Literature DB >> 30457182

An invisible patient: Healthcare professionals' perspectives on caring for adolescents and young adults who have a sibling with cancer.

Marika Franklin1, Pandora Patterson2,3, Kimberley R Allison2, Amanda Rosso-Buckton4, Adam Walczak2.   

Abstract

The impact of a young person's cancer diagnosis extends to siblings, yet support services to address siblings' needs are limited. This study explores healthcare professionals' (HCPs') perspectives on engaging and supporting adolescent and young adult (AYA, 12-25 years) siblings of young cancer patients in hospital settings. Semi-structured interviews with nine HCPs explored participants' views on models of care, engagement and assessment of siblings, available services, barriers to care, and future directions. Participants understood the impact of cancer and need to support AYA siblings, but were unclear how these responsibilities fit in with existing models of care and clinical roles. Siblings' absence from hospitals complicated processes of engagement, assessment and provision of care, challenging some participants to engage siblings outside the clinical context. In the absence of direct contact, HCPs largely relied on patients and parents to report or refer siblings for care. Service and resource limitations further restricted the provision of support to siblings. Despite HCPs' recognition of the need to support siblings, their "invisibility," lack of standardised assessment and service constraints complicate the provision of care in hospital settings. Integrating hospital-based care with community services may better facilitate the engagement and support of AYA siblings.
© 2018 John Wiley & Sons Ltd.

Entities:  

Keywords:  adolescent and young adult; family engagement; family-centred care; healthcare professional; psychosocial; sibling

Mesh:

Year:  2018        PMID: 30457182     DOI: 10.1111/ecc.12970

Source DB:  PubMed          Journal:  Eur J Cancer Care (Engl)        ISSN: 0961-5423            Impact factor:   2.520


  3 in total

1.  Parents Caring for Children Diagnosed with a Blood Cancer from Infancy to Emerging Adulthood: A Life span Perspective.

Authors:  Amanda L Kastrinos; Carma L Bylund; Michaela D Mullis; Easton Wollney; Maria Sae-Hau; Elisa Weiss; Carla L Fisher
Journal:  J Adolesc Young Adult Oncol       Date:  2021-10-12       Impact factor: 1.757

2.  Hospital Support for Siblings of Children With Illness in Japan.

Authors:  Kazuteru Niinomi; Hajime Mihira; Ryota Ochiai; Akiko Misawa; Kuniyoshi Takigawa; Nagako Kashiki; Naoko Kakee; Hidemi Takata; Yasushi Ishida; Takashi Higaki
Journal:  Front Pediatr       Date:  2022-05-30       Impact factor: 3.569

3.  Adolescent siblings of children with cancer: a qualitative study from a salutogenic health promotion perspective.

Authors:  Birgit Løkkeberg; Ragnhild Sollesnes; Jorun Hestvik; Eva Langeland
Journal:  Int J Qual Stud Health Well-being       Date:  2020-12
  3 in total

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