| Literature DB >> 30682864 |
Joan Cahill1, Raul Portales2, Sean McLoughin3, Nithia Nagan4, Braden Henrichs5, Sean Wetherall6.
Abstract
This paper presents the results of three interrelated studies concerning the specification and implementation of ambient assisted living (AAL)/Internet of Things (IoT)/sensor-based infrastructures, to support resident wellness and person-centered care delivery, in a residential care context. Overall, the paper reports on the emerging wellness management concept and IoT solution. The three studies adopt a stakeholder evaluation approach to requirements elicitation and solution design. Human factors research combines several qualitative human⁻machine interaction (HMI) design frameworks/methods, including realist ethnography, process mapping, persona-based design, and participatory design. Software development activities are underpinned by SCRUM/AGILE frameworks. Three structuring principles underpin the resident's lived experience and the proposed 'sensing' framework. This includes (1) resident wellness, (2) the resident's environment (i.e., room and broader social spaces which constitute 'home' for the resident), and (3) care delivery. The promotion of resident wellness, autonomy, quality of life and social participation depends on adequate monitoring and evaluation of information pertaining to (1), (2) and (3). Furthermore, the application of ambient assisted living technology in a residential setting depends on a clear definition of related care delivery processes and allied social and interpersonal communications. It is argued that independence (and quality of life for older adults) is linked to technology that enables interdependence, and specifically technology that supports social communication between key roles including residents, caregivers, and family members.Entities:
Keywords: ageing; ambient-assisted living; care delivery; residential care; sensors; tablets; wellness
Mesh:
Year: 2019 PMID: 30682864 PMCID: PMC6387202 DOI: 10.3390/s19030485
Source DB: PubMed Journal: Sensors (Basel) ISSN: 1424-8220 Impact factor: 3.576
Figure 1Overview of the three studies.
Studies and research themes.
| # | Theme | Subtheme | 1a | 1b | 2 | 3 |
|---|---|---|---|---|---|---|
| 3.2 | Resident Experience | Concept of home | * | * | * | |
| Residential home | * | * | * | |||
| Comfort | * | * | * | |||
| Resident states | * | * | * | |||
| Identity social participation | * | * | * | * | ||
| 3.3 | Care Delivery | Scope and processes | * | * | * | |
| Wellness communications | * | * | * | |||
| Wellness and stability | * | * | * | |||
| 3.4 | Residential Care and Sensing Framework | * | * | * | * | |
| 3.5 | Technology Goals | * | * | * | * | |
| 3.6 | Ethics and User Acceptability | * | * | * | ||
| 3.7 | Application of Existing Sensor State of the Art to Residential Care | General | * | * | ||
| Sensors and monitoring person/resident | * | * | ||||
| Sensors and monitoring environment | * | * | ||||
| Sensors and monitoring care delivery | * | * | ||||
| 3.8 | Technical Architecture | * | * | |||
| 3.9 | Design | * | * | * | * | |
| 3.10 | Managing Change | * | * | * |
Figure 2Themes, requirements definition and product.
High-level technology goals.
| # | High-Level Technology Goals |
|---|---|
| 1 | Enable holistic care delivery—underpinned by concepts of holistic care—attention to wellness, relationship centered care and professionalism. |
| 2 | Overall, use technology (sensor and tablet kit) to build a resident profile. This includes a picture of the (1) resident and their wellness, (2) how they are living in the environment, and (3) their care, and (4) the relationships between each of these. |
| 3 | Following from (2), to use the technology (tablet and sensor kit), to actively manage and update the resident’s profile, to optimize resident wellness. |
| 4 | Link up information flows arising from the diverse care processes—admission, assessments, care planning, daily care, reporting, adverse events reporting. |
| 5 | Predictive risk management in relation to resident wellness and stability—anticipate state changes and flag need for interventions if required. |
| 6 | Continuously monitor status of care delivery—if missed rounding or medication—and notify care-givers and management as to status. |
| 7 | Flag need for interventions at environmental level (adjust room lighting, temp etc.), and automate action to ensure room settings appropriate to resident preference and/or wellness. |
| 8 | Support staff communication (staff briefing and handover). |
| 9 | Support resident/staff communication and care delivery. |
| 10 | Enable everybody involved in care/report on resident wellness (resident, family, nurse, Dr, care assistant, admin). |
| 11 | Gather data about (1) individual residents, (2) all residents—to improve care planning/quality of care. |
Sensing framework and resident profile.
