Literature DB >> 30550076

Decisional Needs Assessment to Help Patients with Advanced Chronic Kidney Disease Make Better Dialysis Choices.

Marie-Chantal Loiselle1, Cécile Michaud2, Annette O'Connor3.   

Abstract

Patients with advanced chronic kidney disease (CKD) face many choices regarding future dialysis modalities. Decision-making is difficult for patients. The objective of this study was to describe the decision-making needs from the perspectives of patients with advanced CKD, professionals, and others involved in the decision. Guided by a shared decision-making model, this qualitative study was conducted using interviews with key informants (17 patients, two peer helpers, and eight health professionals) and a focus group (five nurses). The results revealed evolving decisional needs in five-stage through the decision making journey: 1) Progress toward acceptance of dialysis, 2) Receive information, 3) Take some time for personal reflection, 4) Seek opinion and support of other, and 5) Re-evaluate one's choice. As we anticipate decisional needs, we will be able to develop decision support interventions that are stage-matched. Copyright© by the American Nephrology Nurses Association.

Entities:  

Keywords:  advanced chronic kidney disease; dialysis modality choice; need assessment; shared decision making

Mesh:

Year:  2016        PMID: 30550076

Source DB:  PubMed          Journal:  Nephrol Nurs J        ISSN: 1526-744X            Impact factor:   0.959


  9 in total

1.  Evaluation of a shared decision-making intervention for dialysis choice at four Danish hospitals: a qualitative study of patient perspective.

Authors:  Jeanette Finderup; Jens Dam Jensen; Kirsten Lomborg
Journal:  BMJ Open       Date:  2019-10-18       Impact factor: 2.692

Review 2.  Discussions during shared decision-making in older adults with advanced renal disease: a scoping review.

Authors:  Rajesh Raj; Srivathsan Thiruvengadam; Kiran Deep Kaur Ahuja; Mai Frandsen; Matthew Jose
Journal:  BMJ Open       Date:  2019-11-24       Impact factor: 2.692

3.  What older adults and their caregivers need for making better health-related decisions at home: a participatory mixed methods protocol.

Authors:  Claudia Lai; Paul Holyoke; Karine V Plourde; Simon Décary; France Légaré
Journal:  BMJ Open       Date:  2020-11-09       Impact factor: 2.692

4.  Person centred care provision and care planning in chronic kidney disease: which outcomes matter? A systematic review and thematic synthesis of qualitative studies : Care planning in CKD: which outcomes matter?

Authors:  Ype de Jong; Esmee M van der Willik; Jet Milders; Yvette Meuleman; Rachael L Morton; Friedo W Dekker; Merel van Diepen
Journal:  BMC Nephrol       Date:  2021-09-13       Impact factor: 2.388

5.  Patient, Caregiver, and Provider Perspectives on Improving Information Delivery in Hemodialysis: A Qualitative Study.

Authors:  Priscila Ferreira da Silva; Melanie D Talson; Juli Finlay; Krista Rossum; Kaytlynn V Soroka; Michael McCormick; Arlene Desjarlais; Hans Vorster; George Fontaine; Rachelle Sass; Matthew James; Manish M Sood; Allison Tong; Neesh Pannu; Karthik Tennankore; Stephanie Thompson; Marcello Tonelli; Clara Bohm
Journal:  Can J Kidney Health Dis       Date:  2021-10-26

6.  Patient perspectives on chronic kidney disease and decision-making about treatment. Discourse of participants in the French CKD-REIN cohort study.

Authors:  Lucile Montalescot; Géraldine Dorard; Elodie Speyer; Karine Legrand; Carole Ayav; Christian Combe; Bénédicte Stengel; Aurélie Untas
Journal:  J Nephrol       Date:  2022-06-13       Impact factor: 4.393

7.  Home care providers' perceptions of shared decision-making with older clients (and their caregivers): A cross-sectional study.

Authors:  Claudia Lai; Paul Holyoke; Karine V Plourde; Lily Yeung; France Légaré
Journal:  Nurs Health Sci       Date:  2022-05-13       Impact factor: 2.214

8.  Patient-Reported Outcome Dashboards Within the Electronic Health Record to Support Shared Decision-making: Protocol for Co-design and Clinical Evaluation With Patients With Advanced Cancer and Chronic Kidney Disease.

Authors:  Laura M Perry; Victoria Morken; John D Peipert; Betina Yanez; Sofia F Garcia; Cynthia Barnard; Lisa R Hirschhorn; Jeffrey A Linder; Neil Jordan; Ronald T Ackermann; Alexandra Harris; Sheetal Kircher; Nisha Mohindra; Vikram Aggarwal; Rebecca Frazier; Ava Coughlin; Katy Bedjeti; Melissa Weitzel; Eugene C Nelson; Glyn Elwyn; Aricca D Van Citters; Mary O'Connor; David Cella
Journal:  JMIR Res Protoc       Date:  2022-09-21

9.  Factors promoting shared decision-making in renal replacement therapy for patients with end-stage kidney disease: systematic review and qualitative meta-synthesis.

Authors:  Yu Shi; Wang Li; Fangjian Duan; Shi Pu; Hongmei Peng; Mei Ha; Yu Luo
Journal:  Int Urol Nephrol       Date:  2021-06-22       Impact factor: 2.370

  9 in total

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