Samantha C Sodergren1, Olga Husson2, Gudrun E Rohde3,4, Iwona M Tomasewska5, Helen Griffiths6, Aya Pessing7, Noam Yarom8, Louise Hooker9, Amy Din1, Anne Sophie Darlington1. 1. School of Health Sciences, University of Southampton, Southampton, UK. 2. Institute of Cancer Research, London, UK. 3. Faculty of Health and Sport Sciences, University of Agder, Kristiansand, Norway. 4. Department of Clinical Research, Sorlandet Hospital, Kristiansand, Norway. 5. Department of Medical Education, Jagiellonian University Medical College, Krakow, Poland. 6. Oxford Children's Hospital, Oxford, UK. 7. Department of Oral & Maxillofacial Surgery, Sheba Medical Center, Tel-Hashomer, Israel. 8. Department of Oral Pathology and Oral Medicine, Tel-Aviv University, Tel-Aviv, Israel. 9. Teenage and Young Adult Cancer Service, University Hospital Southampton, Southampton, UK.
Abstract
OBJECTIVE: Health-related quality of life (HRQoL) concerns of adolescents and young adults (AYAs) aged 14-25 years were compared with those of older adults (26-60 years) with cancer. METHODS: AYAs and older adults receiving curative intent treatment or supportive palliative care for cancer were recruited from eight research centres across Europe. Participants used a rating scale to score the relevance and importance of a list of 77 issues covering 10 areas of HRQoL concern: symptoms; activity restrictions; social; emotional; body image; self-appraisals; outlook on life; lifestyle; treatment-related and life beyond treatment. RESULTS: HRQoL issues were reviewed by 33 AYAs and 25 older adults. Several issues were recognised as relevant and important across all age groups: symptoms, emotional impact, outlook on life, lifestyle and treatment-related. A number of issues were more relevant or important to AYAs including interrupted education, greater motivation to achieve academic goals, increased maturity, boredom, fertility and change in living situation. CONCLUSION: While there is overlap in several of the HRQoL concerns across the age span, it is important that HRQoL measures used with AYAs capture the diverse and unique psychosocial aspects of this developmental stage.
OBJECTIVE: Health-related quality of life (HRQoL) concerns of adolescents and young adults (AYAs) aged 14-25 years were compared with those of older adults (26-60 years) with cancer. METHODS: AYAs and older adults receiving curative intent treatment or supportive palliative care for cancer were recruited from eight research centres across Europe. Participants used a rating scale to score the relevance and importance of a list of 77 issues covering 10 areas of HRQoL concern: symptoms; activity restrictions; social; emotional; body image; self-appraisals; outlook on life; lifestyle; treatment-related and life beyond treatment. RESULTS: HRQoL issues were reviewed by 33 AYAs and 25 older adults. Several issues were recognised as relevant and important across all age groups: symptoms, emotional impact, outlook on life, lifestyle and treatment-related. A number of issues were more relevant or important to AYAs including interrupted education, greater motivation to achieve academic goals, increased maturity, boredom, fertility and change in living situation. CONCLUSION: While there is overlap in several of the HRQoL concerns across the age span, it is important that HRQoL measures used with AYAs capture the diverse and unique psychosocial aspects of this developmental stage.
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Authors: Maria Rothmund; Samantha Sodergren; Gudrun Rohde; Teresa de Rojas; Gloria Paratico; Giorgia Albini; Johanna Mur; Anne-Sophie Darlington; Alessandra Majorana; David Riedl Journal: Qual Life Res Date: 2022-09-24 Impact factor: 3.440
Authors: Dide den Hollander; Winette T A Van der Graaf; Marco Fiore; Bernd Kasper; Susanne Singer; Ingrid M E Desar; Olga Husson Journal: ESMO Open Date: 2020-10