Inge Henselmans1, Sabrina D Brugel2, Hanneke C J M de Haes3, Kim J A Wolvetang3, Laura M de Vries3, Arwen H Pieterse4, Monique C M Baas-Thijssen4, Filip Y F de Vos5, Hanneke W M van Laarhoven6, Ellen M A Smets2. 1. Department of Medical Psychology, Academic Medical Center, University of Amsterdam, the Netherlands; Amsterdam Public Health research institute, Amsterdam, the Netherlands; Cancer Center Amsterdam, Amsterdam, the Netherlands. Electronic address: I.Henselmans@amc.uva.nl. 2. Department of Medical Psychology, Academic Medical Center, University of Amsterdam, the Netherlands; Amsterdam Public Health research institute, Amsterdam, the Netherlands; Cancer Center Amsterdam, Amsterdam, the Netherlands. 3. Department of Medical Psychology, Academic Medical Center, University of Amsterdam, the Netherlands. 4. Department of Medical Decision Making, Leiden University Medical Center, the Netherlands. 5. Department of Medical Oncology, University Medical Center Utrecht, the Netherlands. 6. Cancer Center Amsterdam, Amsterdam, the Netherlands; Department of Medical Oncology, Academic Medical Center, University of Amsterdam, the Netherlands.
Abstract
OBJECTIVE: To learn how to configure a patient communication aid (PCA) to facilitate shared decision-making (SDM) about treatment for advanced cancer. METHODS: The PCA consists of education about SDM, a question prompt list, and values clarification methods. Study 1. A first version was presented to 13 patients, 8 relatives and 14 bereaved relatives in interviews. Study 2. A second version was used by 18 patients in a pilot study. Patients and oncologists were interviewed, patients were surveyed, and consultations were audio-recorded. RESULTS: Respondents reported that the aid facilitated patient control over information, raised choice awareness and promoted elaboration. Risks were identified, most importantly that the aid might upset patients. Also, some respondents reported that the PCA did not, or would not support decision making because they felt sufficiently competent, did not perceive a role for themselves, or did not perceive that the decision required elaboration. CONCLUSIONS: Opinions on the usefulness of the PCA varied. It was challenging to raise awareness about the presence of a choice, and to find a balance between comprehensive information and sensitivity. PRACTICE IMPLICATIONS: A future study should demonstrate whether the PCA can improve SDM, and whether this effect is stronger when oncologists receive training.
OBJECTIVE: To learn how to configure a patient communication aid (PCA) to facilitate shared decision-making (SDM) about treatment for advanced cancer. METHODS: The PCA consists of education about SDM, a question prompt list, and values clarification methods. Study 1. A first version was presented to 13 patients, 8 relatives and 14 bereaved relatives in interviews. Study 2. A second version was used by 18 patients in a pilot study. Patients and oncologists were interviewed, patients were surveyed, and consultations were audio-recorded. RESULTS: Respondents reported that the aid facilitated patient control over information, raised choice awareness and promoted elaboration. Risks were identified, most importantly that the aid might upset patients. Also, some respondents reported that the PCA did not, or would not support decision making because they felt sufficiently competent, did not perceive a role for themselves, or did not perceive that the decision required elaboration. CONCLUSIONS: Opinions on the usefulness of the PCA varied. It was challenging to raise awareness about the presence of a choice, and to find a balance between comprehensive information and sensitivity. PRACTICE IMPLICATIONS: A future study should demonstrate whether the PCA can improve SDM, and whether this effect is stronger when oncologists receive training.
Authors: Inge Henselmans; Hanneke W M van Laarhoven; Pomme van Maarschalkerweerd; Hanneke C J M de Haes; Marcel G W Dijkgraaf; Dirkje W Sommeijer; Petronella B Ottevanger; Helle-Brit Fiebrich; Serge Dohmen; Geert-Jan Creemers; Filip Y F L de Vos; Ellen M A Smets Journal: Oncologist Date: 2019-11-26
Authors: Anne Brédart; Aude Rault; Johanna Terrasson; Etienne Seigneur; Leanne De Koning; Elisabeth Hess; Alexia Savignoni; Paul Cottu; Jean-Yves Pierga; Sophie Piperno-Neumann; Manuel Rodrigues; Carole Bouleuc; Sylvie Dolbeault Journal: JMIR Res Protoc Date: 2022-01-12
Authors: Maureen Thodé; H Roeline W Pasman; Liesbeth M van Vliet; Olga C Damman; Johannes C F Ket; Anneke L Francke; Irene P Jongerden Journal: BMJ Support Palliat Care Date: 2020-10-05 Impact factor: 4.633