L E van Hoogdalem1, A Hoitsma2, R Timman3, R van der Zwart3, J Körnmann2, T van Rijssel2, J J V Busschbach3, S Y Ismail3. 1. Department of Psychiatry, Section Medical Psychology and Psychotherapy, Erasmus MC, University Medical Center Rotterdam, Rotterdam, The Netherlands. Electronic address: L.vanhoogdalem@erasmusmc.nl. 2. Department of Nephrology, Radboud University Nijmegen Medical Center, Nijmegen, The Netherlands. 3. Department of Psychiatry, Section Medical Psychology and Psychotherapy, Erasmus MC, University Medical Center Rotterdam, Rotterdam, The Netherlands.
Abstract
OBJECTIVES: This study examined whether kidney patients want to participate in decisions regarding the minimal acceptable quality of deceased donor kidneys. We also explored patients' opinions about the trade-off between a higher-quality organ with a longer waiting time vs a lower-quality organ with a shorter waiting time. METHODS: A questionnaire was distributed among kidney patients. Additionally, a sub-sample of these patients participated in in-depth interviews, which were analyzed using the grounded theory approach. RESULTS: Sixty-three percent of the patients wished to participate in decisions concerning the quality of a deceased donor kidney. The majority of the respondents indicated that they prefer a kidney of good quality and would therefore accept a longer waiting time. Responses to the qualitative interviews illustrated a more balanced choice regarding this trade-off. CONCLUSIONS: Many patients wish to be involved in deciding on the quality of the kidney, but it may evoke the experience of decisional conflicts when they have to make rational trade-offs between the desire for the best kidney at the expense of a longer waiting time.
OBJECTIVES: This study examined whether kidney patients want to participate in decisions regarding the minimal acceptable quality of deceased donor kidneys. We also explored patients' opinions about the trade-off between a higher-quality organ with a longer waiting time vs a lower-quality organ with a shorter waiting time. METHODS: A questionnaire was distributed among kidney patients. Additionally, a sub-sample of these patients participated in in-depth interviews, which were analyzed using the grounded theory approach. RESULTS: Sixty-three percent of the patients wished to participate in decisions concerning the quality of a deceased donor kidney. The majority of the respondents indicated that they prefer a kidney of good quality and would therefore accept a longer waiting time. Responses to the qualitative interviews illustrated a more balanced choice regarding this trade-off. CONCLUSIONS: Many patients wish to be involved in deciding on the quality of the kidney, but it may evoke the experience of decisional conflicts when they have to make rational trade-offs between the desire for the best kidney at the expense of a longer waiting time.
Authors: Katja Kloss; Sohal Ismail; Steef Redeker; Lothar van Hoogdalem; Annemarie Luchtenburg; Jan J V Busschbach; Jacqueline van de Wetering Journal: BMJ Open Date: 2019-09-26 Impact factor: 2.692
Authors: Alessandra Agnese Grossi; Federico Nicoli; Tullia Maria De Feo; Massimo Cardillo; Gabriella Biffa; Renzo Pegoraro; Carlo Petrini; Rosanna Torelli; Francesca Puoti; Giuseppe Rossini; Giuseppe Piccolo; Sergio Vesconi; Enrico Minetti; Barbara Pozzo; Giuseppe Vanacore; David Paredes; Paolo Antonio Grossi; Mario Picozzi Journal: Transplant Direct Date: 2021-10-22