Chie Fukui1, Mahiro Fujisaki-Sueda-Sakai2,3, Nobutada Yokouchi4, Yuka Sumikawa2, Fumika Horinuki5, Ayako Baba6, Makoto Suto7, Hiroko Okada8, Ryogo Ogino3, Hyosook Park9,3, Junichiro Okata10,3. 1. Division of Health Sciences and Nursing, Department of Family Nursing, Graduate School of Medicine, University of Tokyo, 7-3-1, Hongo, Bunkyo-ku, Tokyo, 113-0033, Japan. chi-f422@umin.ac.jp. 2. Division of Health Sciences and Nursing, Department of Community Health Nursing, Graduate School of Medicine, University of Tokyo, 7-3-1, Hongo, Bunkyo-ku, Tokyo, 113-0033, Japan. 3. Institute of Gerontology, University of Tokyo, 7-3-1, Hongo, Bunkyo-ku, Tokyo, 113-0033, Japan. 4. Division of Health Sciences and Nursing, Departments of Health and Social Behaviour, Graduate School of Medicine, University of Tokyo, 7-3-1, Hongo, Bunkyo-ku, Tokyo, 113-0033, Japan. 5. Division of Health Sciences and Nursing, Department of Gerontological Home Care and Long-Term Care Nursing/Palliative Care Nursing, Graduate School of Medicine, University of Tokyo, 7-3-1, Hongo, Bunkyo-ku, Tokyo, 113-0033, Japan. 6. Division of Clinical Psychology, Developmental Sciences, Department of Integrated Educational Sciences, Graduate School of Education, University of Tokyo, 7-3-1, Hongo, Bunkyo-ku, Tokyo, 113-0033, Japan. 7. Division of Lifelong Learning Infrastructure Management Course, Social Sciences in Education, Department of Integrated Educational Sciences, Graduate School of Education, University of Tokyo, 7-3-1, Hongo, Bunkyo-ku, Tokyo, 113-0033, Japan. 8. Division of Health Sciences and Nursing, Department of Health Communication, Graduate School of Medicine, University of Tokyo, 7-3-1, Hongo, Bunkyo-ku, Tokyo, 113-0033, Japan. 9. Department of Labour Law, Graduate School of Law and Politics, University of Tokyo, 7-3-1, Hongo, Bunkyo-ku, Tokyo, 113-0033, Japan. 10. Department of Urban Engineering, Graduate School of Engineering, University of Tokyo, 7-3-1, Hongo, Bunkyo-ku, Tokyo, 113-0033, Japan.
Abstract
BACKGROUND AND AIMS: Several studies have shown the effectiveness and diversity of dementia cafés, whereas there are few published articles in academic research focusing on what persons with dementia and their family caregivers need and whether the services provided satisfy their needs. This study aimed to identify the needs of persons with dementia and their family caregivers participating in dementia cafés in Japan. METHODS: Interviews and participant observations were conducted in nine dementia cafés. Study participants were persons with dementia, their caregivers, and the staff in dementia cafés. Data were analysed using qualitative content analysis. RESULTS AND DISCUSSION: A total of 24 participants were recruited. Needs for persons with dementia were subdivided into five categories: to express their feelings about their current condition; to be accommodated through consideration of their physical and cognitive status; for changes in their health conditions to be noticed; to enjoy entertainment; and to keep in touch with others inside and outside of the dementia café. Needs for family caregivers were subdivided into four subcategories: to express their feelings such as anxiety and guilt and complaints regarding caregiving; to consult about difficulties in daily life; to listen to other family caregivers' experiences; and to keep in touch with others inside and outside of the dementia café. The needs of persons with dementia and family caregivers differ partly. CONCLUSIONS: Dementia cafés should create programmes and comfortable environments answering to the differences of their needs.
BACKGROUND AND AIMS: Several studies have shown the effectiveness and diversity of dementia cafés, whereas there are few published articles in academic research focusing on what persons with dementia and their family caregivers need and whether the services provided satisfy their needs. This study aimed to identify the needs of persons with dementia and their family caregivers participating in dementia cafés in Japan. METHODS: Interviews and participant observations were conducted in nine dementia cafés. Study participants were persons with dementia, their caregivers, and the staff in dementia cafés. Data were analysed using qualitative content analysis. RESULTS AND DISCUSSION: A total of 24 participants were recruited. Needs for persons with dementia were subdivided into five categories: to express their feelings about their current condition; to be accommodated through consideration of their physical and cognitive status; for changes in their health conditions to be noticed; to enjoy entertainment; and to keep in touch with others inside and outside of the dementia café. Needs for family caregivers were subdivided into four subcategories: to express their feelings such as anxiety and guilt and complaints regarding caregiving; to consult about difficulties in daily life; to listen to other family caregivers' experiences; and to keep in touch with others inside and outside of the dementia café. The needs of persons with dementia and family caregivers differ partly. CONCLUSIONS:Dementia cafés should create programmes and comfortable environments answering to the differences of their needs.
Authors: Yujiro Kuroda; Taiki Sugimoto; Kenichi Satoh; Claudia K Suemoto; Nanae Matsumoto; Kazuaki Uchida; Yoshinobu Kishino; Takashi Sakurai Journal: Int J Environ Res Public Health Date: 2022-08-15 Impact factor: 4.614
Authors: Chern Yi Marybeth Chang; Waqaar Baber; Tom Dening; Jennifer Yates Journal: Int J Environ Res Public Health Date: 2021-06-11 Impact factor: 3.390