Marie-JosÉe Fleury1. 1. Department of Psychiatry, McGill University Douglas Hospital Research Center, 6875 LaSalle Blvd., Montreal (Québec), Canada, H4H 1R3.
Improving performance of health and social services is imperative in the face of
increasing population needs, complex and chronic patient profiles, and resource
scarcity. These three related articles (Performance measurement in mental health and
addictions systems: A scoping review; The experience of the treatment demand indicator
in Europe: A common monitoring tool across 30 countries; A mixed-methods evaluation of
the implementation of a performance measurement system for South Africa’s
substance use treatment services) assess numerous system-level efforts undertaken in
recent decades and aim at conceptualizing, implementing, and monitoring performance
measurement, both in Canada and internationally. Urbanoski & Inglis (2019) report the results of a scoping review on
performance measurement in mental health and addiction treatment systems, concluding
that a wide variety of indicators is available to those designing a measurement system.
Myers et al. (2019) extend this review to
cover performance measurement systems for low- and middle-income countries (LMICs) such
as South Africa, showing that it is feasible to implement performance measurement
systems in LMICs if the system is acceptable, appropriate, and useful. Finally, Montanari et al. (2019) demonstrate the utility of
implementing a common treatment demand indicator in Europe, across 30 countries.These articles suggest that performance indicators permit the follow-up and evaluation of
system reforms focused on improving organizational efficiency and interdisciplinary
teamwork, while implementing best practices geared toward better population health and
patient recovery. Yet consensus is lacking around the meaning of performance: Conceptual
frameworks vary according to the programs evaluated (e.g., substance use disorders
[SUDs], mental disorders) and across countries. Donabedian’s Quality Framework, a
simple and perhaps best-known model, integrates structure, process, and outcomes.
Structure encompasses both organizational and provider characteristics and context,
whereas process includes interactions between providers and patients regarding
treatment. Outcomes relate to the effects of health care for both population and
individual health status including patient satisfaction (Donabedian, 1972).Quality indicators including access, continuity, effectiveness, efficiency, safety,
acceptability, appropriateness, and responsiveness (patient-centered care) are key
benchmarks in relation to improving population health, with the ultimate aim of reducing
SUDs, mental disorders, comorbidity, and suicide rates. System performance indicators
draw on population data that is manageable, generalizable, readily available, and
affordable to collect. Data used in system performance measurement are usually collected
annually and stored in administrative databases at the state level (e.g., the Treatment
Demand Indicator [TDI], Montanari et al., 2019).
National surveys are other key data sources used in system performance measurement
(e.g., the Canadian Community Health Survey 2002 and 2012). One approach merges data
from administrative databases with individual patient surveys for improving knowledge on
patient care and outcomes.Use of performance indicators as a monitoring tool for systems, programs, organizations,
clinical practices, and patient outcomes is still in its infancy, with fewer available
measures for structure than for process and outcomes (Urbanoski & Inglis, 2019). Yet little progress in measuring or
monitoring SUD or MH system performance is evident in Quebec (Canada), notwithstanding
efforts of the Mental Health Commission of Canada
(2015, 2018) and the Commissioner for
Health and Wellness (Quebec) (Commissaire à la
santé et au bien-être [CSBE], 2012). The database for evaluating
SUD programming is similar to TDI in the European context, the “Système
d’information clientèle pour les services de réadaptation
dépendances: SIC-SRD,” in which data are not centralized at the provincial
level and are not necessarily preserved beyond a limited 5-year period. Other important
but unresolved quality issues regarding the SIC-SRD involve standardization of data
entry and, as with the TDI, the focus on SUD treatment centers offering specialized care
to a minority of addiction patients. One attempt was made over several years to monitor
performance of MH programs provincially through the “Outil d’alimentation
des systèmes d’information sociosanitaires: OASIS,” but it was
discontinued because of difficulties related to data collection and management. Medical
and hospital databases (RAMQ, Med-Écho), as well as those from emergency rooms
(BDCU), public pharmaceutical services, and local community health service centers
(I-CLSC) are other sources. However, although centralized at the provincial level
(RAMQ), these databases have not been merged, except for the Integrated Surveillance
System of Chronic Disease in Quebec (SISMACQ), which is used exclusively by the Quebec
National Public Health Institute (INSPQ) and collaborators. Several surveys produced by
the Quebec Institut de la statistique, mainly regarding substance use, could also serve
as benchmarks for monitoring performance of the SUD program, yet these are not
longitudinal surveys and may be dated or not representative of health networks.Challenges associated with administrative databases in monitoring health system
performance, or in service planning, mainly concern issues of responsiveness to needs,
validation, and accessibility. Administrative databases provide insufficient coverage of
outpatient services and those provided by paramedical professionals in the context of
reforms aimed at consolidating primary care and community services. Moreover, little
data are collected on patient sociodemographic profiles, and extensive work (e.g.,
patient follow-up after 30 days of hospital discharge) would be required to obtain data
on quality indicators. As administrative databases have been developed for management
purposes rather than clinical evaluation, the possibility of missing or inaccurate
diagnoses poses validity issues. However, the more administrative databases are used for
evaluation, the more they can be improved. As well, wait time for access to Quebec
administrative databases is at least 12 months (CSBE,
2017). Other issues concerned noncentralization, fragmentation, variations in
data collection in terms of time or space, and the expertise and resources required for
analyses of administrative databases for “real time” decision-making.
Clinicians and managers also need to be convinced about the relevance of performance
benchmarks for improving their practices and for patient outcomes. Additional expertise
is required for treating and disseminating data (see Myers et al., 2019). There is considerable room for health system
improvement in terms of data collection and utility in supporting the implementation of
needs-based planning—essentially “doing more and better with less”
for patient recovery!