Kei Ouchi1,2,3,4, Naomi George1,2, Anna C Revette5, Mohammad Adrian Hasdianda1,2, Lauren Fellion1,2, Audrey Reust1,2, Lynda H Powell6, Rebecca Sudore7, Jeremiah D Schuur1,2, Mara A Schonberg8, Edward Bernstein9,10, James A Tulsky4,11, Susan D Block3,4,10,11,12. 1. 1 Department of Emergency Medicine, Brigham and Women's Hospital , Boston, Massachusetts. 2. 2 Department of Emergency Medicine, Harvard Medical School , Boston, Massachusetts. 3. 3 Serious Illness Care Program, Ariadne Labs , Boston, Massachusetts. 4. 4 Department of Psychosocial Oncology and Palliative Care, Dana-Farber Cancer Institute , Boston, Massachusetts. 5. 5 Survey and Data Management Core for Qualitative and Quantitative Research, Dana-Farber Cancer Institute , Boston, Massachusetts. 6. 6 Department of Preventive Medicine, Rush Medical College , Chicago, Illinois. 7. 7 Department of Medicine, University of California , San Francisco, San Francisco, California. 8. 8 Department of Medicine, Beth Israel Deaconess Medical Center , Boston, Massachusetts. 9. 9 The Brief Negotiated Interview Active Referral to Treatment Institute, Boston University School of Public Health , Boston, Massachusetts. 10. 10 Department of Emergency Medicine, Boston University School of Medicine , Boston, Massachusetts. 11. 11 Division of Palliative Medicine, Department of Medicine, Brigham and Women's Hospital , Boston, Massachusetts. 12. 12 Department of Psychiatry, Brigham and Women's Hospital , Boston, Massachusetts.
Abstract
BACKGROUND: Most seriously ill older adults visit the emergency department (ED) near the end of life, yet no feasible method exists to empower them to formulate their care goals in this setting. OBJECTIVE: To develop an intervention to empower seriously ill older adults to formulate their future care goals in the ED. DESIGN: Prospective intervention development study. SETTING: In a single, urban, academic ED, we refined the prototype intervention with ED clinicians and patient advisors. We tested the intervention for its acceptability in English-speaking patients ≥65 years old with serious illness or patients whose treating ED clinician answered "No" to the "surprise question" ("would not be surprised if died in the next 12 months"). We excluded patients with advance directives or whose treating ED clinician determined the patient to be inappropriate. MEASUREMENTS: Our primary outcome was perceived acceptability of our intervention. Secondary outcomes included perceived main intent and stated attitude toward future care planning. RESULTS: We refined the intervention with 16 mock clinical encounters of ED clinicians and patient advisors. Then, we administered the refined intervention to 23 patients and conducted semistructured interviews afterward. Mean age of patients was 76 years, 65% were women, and 43% of patients had metastatic cancer. Most participants (n = 17) positively assessed our intervention, identified questions for their doctors, and reflected on how they feel about their future care. CONCLUSION: An intervention to empower seriously ill older adults to understand the importance of future care planning in the ED was developed, and they found it acceptable.
BACKGROUND: Most seriously ill older adults visit the emergency department (ED) near the end of life, yet no feasible method exists to empower them to formulate their care goals in this setting. OBJECTIVE: To develop an intervention to empower seriously ill older adults to formulate their future care goals in the ED. DESIGN: Prospective intervention development study. SETTING: In a single, urban, academic ED, we refined the prototype intervention with ED clinicians and patient advisors. We tested the intervention for its acceptability in English-speaking patients ≥65 years old with serious illness or patients whose treating ED clinician answered "No" to the "surprise question" ("would not be surprised if died in the next 12 months"). We excluded patients with advance directives or whose treating ED clinician determined the patient to be inappropriate. MEASUREMENTS: Our primary outcome was perceived acceptability of our intervention. Secondary outcomes included perceived main intent and stated attitude toward future care planning. RESULTS: We refined the intervention with 16 mock clinical encounters of ED clinicians and patient advisors. Then, we administered the refined intervention to 23 patients and conducted semistructured interviews afterward. Mean age of patients was 76 years, 65% were women, and 43% of patients had metastatic cancer. Most participants (n = 17) positively assessed our intervention, identified questions for their doctors, and reflected on how they feel about their future care. CONCLUSION: An intervention to empower seriously ill older adults to understand the importance of future care planning in the ED was developed, and they found it acceptable.
Entities:
Keywords:
advance care planning; behavioral intervention; emergency department
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