Jonathan T L Cheah1,2, Rachel J Black3,4, Joanna C Robson3,4, Iris Y Navarro-Millán3,4, Sarah R Young3,4, Pamela Richards3,4, Susan Beard3,4, Lee S Simon3,4, Susan M Goodman3,4, Sarah L Mackie3,4, Catherine L Hill3,4. 1. From the Division of Rheumatology, Hospital for Special Surgery; Department of Medicine, and the Division of General Internal Medicine, Weill Cornell Medicine, New York; Department of Social Work, Binghamton University, Binghamton, New York; SDG LLC, Cambridge, Massachusetts, USA; Rheumatology Unit, Royal Adelaide Hospital; Discipline of Medicine, The University of Adelaide; Rheumatology Unit, The Queen Elizabeth Hospital, Adelaide, Australia; Faculty of Health and Applied Science, University of the West of England; School of Clinical Science, University of Bristol, Bristol; Leeds Biomedical Research Centre, Leeds Institute of Rheumatic and Musculoskeletal Medicine; Chapel Allerton Hospital, University of Leeds, Leeds, UK. cheahj@hss.edu. 2. J.T. Cheah, MBBS, Fellow, Division of Rheumatology, Hospital for Special Surgery, and Department of Medicine, Weill Cornell Medicine; R.J. Black, MBBS, Consultant Rheumatologist, Rheumatology Unit, Royal Adelaide Hospital, and Discipline of Medicine, The University of Adelaide; J.C. Robson, MBBS, PhD, MRCP, Consultant Senior Lecturer in Rheumatology, Faculty of Health and Applied Science, University of the West of England, and School of Clinical Science, University of Bristol; I.Y. Navarro-Millán, MD, MSPH, Assistant Professor of Medicine, Division of General Internal Medicine, Weill Cornell Medicine, and Division of Rheumatology, Hospital for Special Surgery; S.R. Young, PhD, LMSW, Assistant Professor, Department of Social Work, Binghamton University; P. Richards, HNC (Business Studies), OMERACT Patient Research Partner; S. Beard, BMus, OMERACT Patient Research Partner; L.S. Simon, MD, Principal, SDG LLC; S.M. Goodman, MD, Professor of Clinical Medicine, Division of Rheumatology, Hospital for Special Surgery, and Department of Medicine, Weill Cornell Medicine; S.L. Mackie, MB BCh, PhD, MRCP, Leeds Biomedical Research Centre, Leeds Institute of Rheumatic and Musculoskeletal Medicine, Chapel Allerton Hospital, and University of Leeds; C.L. Hill, MBBS, MSc, MD, FRACP, Clinical Professor, Rheumatology Unit, The Queen Elizabeth Hospital, and Rheumatology Unit, Royal Adelaide Hospital, and Discipline of Medicine, The University of Adelaide. cheahj@hss.edu. 3. From the Division of Rheumatology, Hospital for Special Surgery; Department of Medicine, and the Division of General Internal Medicine, Weill Cornell Medicine, New York; Department of Social Work, Binghamton University, Binghamton, New York; SDG LLC, Cambridge, Massachusetts, USA; Rheumatology Unit, Royal Adelaide Hospital; Discipline of Medicine, The University of Adelaide; Rheumatology Unit, The Queen Elizabeth Hospital, Adelaide, Australia; Faculty of Health and Applied Science, University of the West of England; School of Clinical Science, University of Bristol, Bristol; Leeds Biomedical Research Centre, Leeds Institute of Rheumatic and Musculoskeletal Medicine; Chapel Allerton Hospital, University of Leeds, Leeds, UK. 4. J.T. Cheah, MBBS, Fellow, Division of Rheumatology, Hospital for Special Surgery, and Department of Medicine, Weill Cornell Medicine; R.J. Black, MBBS, Consultant Rheumatologist, Rheumatology Unit, Royal Adelaide Hospital, and Discipline of Medicine, The University of Adelaide; J.C. Robson, MBBS, PhD, MRCP, Consultant Senior Lecturer in Rheumatology, Faculty of Health and Applied Science, University of the West of England, and School of Clinical Science, University of Bristol; I.Y. Navarro-Millán, MD, MSPH, Assistant Professor of Medicine, Division of General Internal Medicine, Weill Cornell Medicine, and Division of Rheumatology, Hospital for Special Surgery; S.R. Young, PhD, LMSW, Assistant Professor, Department of Social Work, Binghamton University; P. Richards, HNC (Business Studies), OMERACT Patient Research Partner; S. Beard, BMus, OMERACT Patient Research Partner; L.S. Simon, MD, Principal, SDG LLC; S.M. Goodman, MD, Professor of Clinical Medicine, Division of Rheumatology, Hospital for Special Surgery, and Department of Medicine, Weill Cornell Medicine; S.L. Mackie, MB BCh, PhD, MRCP, Leeds Biomedical Research Centre, Leeds Institute of Rheumatic and Musculoskeletal Medicine, Chapel Allerton Hospital, and University of Leeds; C.L. Hill, MBBS, MSc, MD, FRACP, Clinical Professor, Rheumatology Unit, The Queen Elizabeth Hospital, and Rheumatology Unit, Royal Adelaide Hospital, and Discipline of Medicine, The University of Adelaide.
