Literature DB >> 30445621

Planning and implementing sexual orientation and gender identity data collection in electronic health records.

Chris Grasso1, Michal J McDowell2,3, Hilary Goldhammer4, Alex S Keuroghlian2,4,3.   

Abstract

Lesbian, gay, bisexual, transgender, and queer (LGBTQ) people experience significant health disparities across the life course and require health care that addresses their unique needs. Collecting information on the sexual orientation and gender identity (SO/GI) of patients and entering SO/GI data in electronic health records has been recommended by the Institute of Medicine, the Joint Commission, and the Health Resources and Services Administration as fundamental to improving access to and quality of care for LGBTQ people. Most healthcare organizations, however, have yet to implement a system to collect SO/GI data due to multiple barriers. This report addresses those concerns by presenting recommendations for planning and implementing high-quality SO/GI data collection in primary care and other health care practices based on current evidence and best practices developed by a federally qualified health center and leader in LGBTQ health care.

Entities:  

Mesh:

Year:  2019        PMID: 30445621      PMCID: PMC6657380          DOI: 10.1093/jamia/ocy137

Source DB:  PubMed          Journal:  J Am Med Inform Assoc        ISSN: 1067-5027            Impact factor:   4.497


  25 in total

1.  Influencing sceptical staff to become supporters of service improvement: a qualitative study of doctors' and managers' views.

Authors:  R Gollop; E Whitby; D Buchanan; D Ketley
Journal:  Qual Saf Health Care       Date:  2004-04

2.  Inclusion of Sexual Orientation and Gender Identity in Stage 3 Meaningful Use Guidelines: A Huge Step Forward for LGBT Health.

Authors:  Sean R Cahill; Kellan Baker; Madeline B Deutsch; Joanne Keatley; Harvey J Makadon
Journal:  LGBT Health       Date:  2015-12-24       Impact factor: 4.151

3.  A systematic review of social stress and mental health among transgender and gender non-conforming people in the United States.

Authors:  Sarah E Valentine; Jillian C Shipherd
Journal:  Clin Psychol Rev       Date:  2018-03-28

4.  Electronic health records and transgender patients--practical recommendations for the collection of gender identity data.

Authors:  Madeline B Deutsch; David Buchholz
Journal:  J Gen Intern Med       Date:  2015-01-06       Impact factor: 5.128

5.  The physical and mental health of lesbian, gay male, and bisexual (LGB) older adults: the role of key health indicators and risk and protective factors.

Authors:  Karen I Fredriksen-Goldsen; Charles A Emlet; Hyun-Jun Kim; Anna Muraco; Elena A Erosheva; Jayn Goldsen; Charles P Hoy-Ellis
Journal:  Gerontologist       Date:  2012-10-03

6.  Comparison of Health and Health Risk Factors Between Lesbian, Gay, and Bisexual Adults and Heterosexual Adults in the United States: Results From the National Health Interview Survey.

Authors:  Gilbert Gonzales; Julia Przedworski; Carrie Henning-Smith
Journal:  JAMA Intern Med       Date:  2016-09-01       Impact factor: 21.873

7.  The role of the champion in primary care change efforts: from the State Networks of Colorado Ambulatory Practices and Partners (SNOCAP).

Authors:  Eric K Shaw; Jenna Howard; David R West; Benjamin F Crabtree; Donald E Nease; Brandon Tutt; Paul A Nutting
Journal:  J Am Board Fam Med       Date:  2012 Sep-Oct       Impact factor: 2.657

8.  Monitoring the health of transgender and other gender minority populations: validity of natal sex and gender identity survey items in a U.S. national cohort of young adults.

Authors:  Sari L Reisner; Kerith J Conron; Laura Anatale Tardiff; Stephanie Jarvi; Allegra R Gordon; S Bryn Austin
Journal:  BMC Public Health       Date:  2014-11-26       Impact factor: 3.295

9.  Electronic medical records and the transgender patient: recommendations from the World Professional Association for Transgender Health EMR Working Group.

Authors:  Madeline B Deutsch; Jamison Green; JoAnne Keatley; Gal Mayer; Jennifer Hastings; Alexandra M Hall
Journal:  J Am Med Inform Assoc       Date:  2013-04-30       Impact factor: 4.497

10.  Do ask, do tell: high levels of acceptability by patients of routine collection of sexual orientation and gender identity data in four diverse American community health centers.

