| Literature DB >> 30470152 |
Lill Sverresdatter Larsen1, Bodil Hansen Blix2, Torunn Hamran2.
Abstract
The current Western health policy of ageing in place relies on a triad collaboration among patients, healthcare service providers and family caregivers. Such collaborations presuppose involvement in a vague juridical landscape. This article explores family caregivers' experiences with involvement in and influence on nursing home decision-making processes for persons with dementia. The data consist of 12 in-depth interviews with family caregivers. Using positioning theory, we demonstrate how family caregivers strive to balance their assumed duty to care for the person with their needs to care for themselves. Their involvement (or non-involvement) in the complex decision-making process is demonstrated through the following seven positions: (1) self-condemning determiner, (2) dominant, (3) proponent, (4) saluting, (5) pending, (6) prisoner, and (7) stooge. Furthermore, we discuss why expedient positions are more available for some individuals and the consequences of family caregivers' various positions on the healthcare policy aims of collaboration and equal healthcare services.Entities:
Keywords: admission to nursing homes; decision-making processes; dementia; family caregivers; home-based care; involvement; positioning
Mesh:
Year: 2018 PMID: 30470152 DOI: 10.1177/1471301218814641
Source DB: PubMed Journal: Dementia (London) ISSN: 1471-3012