Elise Kvalsund Bårdsgjerde1, Marit Kvangarsnes1,2, Bodil Landstad3,4, Magne Nylenna5,6, Torstein Hole7,8. 1. Department of Health Sciences in Ålesund, Faculty of Medicine and Health Sciences, Norwegian University of Science and Technology (NTNU), Ålesund, Norway. 2. Møre og Romsdal Hospital Trust, Ålesund, Norway. 3. Department of Health Sciences, Mid Sweden University, Sundsvall, Sweden. 4. Levanger Hospital, Nord-Trøndelag Hospital Trust, Levanger, Norway. 5. Institute of Health and Society, University of Oslo, Oslo, Norway. 6. Norwegian Institute of Public Health, Oslo, Norway. 7. Clinic of Medicine and Rehabilitation, Møre og Romsdal Hospital Trust, Ålesund, Norway. 8. Faculty of Medicine and Health Sciences, Norwegian University of Science and Technology (NTNU), Trondheim, Norway.
Abstract
AIM: To explore how patients in areas without local percutaneous coronary intervention (PCI) facilities experience patient participation in different phases of the myocardial infarction pathway. BACKGROUND: Acute treatment of myocardial infarction often involves PCI. In Norway, this treatment is centralized at certain hospitals; thus, patients often require long-distance transportation and experience frequent hospital transfers. Short hospital stays, transfers between hospitals and the patient's emotional state pose challenges to promoting patient participation. DESIGN: A qualitative design with a narrative approach. METHODS: Participants were recruited through purposive sampling. Eight men and two women were interviewed in 2016. FINDINGS: Four themes related to the patients' experiences at the beginning, middle and end of the pathway were identified: (a) Lack of verbal communication in the acute phase; (b) trust in healthcare professionals and treatment; (c) lack of participation and coordination at discharge; and (d) shared decision-making in rehabilitation. The findings showed how the patients moved from a low level of patient participation in the acute phase to a high level of patient participation in the rehabilitation phase. CONCLUSION: This is the first study to explore patient participation in different phases of the myocardial infarction pathway. We argue that individual plans for information and patient participation are important to improve patient involvement in an earlier stage of the pathway. Further research from a healthcare professional perspective can be valuable to understand this topic. IMPACT: This study gives new insight that can be valuable for healthcare professionals in implementing patient participation throughout the pathway.
AIM: To explore how patients in areas without local percutaneous coronary intervention (PCI) facilities experience patient participation in different phases of the myocardial infarction pathway. BACKGROUND: Acute treatment of myocardial infarction often involves PCI. In Norway, this treatment is centralized at certain hospitals; thus, patients often require long-distance transportation and experience frequent hospital transfers. Short hospital stays, transfers between hospitals and the patient's emotional state pose challenges to promoting patient participation. DESIGN: A qualitative design with a narrative approach. METHODS:Participants were recruited through purposive sampling. Eight men and two women were interviewed in 2016. FINDINGS: Four themes related to the patients' experiences at the beginning, middle and end of the pathway were identified: (a) Lack of verbal communication in the acute phase; (b) trust in healthcare professionals and treatment; (c) lack of participation and coordination at discharge; and (d) shared decision-making in rehabilitation. The findings showed how the patients moved from a low level of patient participation in the acute phase to a high level of patient participation in the rehabilitation phase. CONCLUSION: This is the first study to explore patient participation in different phases of the myocardial infarction pathway. We argue that individual plans for information and patient participation are important to improve patient involvement in an earlier stage of the pathway. Further research from a healthcare professional perspective can be valuable to understand this topic. IMPACT: This study gives new insight that can be valuable for healthcare professionals in implementing patient participation throughout the pathway.
Authors: Irene Valaker; Bengt Fridlund; Tore Wentzel-Larsen; Jan Erik Nordrehaug; Svein Rotevatn; Maj-Britt Råholm; Tone M Norekvål Journal: BMC Health Serv Res Date: 2020-01-31 Impact factor: 2.655