Literature DB >> 30559252

Unique role of rheumatology in establishing collaborative relationships in research. Past, present and future of patient engagement.

Maarten de Wit1, Adewale Adebajo2.   

Abstract

The specialty of rheumatology takes care of people with disabling and long-term musculoskeletal conditions. For these patients, good healthcare requires the establishment of a sustainable partnership with healthcare professionals. For over two decades, rheumatology has been a frontrunner in piloting and implementing new kinds of partnerships in scientific research. In this viewpoint paper, we provide evidence for the leading role of rheumatology in developing strategies for engaging patients in research agenda setting, outcome research, developing treatment recommendations, assessing grant applications, conducting patient-centred research and transferring knowledge from research into practice. Experiences and lessons learnt in rheumatology are regularly published and are currently widely adapted and implemented in other specialties and research contexts. Challenges still exist and it is expected that rheumatology, as a leading discipline in this field, may further enhance our knowledge, expertise and understanding of the conditions for relational empowerment and meaningful patient involvement. © Author(s) (or their employer(s)) 2019. No commercial re-use. See rights and permissions. Published by BMJ.

Entities:  

Keywords:  Patient Research Partner; coauthorship; patient involvement; rheumatology

Mesh:

Year:  2018        PMID: 30559252     DOI: 10.1136/annrheumdis-2018-214387

Source DB:  PubMed          Journal:  Ann Rheum Dis        ISSN: 0003-4967            Impact factor:   19.103


  3 in total

1.  Identifying potential barriers and solutions to patient partner compensation (payment) in research.

Authors:  Dawn P Richards; Kelly D Cobey; Laurie Proulx; Shoba Dawson; Maarten de Wit; Karine Toupin-April
Journal:  Res Involv Engagem       Date:  2022-02-23

2.  Unmet need for patient involvement in rheumatology registries and observational studies: a mixed methods study.

Authors:  Paul Studenic; Mandeep Sekhon; Loreto Carmona; Maarten de Wit; Elena Nikiphorou
Journal:  RMD Open       Date:  2022-08

3.  Factors associated with self-reported capacity to walk, jog and run in individuals with systemic lupus erythematosus.

Authors:  Gizem İrem Kinikli; Susanne Pettersson; Sevilay Karahan; Iva Gunnarsson; Elisabet Svenungsson; Carina Boström
Journal:  Arch Rheumatol       Date:  2020-12-10       Impact factor: 1.472

  3 in total

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