Literature DB >> 30470152

Family caregivers' involvement in decision-making processes regarding admission of persons with dementia to nursing homes.

Lill Sverresdatter Larsen1, Bodil Hansen Blix2, Torunn Hamran2.   

Abstract

The current Western health policy of ageing in place relies on a triad collaboration among patients, healthcare service providers and family caregivers. Such collaborations presuppose involvement in a vague juridical landscape. This article explores family caregivers' experiences with involvement in and influence on nursing home decision-making processes for persons with dementia. The data consist of 12 in-depth interviews with family caregivers. Using positioning theory, we demonstrate how family caregivers strive to balance their assumed duty to care for the person with their needs to care for themselves. Their involvement (or non-involvement) in the complex decision-making process is demonstrated through the following seven positions: (1) self-condemning determiner, (2) dominant, (3) proponent, (4) saluting, (5) pending, (6) prisoner, and (7) stooge. Furthermore, we discuss why expedient positions are more available for some individuals and the consequences of family caregivers' various positions on the healthcare policy aims of collaboration and equal healthcare services.

Entities:  

Keywords:  admission to nursing homes; decision-making processes; dementia; family caregivers; home-based care; involvement; positioning

Mesh:

Year:  2018        PMID: 30470152     DOI: 10.1177/1471301218814641

Source DB:  PubMed          Journal:  Dementia (London)        ISSN: 1471-3012


  3 in total

1.  Reimagining Family Involvement in Residential Long-Term Care.

Authors:  Joseph E Gaugler; Lauren L Mitchell
Journal:  J Am Med Dir Assoc       Date:  2021-12-29       Impact factor: 4.669

2.  Having a Parent with Early-Onset Dementia: A Qualitative Study of Young Adult Children.

Authors:  Hanne Groennestad; Wenche Malmedal
Journal:  Nurs Res Pract       Date:  2022-07-31

3.  Being sheltered from a demanding everyday life: experiences of the next of kin to people with dementia attending farm-based daycare.

Authors:  Liv Bjerknes Taranrød; Ingeborg Pedersen; Øyvind Kirkevold; Siren Eriksen
Journal:  Int J Qual Stud Health Well-being       Date:  2021-12
  3 in total

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