Literature DB >> 30422754

The Potential of Information Technology to Navigate Caregiving Systems: Perspectives from Dementia Caregivers.

Nicole Ruggiano1, Ellen L Brown2, Shanae Shaw1, David Geldmacher3, Peter Clarke4, Vagelis Hristidis5, Jessica Bertram1.   

Abstract

Technologies designed to support caregivers of adults with Alzheimer's disease and related dementias (AD/RD) have been developing at an increasingly rapid pace. However, little remains known about caregivers' perspectives on how technologies can and should help them navigate larger service systems they interact with to engage in caregiving. This study involved in-depth interviews and a beta test of an AD/RD caregiver app to learn more about how they currently use technologies and how potential technological features and functions can best meet their needs. Thematic findings suggest a conceptual model for designing AD/RD caregiver technologies. The findings suggest that eHealth and individual technologies may not fully meet the needs of caregivers as they navigate the larger systems within which they provide care. Findings highlight the need to develop technologies for caregivers that are effective, easy to use, and more widely disseminated - especially for caregivers from disadvantaged backgrounds.

Entities:  

Keywords:  Dementia; caregiving; technology

Mesh:

Year:  2018        PMID: 30422754     DOI: 10.1080/01634372.2018.1546786

Source DB:  PubMed          Journal:  J Gerontol Soc Work        ISSN: 0163-4372


  7 in total

1.  Integration of Health Information Technology and Promotion of Personhood in Family-Centered Dementia Care: Intervention Trial.

Authors:  Ellen L Brown; Nicole Ruggiano; Lisa Roberts; Peter J Clarke; Debra Lee Davis; Marc Agronin; David S Geldmacher; Monica Strauss Hough; Mariateresa Teri H Muñoz; C Victoria Framil; Xin Yang
Journal:  Res Gerontol Nurs       Date:  2021-09-01       Impact factor: 1.643

2.  The Feasibility and Utility of a Personal Health Record for Persons With Dementia and Their Family Caregivers for Web-Based Care Coordination: Mixed Methods Study.

Authors:  Colleen M Peterson; Jude P Mikal; Hayley R McCarron; Jessica M Finlay; Lauren L Mitchell; Joseph E Gaugler
Journal:  JMIR Aging       Date:  2020-06-26

3.  How Caregivers of People With Dementia Search for Dementia-Specific Information on the Internet: Survey Study.

Authors:  Areti Efthymiou; Evridiki Papastavrou; Nicos Middleton; Artemis Markatou; Paraskevi Sakka
Journal:  JMIR Aging       Date:  2020-05-19

4.  Adapting the eHealth Literacy Scale for Carers of People With Chronic Diseases (eHeals-Carer) in a Sample of Greek and Cypriot Carers of People With Dementia: Reliability and Validation Study.

Authors:  Areti Efthymiou; Nicos Middleton; Evridiki Papastavrou; Andreas Charalambous
Journal:  J Med Internet Res       Date:  2019-11-28       Impact factor: 5.428

5.  The care capacity goals of family carers and the role of technology in achieving them.

Authors:  Myles Leslie; Robin Patricia Gray; Jacquie Eales; Janet Fast; Andrew Magnaye; Akram Khayatzadeh-Mahani
Journal:  BMC Geriatr       Date:  2020-02-27       Impact factor: 3.921

Review 6.  Smartphone applications for informal caregivers of chronically ill patients: a scoping review.

Authors:  Milena Guessi Margarido; Amika Shah; Emily Seto
Journal:  NPJ Digit Med       Date:  2022-03-21

Review 7.  mHealth Interventions to Support Caregivers of Older Adults: Equity-Focused Systematic Review.

Authors:  Anna Garnett; Melissa Northwood; Justine Ting; Ruheena Sangrar
Journal:  JMIR Aging       Date:  2022-07-08
  7 in total

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