| # | Sensing Framework | Care Processes | Sensors and Smart Room | ||
|---|---|---|---|---|---|
| Admissions | Assessments and Care Planning | Daily Care | |||
| 1 | Resident & resident wellness | Advance initial personal profile | Following assessments, define a health profile and baseline in relation to key wellness parameters (biological, psychological and social) | Track and report wellness against baseline | Advance sensor profile for resident linking to (1) |
| 2 | Environment | Define resident preferences for room | N/A | N/A | Over time, use sensors to build profile of resident/continuously learn about person and room preferences and relationship between wellness and room settings |
| 3 | Care Delivery | Establish preliminary care need linked to health profile (1) | Following assessments, assign a care profile and specific care tasks | Report on care delivery | Track human contact/presence of caregiver in room |
Figure 3Process flow for monitoring/managing (1) resident wellness, (2) resident environment and (3) care delivery.
Wellness management and technology intelligence levels.
| # | Wellness Management |
|---|---|
| 1 | Residents and care assistants reports on wellness and wellness information is available to all (integrated in existing reports, surveys, specific wellness reports). |
| 2 | Includes 1 |
| 3 | Includes 1 and 2 |
| 4 | Includes 1, 2 and 3 |
| 5 | Includes 1, 2, 3 and 4 |
| 6 | Includes 1, 2, 3 and 4 |
| 7 | Wider reporting and analytics over time for care facility, per issue, per intervention, per patient. |
Figure 4Wellness indicator.
Wellness Indicator, Change in State & Care Actions.
| # | Change in State | Care Action | Indicator |
|---|---|---|---|
| 1 | No Change | None |
|
| 2 | Minor Change | Monitor |
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| 3 | Significant Change | Action Required |
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| 4 | Major Change | Action Required—(Immediate/Urgency) |
|
Figure 5Prototype of dashboard of nurse tablet solution featuring wellness indicator.
Figure 6High-level technical architecture.
Figure 7Technical architecture and security.
Figure 8Overview of sensor system.
Figure 9Dashboard review.
Figure 10Sample of sleep detection.
Figure 11Sample of activity and hazard detection.
Figure 12Internet of Things (IoT)/Sensor based infrastructures and 3 structuring principles.
Overview of study 1a research phases and activities.
| Phase | Research Phase/Activity | Stakeholders | No of Participants | Personae | Prototype |
|---|---|---|---|---|---|
| 1 | Literature analysis | N/A | N/A | N/A | N/A |
| 2 | Preliminary Definition of Approach, concept, high level requirements and personae | Internal stakeholders | N = 3 | Personae 1 | N/A |
| 3 | Needs/Requirements Elicitation (interviews and observations with stakeholders) | Internal and External stakeholders | Internal: N = 9 | N/A | N/A |
| 4 | Needs/Requirements Elicitation (observations) | External Stakeholders | N/A | N/A | N/A |
| 5 | Needs/Requirements Analysis: Elaboration of concept and philosophy and specification of detailed requirements and personae | Internal stakeholders | N = 2 | Personae 2 | N/A |
| 6 | Production of Initial Prototype | Internal stakeholders | N = 2 | N/A | Prototype V 1 |
| 7 | Co-design and Evaluation, Phase 1 | External stakeholders | N = 6 | N/A | Prototype V 1 and V 2 |
| 8 | Co-design and Evaluation, Phase 2 | External stakeholders | N = 5 | N/A | Prototype V 2 and V 3 |
| 9 | Needs/Requirements Elicitation (Residential Home Study) | External stakeholders | N = 5 | Personae 3 | Prototype V 3 and V4 |
| 10 | Co-design and Evaluation, Phase 3 | External stakeholders | N = 5 | N/A | Prototype V 4 and V5 |
| 11 | Co-design and Evaluation, Phase 4 | External stakeholders | N = 5 | N/A | Prototype V 5 and V6 |
| 12 | Co-design and Evaluation, Phase 5 | External stakeholders | N = 5 | N/A | Prototype V 6 and V7 |
| 13 | Final Specification and Design | N/A | N/A | Final Personae | Prototype V 8 |
| Internal stakeholders = members of project team | |||||
Overview of study 1a methods.
