Literature DB >> 30662922

Is It Time to Share Qualitative Research Data?

James M DuBois1, Michelle Strait2, Heidi Walsh1.   

Abstract

Policies by the National Institutes of Health and the National Science Foundation, as well as scandals surrounding failures to reproduce the findings of key studies in psychology, have generated increased calls for sharing research data. Most of these discussions have focused on quantitative, rather than qualitative, research data. This paper examines scientific, ethical, and policy issues surrounding sharing qualitative research data. We consider advantages of sharing data, including enabling verification of findings, promoting new research in an economical manner, supporting research education, and fostering public trust in science. We then examine standard procedures for archiving and sharing data, such as anonymizing data and establishing data use agreements. Finally, we engage a series of concerns with sharing qualitative research data such as the importance of relationships in interpreting data, the risk of re-identifying participants, issues surrounding consent and data ownership, and the burden of data documentation and depositing on researchers. For each concern, we identify options that enable data sharing or describe conditions under which select data might be withheld from a data repository. We conclude by suggesting that the default assumption should be that qualitative data will be shared unless concerns exist that cannot be addressed through standard data depositing practices such as anonymizing data or through data use agreements.

Entities:  

Keywords:  confidentiality; data sharing; qualitative research; research ethics

Year:  2017        PMID: 30662922      PMCID: PMC6338425          DOI: 10.1037/qup0000076

Source DB:  PubMed          Journal:  Qual Psychol        ISSN: 2326-3598


  7 in total

Review 1.  Communication in pediatric oncology: State of the field and research agenda.

Authors:  Bryan A Sisk; Jennifer W Mack; Rachel Ashworth; James DuBois
Journal:  Pediatr Blood Cancer       Date:  2017-07-27       Impact factor: 3.167

2.  Are we ready to share qualitative research data? Knowledge and preparedness among qualitative researchers, IRB Members, and data repository curators.

Authors:  Jessica Mozersky; Heidi Walsh; Meredith Parsons; Tristan McIntosh; Kari Baldwin; James M DuBois
Journal:  IASSIST Q       Date:  2020-01-08

3.  Research Participant Views regarding Qualitative Data Sharing.

Authors:  Jessica Mozersky; Meredith Parsons; Heidi Walsh; Kari Baldwin; Tristan McIntosh; James M DuBois
Journal:  Ethics Hum Res       Date:  2020-03

4.  Enabling qualitative research data sharing using a natural language processing pipeline for deidentification: moving beyond HIPAA Safe Harbor identifiers.

Authors:  Aditi Gupta; Albert Lai; Jessica Mozersky; Xiaoteng Ma; Heidi Walsh; James M DuBois
Journal:  JAMIA Open       Date:  2021-08-23

5.  Qualitative Data Sharing: Participant Understanding, Motivation, and Consent.

Authors:  Alicia VandeVusse; Jennifer Mueller; Sebastian Karcher
Journal:  Qual Health Res       Date:  2021-12-01

6.  Barriers and facilitators to qualitative data sharing in the United States: A survey of qualitative researchers.

Authors:  Jessica Mozersky; Tristan McIntosh; Heidi A Walsh; Meredith V Parsons; Melody Goodman; James M DuBois
Journal:  PLoS One       Date:  2021-12-31       Impact factor: 3.240

7.  A study protocol of qualitative data sharing practices in clinical trials in the UK and Ireland: towards the production of good practice guidance.

Authors:  Catherine Houghton; Megan McCarthy; Katie Gillies; Nikki Rousseau; Julia Wade; Carrol Gamble; Elaine Toomey; Karen Matvienko-Sikar; Matthew Sydes; Maura Dowling; Val Bryant; Linda Biesty
Journal:  HRB Open Res       Date:  2021-06-22
  7 in total

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