Literature DB >> 30412260

Survivorship care planning and implementation in neuro-oncology.

Heather Leeper1, Kathrin Milbury2.   

Abstract

Survivorship has become a significant topic within oncologic care. The tools and means by which the provision of survivorship care can be implemented and delivered are in development and are the focus of significant research oncology-wide. These tools and methods include innovations of survivorship care delivery, survivorship care plans, and improving communication among all stakeholders in an individual patient's care as the means to elevate health-related quality of life. The merits of these survivorship care provisions in the field of neuro-oncology and its patients' exigent need for more patient-centric care focused on living with their illness are discussed. Since 2014 there has been a mandate within the United States for adult cancer patients treated with curative intent to receive survivorship care plans, comprising a treatment summary and a follow-up plan, intended to facilitate patients' care after initial diagnosis and upfront treatment. Several cancer-specific survivorship care plans have been developed and endorsed by health care professional organizations and patient advocacy groups. A survivorship care plan specific for neuro-oncology has been collaboratively developed by a multidisciplinary and interprofessional committee; it is endorsed by the Society for Neuro-Oncology Guidelines Committee. It is available as open access for download from the Society for Neuro-Oncology website under "Resources": https://www.soc-neuro-onc.org/SNO/Resources/Survivorship_Care_Plan.aspx. Survivorship care offers an opportunity to begin directly addressing the range of issues patients navigate throughout their illness trajectory, an oncology initiative to which neuro-oncology patients both need and deserve equitable access.

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Mesh:

Year:  2018        PMID: 30412260      PMCID: PMC6225749          DOI: 10.1093/neuonc/noy110

Source DB:  PubMed          Journal:  Neuro Oncol        ISSN: 1522-8517            Impact factor:   12.300


  55 in total

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Journal:  J Neurooncol       Date:  1997-09       Impact factor: 4.130

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Review 3.  Childhood cancer survivor care: development of the Passport for Care.

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Review 4.  Determining priority signs and symptoms for use as clinical outcomes assessments in trials including patients with malignant gliomas: Panel 1 Report.

Authors:  Terri S Armstrong; Allison M Bishof; Paul D Brown; Martin Klein; Martin J B Taphoorn; Christina Theodore-Oklota
Journal:  Neuro Oncol       Date:  2016-03       Impact factor: 12.300

5.  Early rehabilitation after surgery improves functional outcome in inpatients with brain tumours.

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Journal:  J Neurooncol       Date:  2011-11-29       Impact factor: 4.130

6.  Quality of life and symptom burden in cancer patients admitted to an acute palliative care unit.

Authors:  Jennifer M Jones; S Robin Cohen; Camilla Zimmermann; Gary Rodin
Journal:  J Palliat Care       Date:  2010       Impact factor: 2.250

7.  Neurocognitive training in patients with high-grade glioma: a pilot study.

Authors:  Marco Ronald Hassler; Katarzyna Elandt; Matthias Preusser; Johann Lehrner; Petra Binder; Karin Dieckmann; Andrea Rottenfusser; Christine Marosi
Journal:  J Neurooncol       Date:  2009-09-10       Impact factor: 4.130

8.  Feasibility of a dyadic intervention for management of osteoarthritis: a pilot study with older patients and their spousal caregivers.

Authors:  L M Martire; R Schulz; F J Keefe; T W Starz; T A Osial; M A Dew; C F Reynolds
Journal:  Aging Ment Health       Date:  2003-01       Impact factor: 3.658

9.  Symptom clusters in patients with high-grade glioma.

Authors:  Sherry W Fox; Debra Lyon; Elana Farace
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10.  Living with a brain tumor : reaction profiles in patients and their caregivers.

Authors:  Alessandra Petruzzi; Claudia Yvonne Finocchiaro; Elena Lamperti; Andrea Salmaggi
Journal:  Support Care Cancer       Date:  2012-10-27       Impact factor: 3.603

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  6 in total

1.  The burden of a brain tumor: guiding patient centric care in neuro-oncology.

Authors:  Ashlee R Loughan; Morgan Reid; Kelcie D Willis; Alexandria Davies; Rachel L Boutté; Sarah Barrett; Karen Lo
Journal:  J Neurooncol       Date:  2022-04-08       Impact factor: 4.130

Review 2.  Proceedings of the Survivorship Care in Neuro-Oncology Workshop sponsored by the Comprehensive Oncology Network Evaluating Rare CNS Tumors (NCI-CONNECT).

Authors:  Heather E Leeper; Emily Tonorezos; Deborah Mayer; Marie Bakitas; Susan Chang; Mary E Cooley; Shawn Hervey-Jumper; Christine Miaskowski; Paula Sherwood; Christina Tsien; Kimberly Wallgren; Nicole Willmarth; David Arons; Alvina Acquaye; Amanda L King; Marta Penas-Prado; Elizabeth Vera; Mark R Gilbert; Terri S Armstrong
Journal:  Neurooncol Adv       Date:  2022-02-28

3.  Daily functioning in glioma survivors: associations with cognitive function, psychological factors and quality of life.

Authors:  Kathleen Van Dyk; Lucy Wall; Brandon F Heimberg; Justin Choi; Catalina Raymond; Chencai Wang; Albert Lai; Timothy F Cloughesy; Benjamin M Ellingson; Phioanh Nghiemphu
Journal:  CNS Oncol       Date:  2022-05-18

4.  Moving from clinician-defined to patient-reported outcome measures for survivors of high-grade glioma.

Authors:  Lena Rosenlund; Eskil Degsell; Asgeir Store Jakola
Journal:  Patient Relat Outcome Meas       Date:  2019-08-23

5.  Defining a patient-centered approach to cancer survivorship care: development of the patient centered survivorship care index (PC-SCI).

Authors:  K Holly Mead; Yan Wang; Sean Cleary; Hannah Arem; Mandi L Pratt-Chapman
Journal:  BMC Health Serv Res       Date:  2021-12-18       Impact factor: 2.655

Review 6.  Interdisciplinary Approaches to Survivorship with a Focus on the Low-grade and Benign Brain Tumor Populations.

Authors:  Stacey L Worrell; Michelle L Kirschner; Rhonna S Shatz; Soma Sengupta; Melissa G Erickson
Journal:  Curr Oncol Rep       Date:  2021-01-20       Impact factor: 5.075

  6 in total

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