Literature DB >> 30653871

The perception of different social agents in Colombia regarding biobanks for research purposes

Norma Cecilia Serrano1, Elizabeth Guio-Mahecha, Silvia Becerra-Bayona, María Lucrecia Luna-González, Doris Cristina Quintero-Lesmes.   

Abstract

Introduction: Biobanks for research purposes are public assets that require active participation from all interested parties; therefore, it is important to discern and investigate the perception that the general public in Colombia has with regards to their participation in a biobank. Objective: To question different healthy Colombian social agents about the perception they have on donating human biological material to be stored in a biobank for future research purposes. Materials and methods: We conducted an exploratory quantitative and qualitative research by means of an anonymous survey on healthy members of the Colombian community in order to evaluate their knowledge and stances related to biobanks.
Results: Three hundred sixty-eight (368) individuals completed the survey, including health-care researchers, lawyers and members of research ethics committees. Ninety-six percent (96%) of the subjects stated their willingness to donate biological material to biobanks, although 60% expressed distress about their samples being used for certain research activities, mainly human cloning. Even though about half of the participants reported knowing what a biobank is, less than 3% of the individuals had a clear concept of them.
Conclusion: Participants showed their willingness to donate and store their biological material for research purposes. Similarly, they expressed their opinion about issues related to the management of biobanks. It is necessary to take into account the opinions of the general public in the development of policies that regulate biobanks for research purposes in Colombia.

Entities:  

Keywords:  bancos de muestras biológicas; consentimiento informado; opinión pública; privacidad; ética

Mesh:

Year:  2018        PMID: 30653871     DOI: 10.7705/biomedica.v38i4.4327

Source DB:  PubMed          Journal:  Biomedica        ISSN: 0120-4157            Impact factor:   0.935


  1 in total

1.  Study of laboratory staff' knowledge of biobanking in Côte d'Ivoire.

Authors:  Ambroise Kouamé Kintossou; Mathias Kouamé N'dri; Marcelle Money; Souleymane Cissé; Simini Doumbia; Man-Koumba Soumahoro; Amadou Founzégué Coulibaly; Joseph Allico Djaman; Mireille Dosso
Journal:  BMC Med Ethics       Date:  2020-09-11       Impact factor: 2.652

  1 in total

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