Authors:  Sean Cahill; Robbie Singal; Chris Grasso; Dana King; Kenneth Mayer; Kellan Baker; Harvey Makadon
Journal:  PLoS One       Date:  2014-09-08       Impact factor: 3.240

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  21 in total

1.  Bringing Cultural Competency to the EHR: Lessons Learned Providing Respectful, Quality Care to the LGBTQ Community.

Authors:  Aliasgar Z Chittalia; Heather L Marney; Spencer Tavares; Leyla Warsame; Arthur W Breese; Dawn L Fisher; Michael E Stoppie; D Coen; Kim A Zikowski; Andrea W Shapiro; David K Vawdrey
Journal:  AMIA Annu Symp Proc       Date:  2021-01-25

2.  A Blueprint for Planning and Implementing a Transgender Health Program.

Authors:  Anna M Morenz; Hilary Goldhammer; Cei A Lambert; Ruben Hopwood; Alex S Keuroghlian
Journal:  Ann Fam Med       Date:  2020-01       Impact factor: 5.166

3.  A digital health research platform for community engagement, recruitment, and retention of sexual and gender minority adults in a national longitudinal cohort study--The PRIDE Study.

Authors:  Mitchell R Lunn; Micah Lubensky; Carolyn Hunt; Annesa Flentje; Matthew R Capriotti; Chollada Sooksaman; Todd Harnett; Del Currie; Chris Neal; Juno Obedin-Maliver
Journal:  J Am Med Inform Assoc       Date:  2019-08-01       Impact factor: 4.497

4.  Count me in: using a patient portal to minimize implicit bias in clinical research recruitment.

Authors:  Vaishnavi Kannan; Kathleen E Wilkinson; Mereeja Varghese; Sarah Lynch-Medick; Duwayne L Willett; Teresa A Bosler; Ling Chu; Samantha I Gates; M E Blair Holbein; Mallory M Willett; Sharon C Reimold; Robert D Toto
Journal:  J Am Med Inform Assoc       Date:  2019-08-01       Impact factor: 4.497

5.  Required Sexual Orientation and Gender Identity Reporting by US Health Centers: First-Year Data.

Authors:  Chris Grasso; Hilary Goldhammer; Danielle Funk; Dana King; Sari L Reisner; Kenneth H Mayer; Alex S Keuroghlian
Journal:  Am J Public Health       Date:  2019-06-20       Impact factor: 9.308

Review 6.  An Equity Agenda for the Field of Health Care Quality Improvement.

Authors:  Margaret O'Kane; Shantanu Agrawal; Leah Binder; Victor Dzau; Tejal K Gandhi; Rachel Harrington; Kedar Mate; Paul McGann; David Meyers; Paul Rosen; Michelle Schreiber; Dan Schummers
Journal:  NAM Perspect       Date:  2021-09-15

7.  Overcoming technical and cultural challenges to delivering equitable care for LGBTQ+ individuals in a rural, underserved area.

Authors:  Heather L Marney; David K Vawdrey; Leyla Warsame; Spencer Tavares; Andrea Shapiro; Arthur Breese; Amy Brayford; Aliasgar Z Chittalia
Journal:  J Am Med Inform Assoc       Date:  2022-01-12       Impact factor: 4.497

8.  Disparities in Health Insurance Coverage and Access to Care for Children By Mother's Sexual Orientation.

Authors:  Gilbert Gonzales; Tara McKay; Christopher S Carpenter
Journal:  Matern Child Health J       Date:  2020-05

9.  "Sex Can Be a Great Medicine": Sexual Health in Oncology Care for Sexual and Gender Minority Cancer Patients.

Authors:  Charles Kamen; Mandi L Pratt-Chapman; Gwendolyn P Quinn
Journal:  Curr Sex Health Rep       Date:  2020-11-20

10.  Transgender and nonbinary individuals and ICT-driven information practices in response to transexclusionary healthcare systems: a qualitative study.

Authors:  Travis L Wagner; Vanessa L Kitzie; Valerie Lookingbill
Journal:  J Am Med Inform Assoc       Date:  2022-01-12       Impact factor: 4.497

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