U and Kruskal-Wallis tests at alpha level of 0.05.
RESULTS: The mean stroke survivors' community reintegration and QOL were 34.05 ± 21.54% and 34.93 ± 16 ± 49%, respectively. The mean caregivers' QOL and burden scores were 74.49 ± 12.61% and 9.13 ± 3.18, respectively. About 80.5% of the caregivers experienced significant burden. Stroke survivors' QOL and community reintegration, and caregivers' QOL and burden significantly correlated with one another (p < 0.05). Poststroke duration, survivor-caregiver cohabitation duration, survivors' community-dwelling duration and daily care-giving hours significantly correlated with each of stroke survivors' community reintegration and QOL, and caregivers' burden and QOL (p < 0.05).
CONCLUSIONS: Stroke survivors' community reintegration and QOL were poor while caregivers' had moderate QOL and high prevalence of significant burden. Significant correlations exist between caregivers' well-being and stroke survivors' QOL and community reintegration. Interventions targeted at reducing caregivers' burden may help improve both caregivers and survivors' well-being.
© 2019 Nordic College of Caring Science.

Entities:  

Keywords:  burden; community reintegration; health; informal caregivers; poststroke; quality of life; strain; stroke; survivors; well-being

Mesh:

Year:  2019        PMID: 30734330     DOI: 10.1111/scs.12657

Source DB:  PubMed          Journal:  Scand J Caring Sci        ISSN: 0283-9318


  5 in total

Review 1.  A scoping review on studies about the quality of life of informal caregivers of stroke survivors.

Authors:  Ana Moura; Filipa Teixeira; Mariana Amorim; Ana Henriques; Conceição Nogueira; Elisabete Alves
Journal:  Qual Life Res       Date:  2021-09-13       Impact factor: 4.147

2.  Health-Related Quality of Life and Related Factors among Primary Caregivers of Children with Disabilities in Shanghai, China: A Cross-Sectional Study.

Authors:  Cong Xia; Mei Sun; Xinying Li; Chenhao Lu; Xiu Gao; Jun Lu; Gang Chen
Journal:  Int J Environ Res Public Health       Date:  2020-12-12       Impact factor: 3.390

3.  Perceived Caregiver Strain, 3- and 18-Month Poststroke, in a Cohort of Caregivers from the Life after Stroke Trial (LAST).

Authors:  Birgitta Langhammer; Hege Ihle Hansen; Bent Indredavik; Torunn Askim
Journal:  Nurs Res Pract       Date:  2022-03-31

4.  Social Support, General Self-Efficacy, Fear of Falling, and Physical Activity Among Older Adults in a Middle-Income Country.

Authors:  Emmanuel C Okoye; Ifeoma U Onwuakagba; Cynthia C Akile; Uchenna P Okonkwo; Christopher O Akosile; Ukamaka G Mgbeojedo; Taiwo J Oyewumi; Oluwaseun S Kubeyinje
Journal:  Gerontol Geriatr Med       Date:  2022-04-23

5.  Perceptions of recovery and rehabilitation in people with brain injury in Spain. A qualitative study.

Authors:  Sagrario Pérez-de la Cruz
Journal:  Health Expect       Date:  2022-03-14       Impact factor: 3.318

  5 in total

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