| Method | Description |
|---|---|
| Literature Review | The literature view focused on providing a qualitative summary of existing evidence pertaining to successful ageing, wellbeing, care approaches, stakeholder need, technology requirements and ethical issues. Relevant theoretical literature pertaining to successful ageing, wellbeing and care approaches was reviewed. Policy documentation and research studies pertaining to the advancement of assisted living technologies were also examined. Furthermore, an analysis of the existing competitor offering was undertaken. Lastly, the researcher reviewed requirements documentation provided by three prospective customers. |
| Needs/Requirements Elicitation (interviews) | Semi-structured interviews were conducted in person either at the participants home or their workplace. Four separate interview guides were developed to support interviews with (1) older adults, (2) family members, (3) nurses/care staff and, (4) ageing experts and volunteers. Specific interview questions linked to key research questions and relevant themes emanating from the literature review. In each case, the participant was posed questions pertaining to their own experience and needs, and that of other stakeholders. Overall, 47 interviews were conducted with external (N = 38) and internal (N = 9) stakeholders. In terms of interview duration, 25 long interviews (approx. average duration 2 h) and 22 short interviews (approx. average duration 0.5 h) were undertaken. In all cases, the researcher took written notes. There was no audio or video recording. In terms of participant breakdown, external stakeholders included 11 older adults (mean age mean age 79.36 years), 7 family members, 5 experts in ageing/dementia, 1 ICT expert, 4 nurses, 5 representatives spanning two ‘care for the elderly’ day services, 3 representatives from a post-acute care service, and 2 representatives from a residential home. |
| Needs/Requirements Elicitation (observations) | Preliminary observations were undertaken taken at two day hospitals and one residential home. A short walk around was undertaken at one day hospital (approximate time: 0.5 h). The researcher was accompanied by the assistant director of nursing. A detailed walk-around was undertaken at a second day hospital (1 day). Here the researcher was accompanied by the nursing manager, along with other staff (dietician, case manager and pharmacist). The researcher observed several settings—case rooms, occupational therapy room, service user interviews and assessments and service user social activities/interaction in the common room. Furthermore, the researcher received a walk-through of relevant technologies used by different staff, to document case work. A third observation was undertaken at a residential home (approx. time 2 h). Here, the researcher visited indoor and outdoor social spaces, dining rooms, activity rooms and resident rooms accompanied by the residential home owner. In all cases, the researcher collected artefacts from the settings including paper forms and information leaflets. In relation to the second day hospital, the researcher took screenshots of the technologies used by the different roles, and schedule/workload information presented on nurse whiteboards. |
| Needs/Requirements Analysis: Elaboration of concept and philosophy and specification of detailed requirements and personae | Following the interviews/observations, the researcher’s notes were transcribed. Data analysis focused on understanding/defining the lived experience of older adults, care approaches and specific stakeholder technology requirements. A thematic analysis of field research findings was undertaken. The thematic analysis was initially driven by the research question and associated theory (i.e., not inductive). In support of this, a preliminary coding/data frame with high level nodes was defined. An initial review of sample manuscripts across different stakeholders was undertaken. Following this, the coding frame was refined, and sub-nodes were identified (i.e., link to emergent themes). |
