Literature DB >> 30719789

Identifying support needs to improve rural dementia services for people with dementia and their carers: A consultation study in Victoria, Australia.

Michael Bauer1, Deirdre Fetherstonhaugh1, Irene Blackberry1, Jane Farmer2, Clare Wilding1.   

Abstract

OBJECTIVE: The support and service needs of people with dementia and their carers are not always addressed in rural regions, yet family carers play an important role in supporting the person living with dementia to remain living in their own home. This study sought to identify and prioritise service and support needs of people with dementia and carers.
DESIGN: A two-phase mixed methods study involving qualitative focus groups and a survey.
SETTING: A rural region in Victoria, Australia. PARTICIPANTS: People living with dementia, carers and health professionals.
RESULTS: Focus groups identified 12 areas of need. A follow-up survey reached consensus on the priority areas for service improvement. These included diagnosis and information access, dementia training, community understanding and carer support.
CONCLUSION: Living in a rural region imposes significant challenges on people with dementia and carers. We need to find ways to address gaps in service provision for carers and people with dementia in rural settings and examine their applicability in other rural regions more broadly.
© 2019 National Rural Health Alliance Ltd.

Entities:  

Keywords:  carers; dementia; focus groups; rural health service delivery; support; survey

Mesh:

Year:  2019        PMID: 30719789     DOI: 10.1111/ajr.12444

Source DB:  PubMed          Journal:  Aust J Rural Health        ISSN: 1038-5282            Impact factor:   1.662


  10 in total

1.  Web-Based Technologies to Support Carers of People Living With Dementia: Protocol for a Mixed Methods Stepped-Wedge Cluster Randomized Controlled Trial.

Authors:  Clare Wilding; Debra Morgan; Jennene Greenhill; David Perkins; Megan E O'Connell; Michael Bauer; Jane Farmer; Catherine Morley; Irene Blackberry
Journal:  JMIR Res Protoc       Date:  2022-05-19

2.  Rural Caregivers: Identification of Informational Needs Through Telemedicine Questions.

Authors:  Shoshana H Bardach; Allison Gibson; Kelly Parsons; April Stauffer; Gregory A Jicha
Journal:  J Rural Health       Date:  2020-05-01       Impact factor: 4.333

3.  Transcultural adaptation and psychometric properties of Family Quality of Life Survey for caregivers of people with neurodegenerative disease: a study of Spanish families who live in the rural Spain-Portugal cross-border.

Authors:  Marta Badia; M Begoña Orgaz; Isabel Vicario-Molina; Eva González-Ortega; María Gómez-Vela; Alba Aza; M Antonia Martín-Delgado
Journal:  Health Qual Life Outcomes       Date:  2021-06-30       Impact factor: 3.186

4.  Association between Living with Patients with Dementia and Family Caregivers' Depressive Symptoms-Living with Dementia Patients and Family Caregivers' Depressive Symptoms.

Authors:  Minah Park; Fatima Nari; Soo Hyun Kang; Sung-In Jang; Eun-Cheol Park
Journal:  Int J Environ Res Public Health       Date:  2021-04-20       Impact factor: 3.390

5.  "Nobody Seems to Know Where to Even Turn To": Barriers in Accessing and Utilising Dementia Care Services in England and The Netherlands.

Authors:  Clarissa Giebel; Sarah Robertson; Audrey Beaulen; Sandra Zwakhalen; Dawn Allen; Hilde Verbeek
Journal:  Int J Environ Res Public Health       Date:  2021-11-22       Impact factor: 3.390

6.  Volunteers' Support of Carers of Rural People Living with Dementia to Use a Custom-Built Application.

Authors:  Clare Wilding; Hilary Davis; Tshepo Rasekaba; Mohammad Hamiduzzaman; Kayla Royals; Jennene Greenhill; Megan E O'Connell; David Perkins; Michael Bauer; Debra Morgan; Irene Blackberry
Journal:  Int J Environ Res Public Health       Date:  2021-09-20       Impact factor: 3.390

7.  Listening to families with a person with neurodegenerative disease talk about their quality of life: integrating quantitative and qualitative approaches.

Authors:  Alba Aza; María Gómez-Vela; Marta Badia; M Begoña Orgaz; Eva González-Ortega; Isabel Vicario-Molina; Estrella Montes-López
Journal:  Health Qual Life Outcomes       Date:  2022-05-07       Impact factor: 3.077

8.  Carer burden and psychological distress in young-onset dementia: An Australian perspective.

Authors:  Matthew Kang; Sarah Farrand; Mark Walterfang; Dennis Velakoulis; Samantha M Loi; Andrew Evans
Journal:  Int J Geriatr Psychiatry       Date:  2022-06-07       Impact factor: 3.850

9.  "Current dementia care: what are the difficulties and how can we advance care globally?"

Authors:  Clarissa Giebel
Journal:  BMC Health Serv Res       Date:  2020-05-13       Impact factor: 2.655

10.  Socio-economic predictors of time to care home admission in people living with dementia in Wales: A routine data linkage study.

Authors:  Clarissa Giebel; Joe Hollinghurst; Ashley Akbari; Christian Schnier; Tim Wilkinson; Laura North; Mark Gabbay; Sarah Rodgers
Journal:  Int J Geriatr Psychiatry       Date:  2020-10-19       Impact factor: 3.850

  10 in total

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