Literature DB >> 30705081

Parallel planning and the paediatric critical care patient.

Peter Sidgwick1, James Fraser2, Peter-Marc Fortune3, Renee McCulloch4.   

Abstract

A growing number of children with life-limiting conditions (LLCs) are being cared for in paediatric critical care (PCC) settings. Children with LLCs admitted to PCC are at a high risk of developing complications and many die after prolonged admissions. Relatively few of these patients and their parents or carers have had documented discussions about their wishes for care in the event of a serious clinical deterioration before admission to PCC. There is a need for improved understanding of (1) how parents arrive at decisions regarding what is best for their child at times of critical illness and (2) the role of parallel planning and advance care plans in that process. This review examines the complexities of decision-making in children with LLCs who are admitted to PCC settings. © Author(s) (or their employer(s)) 2019. No commercial re-use. See rights and permissions. Published by BMJ.

Entities:  

Keywords:  intensive care; multidisciplinary team-care; palliative care

Mesh:

Year:  2019        PMID: 30705081     DOI: 10.1136/archdischild-2018-315222

Source DB:  PubMed          Journal:  Arch Dis Child        ISSN: 0003-9888            Impact factor:   3.791


  9 in total

1.  "I wanna live and not think about the future" what place for advance care planning for people living with severe multiple sclerosis and their families? A qualitative study.

Authors:  Jonathan Koffman; Clarissa Penfold; Laura Cottrell; Bobbie Farsides; Catherine J Evans; Rachel Burman; Richard Nicholas; Stephen Ashford; Eli Silber
Journal:  PLoS One       Date:  2022-05-26       Impact factor: 3.752

2.  Conceptualising paediatric advance care planning: a qualitative phenomenological study of paediatricians caring for children with life-limiting conditions in Australia.

Authors:  Sidharth Vemuri; Jenny Hynson; Katrina Williams; Lynn Gillam
Journal:  BMJ Open       Date:  2022-05-16       Impact factor: 3.006

Review 3.  A systematic concept analysis of 'technology dependent': challenging the terminology.

Authors:  Maria Brenner; Denise Alexander; Mary Brigid Quirke; Jessica Eustace-Cook; Piet Leroy; Jay Berry; Martina Healy; Carmel Doyle; Kate Masterson
Journal:  Eur J Pediatr       Date:  2020-07-24       Impact factor: 3.183

Review 4.  Neonatal and perinatal palliative care pathway: a tertiary neonatal unit approach.

Authors:  Abena N Akyempon; Narendra Aladangady
Journal:  BMJ Paediatr Open       Date:  2021-02-01

5.  Factors associated with health professionals decision to initiate paediatric advance care planning: A systematic integrative review.

Authors:  Karen Carr; Felicity Hasson; Sonja McIlfatrick; Julia Downing
Journal:  Palliat Med       Date:  2020-12-29       Impact factor: 4.762

6.  Parents' experiences of initiation of paediatric advance care planning discussions: a qualitative study.

Authors:  Karen Carr; Felicity Hasson; Sonja McIlfatrick; Julia Downing
Journal:  Eur J Pediatr       Date:  2021-11-16       Impact factor: 3.860

7.  Family-Centered Advance Care Planning: What Matters Most for Parents of Children with Rare Diseases.

Authors:  Karen Fratantoni; Jessica Livingston; Sandra E Schellinger; Samar M Aoun; Maureen E Lyon
Journal:  Children (Basel)       Date:  2022-03-21

8.  Initiation of paediatric advance care planning: Cross-sectional survey of health professionals reported behaviour.

Authors:  Karen Carr; Felicity Hasson; Sonja McIlfatrick; Julia Downing
Journal:  Child Care Health Dev       Date:  2022-01-19       Impact factor: 2.943

9.  Palliative care for children with complex cardiac conditions: survey results.

Authors:  Sidharth Vemuri; Ashleigh E Butler; Katherine Brown; Jo Wray; Myra Bluebond-Langner
Journal:  Arch Dis Child       Date:  2021-07-26       Impact factor: 3.791

  9 in total

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