Carrie Anne Marshall1, Emily Nalder2, Heather Colquhoun3, Erica Lenton4, Melissa Hansen5, Deirdre R Dawson6, Karl Zabjek7, Carolina Bottari8. 1. a School of Occupational Therapy , Western University , London , ON , Canada. 2. b Department of Occupational Science and Occupational Therapy & Rehabilitation Sciences Institute , University of Toronto, March of Dimes Canada , Toronto , ON , Canada. 3. c Department of Occupational Science and Occupational Therapy , University of Toronto , Canada. 4. d Faculty Liaison & Instruction Librarian, Gerstein Library Science Information Centre , University of Toronto , Canada. 5. e Advance Concussion Clinic , Vancouver , British Columbia , Canada. 6. f Department of Occupational Science and Occupational Therapy, and Rehabilitation Sciences Institute , University of Toronto, Rotman Research Institute, Baycrest Health Sciences , Toronto , Canada. 7. g Rehabilitation Sciences Institute , University of Toronto , Canada. 8. h Occupational Therapy Program, School of Rehabilitation , Université de Montréal, Centre for Interdisciplinary Research in Rehabilitation of Greater Montreal , Montreal , Canada.
Abstract
PURPOSE: To capture the scope of literature exploring interventions for caregivers of aging persons with TBI. METHODS: A scoping review of peer reviewed literature was conducted in two phases. Phase I: Searching seven databases, two independent raters screened articles using a set of predetermined criteria. Included articles were reviewed, and categorized according to common themes. Phase II: Five stakeholders were engaged in a consultation. A content analysis was performed by extracting statements from each interview using an inductive strategy, and organizing each into themes. FINDINGS: A total of 11 articles were included in the final analysis. Inter-rater reliability was assessed at both the title and abstract search [98.8% agreement; k = 0.3425 (95% CI, .246 to .439), p < .05]; and the full-text review [83% agreement; k = 0.542 (95% CI, 0.340 to 0.745), p < .05] phases. Seven articles identified potential interventions, and four identified and evaluated an intervention. Interventions targeted subjective burden (n = 4) and objective burden (n = 4), with caregiver knowledge and skill development (n = 3) classified as a sub-category of objective burden. Stakeholders overwhelmingly emphasized the need for interventions to reduce objective burden. IMPLICATIONS: Included articles were primarily composed of levels six and seven evidence, suggesting that this literature is in an early stage of development. Future research should emphasize the development and evaluation of interventions to reduce objective burden.
PURPOSE: To capture the scope of literature exploring interventions for caregivers of aging persons with TBI. METHODS: A scoping review of peer reviewed literature was conducted in two phases. Phase I: Searching seven databases, two independent raters screened articles using a set of predetermined criteria. Included articles were reviewed, and categorized according to common themes. Phase II: Five stakeholders were engaged in a consultation. A content analysis was performed by extracting statements from each interview using an inductive strategy, and organizing each into themes. FINDINGS: A total of 11 articles were included in the final analysis. Inter-rater reliability was assessed at both the title and abstract search [98.8% agreement; k = 0.3425 (95% CI, .246 to .439), p < .05]; and the full-text review [83% agreement; k = 0.542 (95% CI, 0.340 to 0.745), p < .05] phases. Seven articles identified potential interventions, and four identified and evaluated an intervention. Interventions targeted subjective burden (n = 4) and objective burden (n = 4), with caregiver knowledge and skill development (n = 3) classified as a sub-category of objective burden. Stakeholders overwhelmingly emphasized the need for interventions to reduce objective burden. IMPLICATIONS: Included articles were primarily composed of levels six and seven evidence, suggesting that this literature is in an early stage of development. Future research should emphasize the development and evaluation of interventions to reduce objective burden.
Entities:
Keywords:
Brain injuries; caregivers; disabled persons; therapeutics; wounds and injuries