Literature DB >> 30506017

Designing an mHealth application to bridge health disparities in Latina breast cancer survivors: a community-supported design approach.

Francisco Iacobelli1, Rachel F Adler1, Diana Buitrago2, Joanna Buscemi3,4, Marya E Corden2, Alejandra Perez-Tamayo5, Frank J Penedo2, Melinda Rodriguez1, Betina R Yanez2.   

Abstract

Latina breast cancer patients in the USA report significantly worse cancer-related symptom burden and health-related quality of life than non-Hispanic whites. However, health literacy (e.g. knowledge about cancer, coping skills and communication) has been found to improve quality of life. In this paper, we present a case study of the methodology used to design Mi Guía (My Guide), a mobile application that aims to improve symptom burden and health-related quality of life among Hispanic women who have completed active treatment for breast cancer by increasing their health literacy. We developed a community-supported approach to building the application, which involved: (1) eliciting feedback from community leaders such as support group organizers and facilitators who are bilingual in Spanish and English, prioritize patients' preferences and best interests and have a unique knowledge of the women and their needs;(2) conducting a formal evaluation of design principles based on previous interaction design research and user responses;(3) incorporating feedback from potential future users. In this paper, we discuss our methodology, and the challenges and benefits of this approach. We believe that future studies that aim to develop mobile technologies for underserved populations may benefit from a community-supported approach to design.

Entities:  

Keywords:  Hispanic; breast cancer; community design; eHealth; mHealth; mobile app

Year:  2018        PMID: 30506017      PMCID: PMC6258194          DOI: 10.1080/24735132.2018.1452871

Source DB:  PubMed          Journal:  Design Health (Abingdon)        ISSN: 2473-5132


  32 in total

Review 1.  Psychological morbidity and quality of life of ethnic minority patients with cancer: a systematic review and meta-analysis.

Authors:  Tim Luckett; David Goldstein; Phyllis N Butow; Val Gebski; Lynley J Aldridge; Joshua McGrane; Weng Ng; Madeleine T King
Journal:  Lancet Oncol       Date:  2011-10-11       Impact factor: 41.316

2.  A comparison of usability methods for testing interactive health technologies: methodological aspects and empirical evidence.

Authors:  Monique W M Jaspers
Journal:  Int J Med Inform       Date:  2008-11-29       Impact factor: 4.046

3.  Smartphone apps as a source of cancer information: changing trends in health information-seeking behavior.

Authors:  Ambarish Pandey; Sayeedul Hasan; Divyanshu Dubey; Sasmit Sarangi
Journal:  J Cancer Educ       Date:  2013-03       Impact factor: 2.037

4.  Methodological concerns related to response bias in migrant and seasonal farmworkers.

Authors:  Jemma Benson; Emma Garrison; Jonathan Dropkin; Paul L Jenkins
Journal:  Am J Ind Med       Date:  2016-08-03       Impact factor: 2.214

Review 5.  Internet interventions for improving psychological well-being in psycho-oncology: review and recommendations.

Authors:  Yan Leykin; Seema M Thekdi; Dianne M Shumay; Ricardo F Muñoz; Michelle Riba; Laura B Dunn
Journal:  Psychooncology       Date:  2011-05-24       Impact factor: 3.894

Review 6.  Breast cancer interventions serving US-based Latinas: current approaches and directions.

Authors:  Yamile Molina; Beti Thompson; Noah Espinoza; Rachel Ceballos
Journal:  Womens Health (Lond)       Date:  2013-07

Review 7.  Empirical studies on usability of mHealth apps: a systematic literature review.

Authors:  Belén Cruz Zapata; José Luis Fernández-Alemán; Ali Idri; Ambrosio Toval
Journal:  J Med Syst       Date:  2015-01-20       Impact factor: 4.460

8.  Rural eHealth nutrition education for limited-income families: an iterative and user-centered design approach.

Authors:  Nancy L Atkinson; Sandra L Saperstein; Sharon M Desmond; Robert S Gold; Amy S Billing; Jing Tian
Journal:  J Med Internet Res       Date:  2009-06-22       Impact factor: 5.428

9.  Design of an mHealth app for the self-management of adolescent type 1 diabetes: a pilot study.

Authors:  Joseph A Cafazzo; Mark Casselman; Nathaniel Hamming; Debra K Katzman; Mark R Palmert
Journal:  J Med Internet Res       Date:  2012-05-08       Impact factor: 5.428

10.  A smartphone-based pain management app for adolescents with cancer: establishing system requirements and a pain care algorithm based on literature review, interviews, and consensus.

Authors:  Lindsay A Jibb; Bonnie J Stevens; Paul C Nathan; Emily Seto; Joseph A Cafazzo; Jennifer N Stinson
Journal:  JMIR Res Protoc       Date:  2014-03-19
View more
  4 in total

1.  Rationale and usability findings of an e-health intervention to improve oral anticancer adherence among breast cancer survivors: The My Journey mindfulness study.

Authors:  Betina Yanez; Laura B Oswald; Alyssa N Van Denburg; Sharon H Baik; Katherine A Czech; Diana Buitrago; Carly Maletich; Katy Wortman; Frank J Penedo; David E Victorson
Journal:  Contemp Clin Trials Commun       Date:  2022-02-02

2.  Developing an mHealth App for Empowering Cancer Survivors With Disabilities: Co-design Study.

Authors:  Rachel F Adler; Paulina Morales; Jocelyn Sotelo; Susan Magasi
Journal:  JMIR Form Res       Date:  2022-07-26

3.  Mobilizing Breast Cancer Prevention Research Through Smartphone Apps: A Systematic Review of the Literature.

Authors:  Lauren C Houghton; Renata E Howland; Jasmine A McDonald
Journal:  Front Public Health       Date:  2019-11-06

4.  Optimizing Health Information Technologies for Symptom Management in Cancer Patients and Survivors: Usability Evaluation.

Authors:  Emily G Lattie; Michael Bass; Sofia F Garcia; Siobhan M Phillips; Patricia I Moreno; Ann Marie Flores; J D Smith; Denise Scholtens; Cynthia Barnard; Frank J Penedo; David Cella; Betina Yanez
Journal:  JMIR Form Res       Date:  2020-09-21
  4 in total

北京卡尤迪生物科技股份有限公司 © 2022-2023.