Literature DB >> 30705168

Shadow health records meet new data privacy laws.

W Nicholson Price1,2, Margot E Kaminski3,4, Timo Minssen2,5, Kayte Spector-Bagdady6,7.   

Abstract

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Year:  2019        PMID： 30705168      PMCID： PMC6417878          DOI： 10.1126/science.aav5133

Source DB:  PubMed          Journal:  Science        ISSN： 0036-8075            Impact factor:   63.714


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  5 in total

1.  HIPAA and Protecting Health Information in the 21st Century.

Authors:  I Glenn Cohen; Michelle M Mello
Journal:  JAMA       Date:  2018-07-17       Impact factor: 56.272

2.  Health Data and Privacy in the Digital Era.

Authors:  Lawrence O Gostin; Sam F Halabi; Kumanan Wilson
Journal:  JAMA       Date:  2018-07-17       Impact factor: 56.272

3.  Scrutinizing the EU General Data Protection Regulation.

Authors:  Luca Marelli; Giuseppe Testa
Journal:  Science       Date:  2018-05-04       Impact factor: 47.728

4.  Reg-ent within the Learning Health System.

Authors:  Kayte Spector-Bagdady; Andrew G Shuman
Journal:  Otolaryngol Head Neck Surg       Date:  2018-03       Impact factor: 3.497
  5 in total
  6 in total

1.  Rethinking the Importance of the Individual within a Community of Data.

Authors:  Kayte Spector-Bagdady; Jonathan Beever
Journal:  Hastings Cent Rep       Date:  2020-07-07       Impact factor: 2.683

2.  "My Research Is Their Business, but I'm Not Their Business": Patient and Clinician Perspectives on Commercialization of Precision Oncology Data.

Authors:  Kayte Spector-Bagdady; Chris D Krenz; Collin Brummel; J Chad Brenner; Carol R Bradford; Andrew G Shuman
Journal:  Oncologist       Date:  2020-03-13       Impact factor: 5.837

3.  Data Sharing Under the General Data Protection Regulation: Time to Harmonize Law and Research Ethics?

Authors:  Antonia Vlahou; Dara Hallinan; Rolf Apweiler; Angel Argiles; Joachim Beige; Ariela Benigni; Rainer Bischoff; Peter C Black; Franziska Boehm; Jocelyn Céraline; George P Chrousos; Christian Delles; Pieter Evenepoel; Ivo Fridolin; Griet Glorieux; Alain J van Gool; Isabel Heidegger; John P A Ioannidis; Joachim Jankowski; Vera Jankowski; Carmen Jeronimo; Ashish M Kamat; Rosalinde Masereeuw; Gert Mayer; Harald Mischak; Alberto Ortiz; Giuseppe Remuzzi; Peter Rossing; Joost P Schanstra; Bernd J Schmitz-Dräger; Goce Spasovski; Jan A Staessen; Dimitrios Stamatialis; Peter Stenvinkel; Christoph Wanner; Stephen B Williams; Faiez Zannad; Carmine Zoccali; Raymond Vanholder
Journal:  Hypertension       Date:  2021-02-15       Impact factor: 10.190

4.  Addressing Online Health Privacy Risks for Older Adults: A Perspective on Ethical Considerations and Recommendations.

Authors:  Ari B Friedman; Chris Pathmanabhan; Allen Glicksman; George Demiris; Anne R Cappola; Matthew S McCoy
Journal:  Gerontol Geriatr Med       Date:  2022-04-21

Review 5.  Bringing machine learning to research on intellectual and developmental disabilities: taking inspiration from neurological diseases.

Authors:  Chirag Gupta; Pramod Chandrashekar; Ting Jin; Chenfeng He; Saniya Khullar; Qiang Chang; Daifeng Wang
Journal:  J Neurodev Disord       Date:  2022-05-02       Impact factor: 4.074

6.  Navigating ethical quandaries with the privacy dilemma of biomedical datasets.

Authors:  Gamze Gürsoy; Megan Doerr; John Wilbanks; Jennifer K Wagner; Haixu Tang; Steven E Brenner
Journal:  Pac Symp Biocomput       Date:  2020
  6 in total

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