Literature DB >> 30511594

"Everyone Has a Role": Perspectives of Service Users With First-Episode Psychosis, Family Caregivers, Treatment Providers, and Policymakers on Responsibility for Supporting Individuals With Mental Health Problems.

Megan A Pope1,2, Gerald Jordan3, Shruthi Venkataraman2, Ashok K Malla1,2,4, Srividya N Iyer1,2,4.   

Abstract

Varying perceptions of who should be responsible for supporting individuals with mental health problems may contribute to their needs remaining unmet. A qualitative descriptive design was used to explore these perceptions among key stakeholders. Focus groups were conducted with 13 service users, 12 family members, and 18 treatment providers from an early psychosis intervention program in Montreal, Canada. Individual interviews were conducted with six mental health policy-/decision-makers. Participants across stakeholder groups assigned a range of responsibilities to individuals with mental health problems, stakeholders in these individuals' immediate and extended social networks (e.g., families), macro-level stakeholders with influence (e.g., government), and society as a whole. Perceived failings of the health care system and the need for greater sharing of roles and responsibilities also emerged as important themes. Our findings suggest that different stakeholders should collectively assume certain responsibilities and that systems-level failings may contribute to unmet needs for mental health support.

Entities:  

Keywords:  Canada; access to health care; adaptation; adolescents; agency; coping; empowerment; enduring; families; health; health care; mental health and illness; policy; policy analysis; power; psychosis; qualitative description; recovery; responsibility; schizophrenia; support needs; teamwork; young adults; youth

Mesh:

Year:  2018        PMID: 30511594     DOI: 10.1177/1049732318812422

Source DB:  PubMed          Journal:  Qual Health Res        ISSN: 1049-7323


  5 in total

Review 1.  The History of Coordinated Specialty Care for Early Intervention in Psychosis in the United States: A Review of Effectiveness, Implementation, and Fidelity.

Authors:  Halley Read; Brandon A Kohrt
Journal:  Community Ment Health J       Date:  2021-09-14

2.  Disengagement Processes Within an Early Intervention Service for First-Episode Psychosis: A Longitudinal, Qualitative, Multi-Perspective Study.

Authors:  Rachel Tindall; Magenta Simmons; Kelly Allott; Bridget Hamilton
Journal:  Front Psychiatry       Date:  2020-06-12       Impact factor: 4.157

3.  Whose responsibility? Part 1 of 2: A scale to assess how stakeholders apportion responsibilities for addressing the needs of persons with mental health problems.

Authors:  Srividya N Iyer; Megan Pope; Aarati Taksal; Greeshma Mohan; Thara Rangaswamy; Heleen Loohuis; Jai Shah; Ridha Joober; Norbert Schmitz; Howard C Margolese; Ramachandran Padmavati; Ashok Malla
Journal:  Int J Ment Health Syst       Date:  2022-01-10

4.  Sex: What Is the Big Deal? Exploring Individuals' with Intellectual Disabilities Experiences with Sex Education.

Authors:  Rachelle Hole; Leyton Schnellert; Gloria Cantle
Journal:  Qual Health Res       Date:  2021-12-20

5.  Whose responsibility? Part 2 of 2: views of patients, families, and clinicians about responsibilities for addressing the needs of persons with mental health problems in Chennai, India and Montreal, Canada.

Authors:  Srividya N Iyer; Ashok Malla; Megan Pope; Sally Mustafa; Greeshma Mohan; Thara Rangaswamy; Norbert Schmitz; Ridha Joober; Jai Shah; Howard C Margolese; Padmavati Ramachandran
Journal:  Int J Ment Health Syst       Date:  2022-01-10
  5 in total

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