| Production of Initial Prototype | Stakeholder personae and scenarios were used to (1) support problem solving around stakeholder requirements and (2) the user interface design of prototypes. Early stage prototypes were developed using the wire framing tool Balsamiq. The primary focus was on the resident solution. Three different prototypes linking to three high level resident contexts were defined: (a) resident is considering moving to residential home, (b) resident is in the admissions process and (c) resident is domicile in residential home. The specification of (c) involved the parallel definition of complementary prototypes for other stakeholders. This includes prototypes for nurses, care assistants and family members. The initial prototype was reviewed by members of the project team (internal stakeholders, N = 2), in advance of the co-design activities. |
| Co-design and Evaluation Phase 1 | The first phase of co-design/evaluation occurred after the analysis of field research and the specification of the initial prototypes (prototypes 1). The evaluation focused on eliciting stakeholder feedback regarding the high-level product concept for the resident application, and a subset of the other stakeholder solutions (for example, nursing staff, families, pre-admissions and admissions). External stakeholders included older adults (N = 4) and nurses (N = 2). In advance of viewing the prototypes, participants reviewed a short Microsoft power-point presentation which provided a background to the research and preliminary findings, a summary of the different applications and functions, and an example persona. The review/co-design of prototypes then commenced. The initial prototypes were demonstrated to stakeholders using a laptop computer. Participants were invited to review prototypes based on (1) their own experience and need, and (2) on the imagined situation of Frank (persona). Feedback pertaining to user need, user expectations, user acceptability and issues related to ethics and privacy was elicited. |
| Co-design and Evaluation Phase 2 | The second phase of co-design involved the same procedure as phase 1. However, the second phase of co-design focused on the resident and nurse applications only. The prototypes demonstrate basic level functionality on the tablet (i.e., touch interaction). The focus here was on (1) eliciting more specific usability feedback (i.e., task workflows, interaction style, nomenclature and iconography) and (2) following up on certain key human factors issues (for example, reduction in human contact). Participants included older adults (N = 3) and nurses (N = 2). |
| Co-design and Evaluation Phase 3 | The third phase of co-design involved the same procedure as phase 1. However, this phase focused on the nurse applications only. Five nurses provided feedback about specific nursing workflows—pertaining to reviewing the overall resident status, assessing care needs for specific residents, reporting on daily care and monitoring wellness interventions. |
| Co-design and Evaluation Phase 4 | The fourth phase of co-design involved the same procedure as phase 1. This phase focused on refining the concepts, processes/workflows and specific user interface (UI) design for both the resident and nursing applications. |
| Co-design and Evaluation Phase 5 | The fifth phase of co-design involved the same procedure as previous phases. However, this phase focused on the nurse applications only. The primary focus was on (a) evaluating those functions which pertain to resident wellness (for example, reporting on resident status and activity, ensuring meaningful interactions with the resident, evaluating resident changes and making a case for new assessments/care plan updates), and (b) exploring how best to manage issues around reduction in human contact/optimizing human contact in care delivery. Five nurses provided feedback pertaining to specific nursing workflows. |
Overview of study 1a methods.
