Literature DB >> 30485209

Distress and psychosocial risk in families with newly diagnosed pediatric brain tumors.

Brandon G Rocque1, Alexandra Cutillo2, Kathrin Zimmerman1, Anastasia Arynchyna1, Susan Davies3, Wendy Landier4, Avi Madan-Swain4.   

Abstract

In BriefThe investigators administered surveys to parents whose children were hospitalized with a brain tumor. They learned that parents in this situation are highly distressed, and that families have multiple sources of stress when a child is hospitalized. The investigators used this information to improve the psychosocial supportive care provided at their hospital. In general, these findings have the potential to improve the patient's and family's experience with a new brain tumor by guiding teams to address family needs as well as the child's acute medical needs.

Entities:  

Keywords:  DT = Distress Thermometer; PAT = Psychosocial Assessment Tool 2.0; caregiver; distress; family; oncology; pediatric brain tumor treatment; psychosocial risk

Mesh:

Year:  2018        PMID: 30485209     DOI: 10.3171/2018.7.PEDS18297

Source DB:  PubMed          Journal:  J Neurosurg Pediatr        ISSN: 1933-0707            Impact factor:   2.375


  4 in total

1.  Healthcare provider utility ratings of a psychosocial screening summary: from diagnosis to 6 months.

Authors:  Leandra Desjardins; Laurel Etkin-Spigelman; Kelly Hancock; Joanna Chung; Wendy Shama; Denise Mills; Sarah Alexander; Maru Barrera
Journal:  Support Care Cancer       Date:  2019-07-10       Impact factor: 3.603

2.  Screening for caregiver psychosocial risk in children with medical complexity: a cross-sectional study.

Authors:  Rahul Verma; Yasna Mehdian; Neel Sheth; Kathy Netten; Jean Vinette; Ashley Edwards; Joanna Polyviou; Julia Orkin; Reshma Amin
Journal:  BMJ Paediatr Open       Date:  2020-07-27

3.  The Many Roles of the Rock: A Qualitative Inquiry into the Roles and Responsibilities of Fathers of Children with Brain Tumors.

Authors:  Jacob E Robinson; David Huskey; Jonathan Schwartz; Meaghann S Weaver
Journal:  Children (Basel)       Date:  2019-10-11

4.  Psychological Needs and Resources of the Staff in a Pediatric Neurosurgery Ward: A Phenomenological-Hermeneutic Study.

Authors:  Iacopo Lanini; Debora Tringali; Rosapia Lauro Grotto
Journal:  Front Psychol       Date:  2022-01-03
  4 in total

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