Sandra Braaf1, Shanthi Ameratunga2, Nicola Christie3, Warwick Teague4,5,6, Jennie Ponsford7,8, Peter A Cameron1,9, Belinda J Gabbe1,10. 1. a Department of Epidemiology and Preventive Medicine , Monash University , Melbourne , Australia. 2. b School of Population Health , University of Auckland , Auckland , New Zealand. 3. c Department of Civil, Environmental and Geomatic Engineering , University College of London , London , UK. 4. d Trauma Service , The Royal Children's Hospital , Melbourne , Australia. 5. e Department of Paediatrics , University of Melbourne , Melbourne , Australia. 6. f Surgical Research Group , Murdoch Children's Research Institute , Melbourne , Australia. 7. g School of Psychological Sciences , Monash University , Melbourne , Australia. 8. h Monash-Epworth Rehabilitation Research Centre , Melbourne , Australia. 9. i Emergency and Trauma Centre , The Alfred Hospital , Melbourne , Australia. 10. j Farr Institute at the Centre for Improvement in Population Health through E-records Research (CIPHER) , Swansea University Medical School, Swansea University , UK.
Abstract
TITLE: Care coordination experiences of people with traumatic brain injury and their family members 4-years after injury: A qualitative analysis. AIM: To explore experiences of care coordination in the first 4-years after severe traumatic brain injury (TBI). METHODS: A qualitative study nested within a population-based longitudinal cohort study. Eighteen semi-structured telephone interviews were conducted 48-months post-injury with six adults living with severe TBI and the family members of 12 other adults living with severe TBI. Participants were identified through purposive sampling from the Victorian State Trauma Registry. A thematic analysis was undertaken. RESULTS: No person with TBI or their family member reported a case manager or care coordinator were involved in assisting with all aspects of their care. Many people with severe TBI experienced ineffective care coordination resulting in difficulty accessing services, variable quality in the timing, efficiency and appropriateness of services, an absence of regular progress evaluations and collaboratively formulated long-term plans. Some family members attempted to fill gaps in care, often without success. In contrast, effective care coordination was reported by one family member who advocated for services, closely monitored their relative, and effectively facilitated communication between services providers. CONCLUSION: Given the high cost, complexity and long-term nature of TBI recovery, more effective care coordination is required to consistently meet the needs of people with severe TBI.
TITLE: Care coordination experiences of people with traumatic brain injury and their family members 4-years after injury: A qualitative analysis. AIM: To explore experiences of care coordination in the first 4-years after severe traumatic brain injury (TBI). METHODS: A qualitative study nested within a population-based longitudinal cohort study. Eighteen semi-structured telephone interviews were conducted 48-months post-injury with six adults living with severe TBI and the family members of 12 other adults living with severe TBI. Participants were identified through purposive sampling from the Victorian State Trauma Registry. A thematic analysis was undertaken. RESULTS: No person with TBI or their family member reported a case manager or care coordinator were involved in assisting with all aspects of their care. Many people with severe TBI experienced ineffective care coordination resulting in difficulty accessing services, variable quality in the timing, efficiency and appropriateness of services, an absence of regular progress evaluations and collaboratively formulated long-term plans. Some family members attempted to fill gaps in care, often without success. In contrast, effective care coordination was reported by one family member who advocated for services, closely monitored their relative, and effectively facilitated communication between services providers. CONCLUSION: Given the high cost, complexity and long-term nature of TBI recovery, more effective care coordination is required to consistently meet the needs of people with severe TBI.
Entities:
Keywords:
Traumatic brain injury; care coordination; community; health literacy; interviews; qualitative
Authors: Jemma Keeves; Sandra C Braaf; Christina L Ekegren; Ben Beck; Belinda J Gabbe Journal: Int J Environ Res Public Health Date: 2021-01-29 Impact factor: 3.390
Authors: Mariah R Erlick; Monica S Vavilala; Kenneth M Jaffe; Carolyn B Blayney; Megan Moore Journal: J Neurotrauma Date: 2020-11-09 Impact factor: 5.269