| Pillar | Factor | Time-Period | Changes to |
|---|---|---|---|
| Biological | Mobility | 24 h | Level of Mobility |
| Activities of Daily Living (ADL) Support | Week | ADL Support/Dressing | |
| Night Sleep | 24 h | Not sleeping as normally do | |
| Fatigue and Day Sleep | 24 h | Sleep routine during the day (being in bed during day or level of sleep during day) | |
| Eating and Drinking | 24 h | What eating | |
| Toileting | 24 h | Changes to elimination/typical patterns (constipated etc.) | |
| Pain | 4 h | Level of pain | |
| Pressure Sores | 24 h | Change in pressure sore status? | |
| Body Temperature | 2 h | ||
| Basic level Physical activity | Several days | Leaving bed/sitting out in chair | |
| Physical Exercise | Several days | Taking walks outside | |
| Wandering | Several days | ||
| Falls | Week | No of falls | |
| Nurse Bell Requests | 24 h | ||
| Psychological | Mood | Several days | Difference in mood |
| Cognitive | Several days | Sad, Anxious, Depressed | |
| General Behavior | Several days | Difference in | |
| Dementia Specific Behavior | Several days | Awareness | |
| Nurse Bell Requests | 24 h | Understanding instructions | |
| Engagement: Hobbies and Interests | Several days | Memory (person, place, time) | |
| Engagement in Education | Several days | Difference in | |
| Engagement in Self-Management Activities | Several days | Level of stress, confusion, agitation | |
| Social | Personality/Level of Social Engagement | Several days | Normally outgoing and talk to people—but change? |
| Time in Room | Several days | Change in typical social patterns—not leaving room, spending more time alone than normal | |
| Club Events and Hobbies | Several days | Not responding to RSVPs | |
| Family Visits | Several days | Not having visits, refusing visits, cancelling visits | |
| Travel Outside | Several days | Not leaving facility—irrespective of whether out hours permissible | |
| Engagement: Communication with Staff | Several days | Changes in communication level |
Examples of Wellness Communication.
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| Resident Fidgeting | I’m not feeling well? | Hi, how are you feeling today? | Is it you Jane (daughter)? |
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| Mum seems in more pain | How is Zena—any improvements? | Zena fell yesterday—her mobility is getting worse | Room/doors open |
Overview of Solutions for Different Stakeholders.
| # | Process | Actor | Application and Device | Description |
|---|---|---|---|---|
| 1 | Preadmissions | Sales Representative | Pre-admission app (website) | Resident and/or loved one provides background information about the resident—social and personal profile, health status, prior assessments and ability. |
| 2 | Admissions | Admissions Co-coordinator | Admissions App (Desktop Computer and Tablet) | The admissions application is used to complete the resident profile picture, at the time of admissions. Prior information provided at the preadmissions stage is prepopulated in the system. The admissions user interface is conceptualized in terms of a series of steps to promote familiarization for both residents and care staff, and reassurance for residents and family members. |
| 3 | Assessments and Care Planning | Nurse | Assessments App (Desktop Computer) | This records resident assessments information—comprising general wellness, nutrition, activities of daily living and functional ability, cognitive, behavioural etc |
| 4 | Daily Care | Resident | Resident App (Tablet) | The resident solution is customized in relation to resident need and ability. |
| Nurse | Nurse Rounding App (Tablet) | The nursing solution promotes meaningful interaction with the resident, based on a real time picture of the resident’s state, and background information about who the resident is and what matters to them. This application is also used to record rounding information—structured from biopsychosocial perspective. | ||
| Care Assistant | Caregiver App (Tablet) | This care assistant application enables reporting on ADL and caregiving tasks—it also provides access to information about the resident—personal history, what matters. | ||
| Nurse Manager | Care Console (Desktop Computer) | Supports queries/data analytics in relation to resident wellness, assessments, activity and so forth. Also provides real-time information about the resident. | ||
| Family | Family App (phone, web) | This allows the family member to view relevant real time and historical information about their loved one. Used also to upload content/information etc. | ||
| 5 | Maintenance | Maintenance | Maintenance Managements (Desktop and Tablet) | This application is used to process and manage maintenance requests from residents and staff. |
| 6 | Resident Activities and Entertainment | Entertainment Coordinator | Event Managements (Desktop) | Manage resident social activities and events. |
| 7 | Concierge | Concierge Manager | Concierge (Desktop) | Manage resident requests (i.e., travel, room maintenance etc). |
Overview of Room Sensors.
| Room Sensor | Bed Sensor | Ensuite Sensor |
|---|---|---|
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| Complete room view for activity/wellbeing tracking and fall detection | In-bed detection and advanced sleeping pattern analytics | Complete room view for activity tracking and fall detection |