Literature DB >> 30373457

Reflections on PPI from the 'Action on Living Well: Asking You' advisory network of people with dementia and carers as part of the IDEAL study.

Rachael Litherland1, Julia Burton2, Monica Cheeseman2, Dianne Campbell2, Maureen Hawkins2, Tom Hawkins2, Keith Oliver2, David Scott2, Jane Ward2, Sharon M Nelis3, Catherine Quinn3, Christina Victor4, Linda Clare5.   

Abstract

This article describes the work of the 'Action on Living Well: Asking You' group - an involvement group of people with dementia and carers attached to the IDEAL research study. The article describes the work of the group, the methods that have helped them to stay involved and people's perspectives on their experiences of being involved and the impact it has had, for themselves and others. The article has been written following a reflective piece of work with the 'Action on Living Well: Asking You' group to review and remember the work of the past four years. An accompanying film brings to life the work and activities of the group, available at www.idealproject.org.uk/mclass/.

Entities:  

Keywords:  carer; co-production; dementia; patient and public involvement; research design

Mesh:

Year:  2018        PMID: 30373457     DOI: 10.1177/1471301218789309

Source DB:  PubMed          Journal:  Dementia (London)        ISSN: 1471-3012


  7 in total

1.  "Living Well" Trajectories Among Family Caregivers of People With Mild-to-Moderate Dementia in the IDEAL Cohort.

Authors:  Linda Clare; Laura D Gamble; Anthony Martyr; Serena Sabatini; Sharon M Nelis; Catherine Quinn; Claire Pentecost; Christina Victor; Roy W Jones; Ian R Jones; Martin Knapp; Rachael Litherland; Robin G Morris; Jennifer M Rusted; Jeanette M Thom; Rachel Collins; Catherine Henderson; Fiona E Matthews
Journal:  J Gerontol B Psychol Sci Soc Sci       Date:  2022-10-06       Impact factor: 4.942

Review 2.  Partnering with frail or seriously ill patients in research: a systematic review.

Authors:  Claire Ludwig; Ian D Graham; Wendy Gifford; Josee Lavoie; Dawn Stacey
Journal:  Res Involv Engagem       Date:  2020-09-11

3.  Embedding patient and public involvement: Managing tacit and explicit expectations.

Authors:  Fiona Poland; Georgina Charlesworth; Phuong Leung; Linda Birt
Journal:  Health Expect       Date:  2019-09-20       Impact factor: 3.377

Review 4.  Ethical considerations for engaging frail and seriously ill patients as partners in research: sub-analysis of a systematic review.

Authors:  Claire Ludwig; Ian D Graham; Josee Lavoie; Wendy Gifford; Dawn Stacey
Journal:  Res Involv Engagem       Date:  2021-01-31

5.  Effects of social restrictions on people with dementia and carers during the pre-vaccine phase of the COVID-19 pandemic: Experiences of IDEAL cohort participants.

Authors:  Claire Pentecost; Rachel Collins; Sally Stapley; Christina Victor; Catherine Quinn; Alexandra Hillman; Rachael Litherland; Louise Allan; Linda Clare
Journal:  Health Soc Care Community       Date:  2022-06-13

6.  Limited receipt of support services among people with mild-to-moderate dementia: Findings from the IDEAL cohort.

Authors:  Jayden O van Horik; Rachel Collins; Anthony Martyr; Catherine Henderson; Roy W Jones; Martin Knapp; Catherine Quinn; Jeanette M Thom; Christina Victor; Linda Clare
Journal:  Int J Geriatr Psychiatry       Date:  2022-03       Impact factor: 3.850

7.  Adding to the knowledge on Patient and Public Involvement: Reflections from an experience of co-research with carers of people with dementia.

Authors:  Claudio Di Lorito; Maureen Godfrey; Marianne Dunlop; Alessandro Bosco; Kristian Pollock; Veronika van der Wardt; Rowan H Harwood
Journal:  Health Expect       Date:  2020-03-17       Impact factor: 3.377

  7 in total

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