Literature DB >> 30394789

Building Bridges Through Collaboration and Consensus: Expanding Awareness and Use of Peer Support and Peer Support Communities Among People With Diabetes, Caregivers, and Health Care Providers.

Hope Warshaw1,2, David Edelman2,3.   

Abstract

Diabetes, regardless of type, is a complex disease. Successful management to achieve both short- and long-term health goals and outcomes is highly dependent on learning, mastery, and regular implementation and execution of self-care behaviors. The importance of a positive mental outlook and minimization of psychosocial barriers to care is increasingly identified as important in managing the whole person with diabetes and, as appropriate, the caregivers. Ongoing support from HCP and increasingly ongoing support from peers are critical elements of quality diabetes care. With the availability of virtually accessible technologies for social media and networking, the volume of peer support among people with diabetes and their caregivers has increased exponentially and will likely continue to do so. With the value of ongoing peer support recognized as an important element in diabetes health, a growing number of peer support communities and increasing engagement in these communities among some diabetes educators, the American Association of Diabetes Educators (AADE) embarked on an initiative to more formally work with diabetes peer support communities and their leaders. To initiate this effort AADE held and supported a consensus meeting in 2017. This article reviews the history and goals of this effort and details the meeting outcomes. It also discusses the collaborations completed since the initial meeting along with plans for the near future. This collaboration is unique and presents a model for similar endeavors in diabetes or other chronic diseases.

Entities:  

Keywords:  diabetes online community; diabetes self-management education and support (DSMES); peer support; peer support communities; people with diabetes and their caregivers

Mesh:

Year:  2018        PMID: 30394789      PMCID: PMC6399793          DOI: 10.1177/1932296818807689

Source DB:  PubMed          Journal:  J Diabetes Sci Technol        ISSN: 1932-2968


  11 in total

1.  Diabetes Self-management Education and Support in Type 2 Diabetes: A Joint Position Statement of the American Diabetes Association, the American Association of Diabetes Educators, and the Academy of Nutrition and Dietetics.

Authors:  Margaret A Powers; Joan Bardsley; Marjorie Cypress; Paulina Duker; Martha M Funnell; Amy Hess Fischl; Melinda D Maryniuk; Linda Siminerio; Eva Vivian
Journal:  Diabetes Care       Date:  2015-06-05       Impact factor: 19.112

Review 2.  2017 National Standards for Diabetes Self-Management Education and Support.

Authors:  Joni Beck; Deborah A Greenwood; Lori Blanton; Sandra T Bollinger; Marcene K Butcher; Jo Ellen Condon; Marjorie Cypress; Priscilla Faulkner; Amy Hess Fischl; Theresa Francis; Leslie E Kolb; Jodi M Lavin-Tompkins; Janice MacLeod; Melinda Maryniuk; Carolé Mensing; Eric A Orzeck; David D Pope; Jodi L Pulizzi; Ardis A Reed; Andrew S Rhinehart; Linda Siminerio; Jing Wang
Journal:  Diabetes Care       Date:  2017-07-28       Impact factor: 19.112

Review 3.  What is the effect of peer support on diabetes outcomes in adults? A systematic review.

Authors:  J R Dale; S M Williams; V Bowyer
Journal:  Diabet Med       Date:  2012-11       Impact factor: 4.359

4.  The diabetes online community: Older adults supporting self-care through peer health.

Authors:  Michelle L Litchman; Erin Rothwell; Linda S Edelman
Journal:  Patient Educ Couns       Date:  2017-09-06

5.  The Use of Language in Diabetes Care and Education.

Authors:  Jane K Dickinson; Susan J Guzman; Melinda D Maryniuk; Catherine A O'Brian; Jane K Kadohiro; Richard A Jackson; Nancy D'Hondt; Brenda Montgomery; Kelly L Close; Martha M Funnell
Journal:  Diabetes Educ       Date:  2017-10-17       Impact factor: 2.140

Review 6.  Peer support of complex health behaviors in prevention and disease management with special reference to diabetes: systematic reviews.

Authors:  Edwin B Fisher; Renée I Boothroyd; Emily A Elstad; Laura Hays; Amy Henes; Gary R Maslow; Clayton Velicer
Journal:  Clin Diabetes Endocrinol       Date:  2017-05-25

Review 7.  The emerging diabetes online community.

Authors:  Marisa E Hilliard; Kerri M Sparling; Jeff Hitchcock; Tamara K Oser; Korey K Hood
Journal:  Curr Diabetes Rev       Date:  2015

8.  Patient Participation at Health Care Conferences: Engaged Patients Increase Information Flow, Expand Propagation, and Deepen Engagement in the Conversation of Tweets Compared to Physicians or Researchers.

Authors:  Audun Utengen; Dara Rouholiman; Jamison G Gamble; Francisco Jose Grajales; Nisha Pradhan; Alicia C Staley; Liza Bernstein; Sean D Young; Kevin A Clauson; Larry F Chu
Journal:  J Med Internet Res       Date:  2017-08-17       Impact factor: 5.428

9.  Effect of Diabetes Online Community Engagement on Health Indicators: Cross-Sectional Study.

Authors:  Michelle L Litchman; Linda S Edelman; Gary W Donaldson
Journal:  JMIR Diabetes       Date:  2018-04-24

10.  A Novel Approach to Identifying Barriers and Facilitators in Raising a Child With Type 1 Diabetes: Qualitative Analysis of Caregiver Blogs.

Authors:  Tamara K Oser; Sean M Oser; Erin L McGinley; Heather L Stuckey
Journal:  JMIR Diabetes       Date:  2017-10-26
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  4 in total

Review 1.  State of the Science: A Scoping Review and Gap Analysis of Diabetes Online Communities.

Authors:  Michelle L Litchman; Heather R Walker; Ashley H Ng; Sarah E Wawrzynski; Sean M Oser; Deborah A Greenwood; Perry M Gee; Mellanye Lackey; Tamara K Oser
Journal:  J Diabetes Sci Technol       Date:  2019-03-10

2.  Development of the Intercultural Diabetes Online Community Research Council: Codesign and Social Media Processes.

Authors:  Deborah A Greenwood; Michelle L Litchman; Ashley H Ng; Perry M Gee; Heather M Young; Mila Ferrer; Jimmy Ferrer; Chris E Memering; Barbara Eichorst; Renza Scibilia; Lisa M S Miller
Journal:  J Diabetes Sci Technol       Date:  2019-01-07

Review 3.  A systematic review of systematic reviews of needs of family caregivers of older adults with dementia.

Authors:  Oladele Atoyebi; Janice J Eng; François Routhier; Marie-Louise Bird; W Ben Mortenson
Journal:  Eur J Ageing       Date:  2022-01-13

Review 4.  Social Media in the Diabetes Community: a Novel Way to Assess Psychosocial Needs in People with Diabetes and Their Caregivers.

Authors:  Tamara K Oser; Sean M Oser; Jessica A Parascando; Danielle Hessler-Jones; Christopher N Sciamanna; Kerri Sparling; Donald Nease; Michelle L Litchman
Journal:  Curr Diab Rep       Date:  2020-02-20       Impact factor: 4.810

  4 in total

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