Abstract
OBJECTIVE: To understand the effects of glucocorticoids (GC), which are of importance to patients. METHODS: The results of 2 literature reviews, a patient survey, and a qualitative study were presented. RESULTS: No validated instrument exists to evaluate GC effect on patients. Survey data revealed skin thinning/bruising, sleep disturbance, and weight gain as the most frequent adverse effects. The qualitative research yielded rich data covering rapid benefits and physical and emotional consequences of GC. CONCLUSION: It was agreed that a patient-reported outcome to measure GC effect was required and a research agenda was developed for this goal.
OBJECTIVE: To understand the effects of glucocorticoids (GC), which are of importance to patients. METHODS: The results of 2 literature reviews, a patient survey, and a qualitative study were presented. RESULTS: No validated instrument exists to evaluate GC effect on patients. Survey data revealed skin thinning/bruising, sleep disturbance, and weight gain as the most frequent adverse effects. The qualitative research yielded rich data covering rapid benefits and physical and emotional consequences of GC. CONCLUSION: It was agreed that a patient-reported outcome to measure GC effect was required and a research agenda was developed for this goal.
Authors: Rachel J Black; Joanna C Robson; Susan M Goodman; Elizabeth Hoon; Lana Y H Lai; Lee S Simon; Eileen Harrison; Lorna Neill; Pam Richards; Linda M Nelsen; J Michael Nebesky; Sarah L Mackie; Catherine L Hill Journal: J Rheumatol Date: 2017-04-01 Impact factor: 4.666
Authors: Rachel J Black; Susan M Goodman; Carlee Ruediger; Susan Lester; Sarah L Mackie; Catherine L Hill Journal: J Clin Rheumatol Date: 2017-12 Impact factor: 3.517
Authors: Maarten Boers; John R Kirwan; George Wells; Dorcas Beaton; Laure Gossec; Maria-Antonietta d'Agostino; Philip G Conaghan; Clifton O Bingham; Peter Brooks; Robert Landewé; Lyn March; Lee S Simon; Jasvinder A Singh; Vibeke Strand; Peter Tugwell Journal: J Clin Epidemiol Date: 2014-02-28 Impact factor: 6.437
Authors: J N Hoes; J W G Jacobs; S M M Verstappen; J W J Bijlsma; G J M G Van der Heijden Journal: Ann Rheum Dis Date: 2008-12-09 Impact factor: 19.103
Authors: Peter Joseph Jongen; Ioanna Stavrakaki; Bernard Voet; Erwin Hoogervorst; Erik van Munster; Wim H Linssen; Ludovicus G Sinnige; Wim I Verhagen; Leo H Visser; Ruud van der Kruijk; Freek Verheul; Jan Boringa; Marco Heerings; Werner Gladdines; Fredrik Lönnqvist; Pieter Gaillard Journal: J Neurol Date: 2016-06-07 Impact factor: 4.849
Authors: Susan D Mathias; Pamela Berry; Jane De Vries; Anca Askanase; Katie Pascoe; Hilary H Colwell; David J Chang Journal: Health Qual Life Outcomes Date: 2017-02-28 Impact factor: 3.186
Authors: Joanna C Robson; Jill Dawson; Peter F Cronholm; Susan Ashdown; Ebony Easley; Katherine S Kellom; Don Gebhart; Georgia Lanier; Nataliya Milman; Jacqueline Peck; Raashid A Luqmani; Judy A Shea; Gunnar Tomasson; Peter A Merkel Journal: Rheumatol Int Date: 2017-11-09 Impact factor: 2.631
Authors: Serene Z Mirza; Jonathan T L Cheah; Nilasha Ghosh; Joanna C Robson; Catherine L Hill; Jasvinder Singh; Sarah L Mackie; Iris Navarro-Millán; Lee S Simon; Susan M Goodman Journal: J Clin Rheumatol Date: 2021-09-01 Impact factor: 3.517