Literature DB >> 30671982

Reframing health and illness: a collaborative autoethnography on the experience of health and illness transformations in the life course.

Alexandra C H Nowakowski1, J E Sumerau2.   

Abstract

In this collaborative autoethnography, we examine the processes whereby people may reframe their interpretations and understandings of health and illness as a result of new diagnostic information. In so doing, we utilise the first author's experience receiving a conclusive diagnosis of cystic fibrosis after years of misdiagnosis to outline some ways changes in diagnosis facilitate shifts in illness management, the nature of health and illness and the experience of the self in relation to health and medicine. Furthermore, we discuss the ways this case reveals the importance of examining and comparing the social construction and transformation of health and illness within and between different individual and collective lived experiences over time. In closing, we draw out theoretical and empirical implications for understanding transformations in the nature of health and illness over the life course as well as future directions for research investigating shifts in illness management and understanding over time (A virtual abstract of this paper is available to view at: https://www.youtube.com/channel/UC_979cmCmR9rLrKuD7z0ycA).
© 2019 Foundation for the Sociology of Health & Illness.

Entities:  

Keywords:  Autoethnography; Chronic illness; Cystic fibrosis; Goffman; Illness behaviour; Long-term illness

Mesh:

Year:  2019        PMID: 30671982     DOI: 10.1111/1467-9566.12849

Source DB:  PubMed          Journal:  Sociol Health Illn        ISSN: 0141-9889


  1 in total

1.  Coming Full Circle: Reflections and Inspirations from a Cystic Fibrosis Patient Scientist Panel.

Authors:  Alexandra Xan C H Nowakowski; Gabriella Ella Balasa; Miriam F Figueira; Francis Tré J LaRosa; James M J Lawlor
Journal:  Inquiry       Date:  2022 Jan-Dec       Impact factor: 2.099

  1 in total

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