Literature DB >> 30345210

Developing and Testing an Intervention to Reduce Distress in Mothers of Adolescents with Type 1 Diabetes.

Sarah S Jaser1, Jadienne H Lord1, Kimberly Savin1, Meredith Gruhn1, Tamara Rumburg1.   

Abstract

OBJECTIVES: To develop and pilot test a program to meet the needs of mothers of adolescents with type 1 diabetes (T1D) and improve outcomes in adolescents with type 1 diabetes.
METHODS: We conducted focus groups with mothers of adolescents to identify needs and develop a cognitive behavioral intervention aimed at reducing maternal distress, improving parenting practices, and reducing family conflict. This intervention was pilot tested in a randomized trial; mothers were randomized to either the Coping & Communication (N=15) intervention or Usual Care (N=15). Mothers and adolescents completed questionnaires measuring distress, parenting, and family conflict pre- and post-intervention, and HbA1c values were obtained from adolescents' medical records pre- and post-intervention.
RESULTS: Intervention materials (Communication & Coping) received high scores on health literacy and engagement. There was a significant Time × Group interaction for maternal diabetes distress, family conflict (as reported by both mothers and adolescents) and adolescent quality of life. Mothers and adolescents randomized to the intervention group reported significant improvements on these factors as compared to those randomized to usual care.
CONCLUSIONS: The Communication & Coping program was developed by adapting existing interventions proven to reduce depressive symptoms and improve parenting practices to address the specific needs of mothers of adolescents with T1D. The program shows promise for not only reducing distress in mothers, but also for improving adolescent outcomes, possibly through reductions in family conflict.

Entities:  

Keywords:  adolescence; intervention development; parenting stress; qualitative methods; type 1 diabetes

Year:  2017        PMID: 30345210      PMCID: PMC6193460          DOI: 10.1037/cpp0000220

Source DB:  PubMed          Journal:  Clin Pract Pediatr Psychol        ISSN: 2169-4826


  38 in total

1.  Coping and parenting: Mediators of 12-month outcomes of a family group cognitive-behavioral preventive intervention with families of depressed parents.

Authors:  Bruce E Compas; Jennifer E Champion; Rex Forehand; David A Cole; Kristen L Reeslund; Jessica Fear; Emily J Hardcastle; Gary Keller; Aaron Rakow; Emily Garai; Mary Jane Merchant; Lorinda Roberts
Journal:  J Consult Clin Psychol       Date:  2010-10

Review 2.  Parenting stress among caregivers of children with chronic illness: a systematic review.

Authors:  Melissa K Cousino; Rebecca A Hazen
Journal:  J Pediatr Psychol       Date:  2013-07-10

3.  Current state of type 1 diabetes treatment in the U.S.: updated data from the T1D Exchange clinic registry.

Authors:  Kellee M Miller; Nicole C Foster; Roy W Beck; Richard M Bergenstal; Stephanie N DuBose; Linda A DiMeglio; David M Maahs; William V Tamborlane
Journal:  Diabetes Care       Date:  2015-06       Impact factor: 19.112

4.  Updated and revised Diabetes Family Conflict Scale.

Authors:  Korey K Hood; Deborah A Butler; Barbara J Anderson; Lori M B Laffel
Journal:  Diabetes Care       Date:  2007-03-19       Impact factor: 19.112

5.  The PHQ-9: validity of a brief depression severity measure.

Authors:  K Kroenke; R L Spitzer; J B Williams
Journal:  J Gen Intern Med       Date:  2001-09       Impact factor: 5.128

6.  Mediators of depressive symptoms in children with type 1 diabetes and their mothers.

Authors:  Sarah S Jaser; Robin Whittemore; Jodie M Ambrosino; Evie Lindemann; Margaret Grey
Journal:  J Pediatr Psychol       Date:  2007-11-08

7.  Psychosocial burden and glycemic control during the first 6 years of diabetes: results from the SEARCH for Diabetes in Youth study.

Authors:  Korey K Hood; Daniel P Beavers; Joyce Yi-Frazier; Ronny Bell; Dana Dabelea; Robert E Mckeown; Jean M Lawrence
Journal:  J Adolesc Health       Date:  2014-05-10       Impact factor: 5.012

8.  Coping and psychological distress in mothers of adolescents with type 1 diabetes.

Authors:  Sarah S Jaser; Rebecca Linsky; Margaret Grey
Journal:  Matern Child Health J       Date:  2014-01

9.  Collaborative involvement of primary and secondary caregivers: associations with youths' diabetes outcomes.

Authors:  Tim Wysocki; Tonja R Nansel; Grayson N Holmbeck; Rusan Chen; Lori Laffel; Barbara J Anderson; Jill Weissberg-Benchell
Journal:  J Pediatr Psychol       Date:  2008-12-26

10.  When is diabetes distress clinically meaningful?: establishing cut points for the Diabetes Distress Scale.

Authors:  Lawrence Fisher; Danielle M Hessler; William H Polonsky; Joseph Mullan
Journal:  Diabetes Care       Date:  2012-01-06       Impact factor: 19.112

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  3 in total

Review 1.  How Do the Challenges of Emerging Adulthood Inform our Understanding of Diabetes Distress? An Integrative Review.

Authors:  Katherine Wentzell; Judith A Vessey; Lori M B Laffel
Journal:  Curr Diab Rep       Date:  2020-04-23       Impact factor: 4.810

2.  A Nonrandomized Pilot of a Group, Video-Based Telehealth Intervention to Reduce Diabetes Distress in Parents of Youth With Type 1 Diabetes Mellitus.

Authors:  Susana R Patton; Alexandra D Monzon; Arwen M Marker; Mark A Clements
Journal:  Can J Diabetes       Date:  2021-11-03       Impact factor: 2.774

3.  Communication and coping intervention for mothers of adolescents with type 1 diabetes: Rationale and trial design.

Authors:  Sarah S Jaser; Emily R Hamburger; Sherry Pagoto; Rodayne Williams; Alison Meyn; Abigail C Jones; Jill H Simmons
Journal:  Contemp Clin Trials       Date:  2019-09-06       Impact factor: 2.226

  3 in total

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