Carmen G Loiselle1. 1. Department of Oncology and Ingram School of Nursing, McGill University, Canada; Segal Cancer Centre, Jewish General Hospital, 3755 Côte Sainte-Catherine Rd, Pav. E-748, Montreal, QC, H3T 1E2, Canada. Electronic address: carmen.g.loiselle@mcgill.ca.
Abstract
OBJECTIVE: True person-centered care (PCC) involves anticipating, responding to, and integrating patients' needs and preferences as the illness experience unfolds. PCC success rests, in part, on quality provider-patient communication and tailored information exchange. These processes can have profound effects on the patient experience, self-management and health outcomes including survival. Cancer information-seeking preferences (CISP) by patients are increasingly found to modulate illness and care processes. However, research has yet to document the CISP types and prevalence as well as their associations with satisfaction with care. METHOD: Individuals (N = 2142) treated for cancer in the last 6 months completed the Ambulatory Oncology Patient Satisfaction Survey (AOPSS) and a CISP measure. RESULTS: Whereas 60.3% (n = 1292) reported wanting to actively seek information about their cancer, a surprisingly high percentage (i.e., 39.7%; n = 850) did not. Men reported avoiding cancer information to a greater extent than women, χ² (4, N = 2108) = 12.00, p = 0.02. CISP were also differentially associated with 6 key domains of satisfaction, with intense seekers consistently being less satisfied. CONCLUSION AND PRACTICE IMPLICATIONS: These findings underscore how CISP can significantly affect patients' cancer experience as well as their care satisfaction.
OBJECTIVE: True person-centered care (PCC) involves anticipating, responding to, and integrating patients' needs and preferences as the illness experience unfolds. PCC success rests, in part, on quality provider-patient communication and tailored information exchange. These processes can have profound effects on the patient experience, self-management and health outcomes including survival. Cancer information-seeking preferences (CISP) by patients are increasingly found to modulate illness and care processes. However, research has yet to document the CISP types and prevalence as well as their associations with satisfaction with care. METHOD: Individuals (N = 2142) treated for cancer in the last 6 months completed the Ambulatory Oncology Patient Satisfaction Survey (AOPSS) and a CISP measure. RESULTS: Whereas 60.3% (n = 1292) reported wanting to actively seek information about their cancer, a surprisingly high percentage (i.e., 39.7%; n = 850) did not. Men reported avoiding cancer information to a greater extent than women, χ² (4, N = 2108) = 12.00, p = 0.02. CISP were also differentially associated with 6 key domains of satisfaction, with intense seekers consistently being less satisfied. CONCLUSION AND PRACTICE IMPLICATIONS: These findings underscore how CISP can significantly affect patients' cancer experience as well as their care satisfaction.
Keywords:
Cancer information-seeking preferences; Information avoidance; Patient needs; Patients as partners; Person-centered care; Personalized cancer care; Satisfaction with cancer care